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scleroza multipla - didi - 22-01-2008 03:01 PM

buna sa vafie inima frati de suferinta sunt noua in acest forum si sunt;
-o femeie de 32 ani
-cu 2 copii
-in tratament cu copaxone de 2 saptamini
-diagnosticata in 2005
-deschisa discutiilor


RE: scleroza multipla - Vizitator - 18-05-2008 04:14 PM

buna sa-ti fie inima didi ! si eu am fost diagnosticata cu sm din 1997 si iti inteleg suferinta deoarece si eu sunt mama a doi copii .mult curaj si fi optimista nu te lasa !


RE: scleroza multipla - didi - 19-05-2008 09:38 AM

multumesc pentru incurajari,cum te simti acum?te intreb deoarece mie imi e frica de ce e mai rau si sunt relativ noua in bransa


RE: scleroza multipla - gia - 21-05-2008 09:56 AM

Buna!
Si eu sunt diagnosticata din 2004.Tot dew atunci fac trat.cu rebif beta 1 a (interferon).Ma simt bine,cu mici exceptii.Pupici


RE: scleroza multipla - Vizitator - 23-05-2008 03:22 PM

draga didi , numele meu este vasilica si am 42 de ani dupa cum ti-am spus sufar de aceasta boala din 1997 .La mine a debutat brusc pur si simplu in 2 ore am facut tetraplegie ( am paralizat complect de la gat in jos )dar am luptat si cu ajutorul lui d-zeu in 10 zile cu tratament , gimnastica si masaj am inceput sa-mi recapat functiile motori .Am mers cu cadrul dar in 3 sapt am inceput sa merg si fara el ,au urmat apoi numeroase pusee timp de 2-3 ani am fost mai mult prin spitale . Acum ma simt bine doar ca am mai acumulat cateva boli in rest sunt bine .nu fac tratament decat cu vitamine B-urile din 4 in 4 luni pt scleroza.Eu nu am deocamdata leziunu nici pe creier nici la coloana . Deci iata prin cate am trecut si eu deaceia iti spun sa fi puternica si nu te lasa gandestete la copii pt ca au nevoie de tine . Sa auzim de bine ! Sa nu iti pierzi speranta cineva acolo sus ne iubeste si are grija de noi !


RE: scleroza multipla - Vizitator - 01-07-2008 11:42 AM

didi mai da si tu un semn de viata !


RE: scleroza multipla - didi - 02-07-2008 11:57 AM

hei ,servus scuze ca nu am mai scris nimic nici nu stiu ce as mai putea spune in cele din urma m-am impacat cu gandul ca intradevar sunt bolnava si incerc sa fac aproape tot ce faceam si inainte DOAMNE FERESTE DE MAI RAU


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