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scleroza multipla - Versiune printabila

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- Mar_ius - 23-11-2005 01:05 AM

Ma numesc Marius 24 ani, si sufar de scleroza multipla de 3 ani ,as dorii sa intru in legatura cu alte persoane care sufera de aceasta boala.
daca doriti sa vorbim sau va intereseaza ceva despre aceasta boala lasati un mesaj pe forum.


- ana - 14-12-2005 06:50 PM

Salut, sunt Ana, am 28 de ani; sunt suspecta de scleroza multipla dataorita simptomului de incontinenta urinara; voi avea un rezultat exact saptamana viitoare; imi poti spune cum se manifesta la tine aceasta boala? Au fost mai multe etape in manifestarea ei? A evoluat in rau? Urmezi un tratament?
Mersi anticipat


- Marius - 14-12-2005 09:42 PM

salut, in primul rand vreau sa-ti spun ca scleroza este o boala foarte grea,la mine a evoluat foarte rapid, in general se manifesta prin semi-pareze,pirderi de echilibru,probleme de vedere(adica vedere in ceata sau vedere dubla) e.t.c,
eu fac un tratament de 2 ani cu betaferon si acuma ma simt ca un om sanatos.
As dorii sa tinem legatura,sa-mi spui rezultatul final


- mariana - 06-01-2006 02:20 PM

Mar_ius a scris:
Ma numesc Marius 24 ani, si sufar de scleroza multipla de 3 ani ,as dorii sa intru in legatura cu alte persoane care sufera de aceasta boala.
daca doriti sa vorbim sau va intereseaza ceva despre aceasta boala lasati un mesaj pe forum.

BUNA MARIUS,
Eu ma numesc MARIANA, am aceasta boala dura, scleroza multipla de la varsta de 24 de ani, acum am 35 de ani, deci de 11 ani, in care am avut foarte multe pusee, primul debutand cu paralizie totala de la bazin in jos......., [..]
As dori sa stiu cat mai multe despre tine, mai ales ca la barbati nu stiu cum evolueaza.
Astept raspuns de la tine......MARY.


- iulian - 06-01-2006 05:50 PM

marius a scris:
salut, in primul rand vreau sa-ti spun ca scleroza este o boala foarte grea,la mine a evoluat foarte rapid, in general se manifesta prin semi-pareze,pirderi de echilibru,probleme de vedere(adica vedere in ceata sau vedere dubla) e.t.c,
eu fac un tratament de 2 ani cu betaferon si acuma ma simt ca un om sanatos.
As dorii sa tinem legatura,sa-mi spui rezultatul final



SALUT ,

EU AM 37 ANI SI SUFAR DE SM RECURENT-REMISIVA DE LA 11 ANI. AM TRECUT PRIN MULTE PUSEURI GRELE, DAR MI-A AJUTAT DUMNEZEU SA MA RECUPEREZ DE FIECARE DATA APROAPE 100%. AM SI EU SECHELE, DAR MAI MULT SUBIECTIVE (OBOSEALA, VERTIJ, HIPOESTEZII ETC). DE CURIND AM INCEPUT TRAT. CU BETAFERON, DAR REACTIILE ADVERSE SINT NASOALE RAU-FEBRA MARE, FRISON, TRANSPIRATII. MI-AR PLACEA SA VORBIM [..].

CU STIMA,
IULIAN GHEORGHE
BUCURESTI


- iulian - 06-01-2006 05:54 PM

Mar_ius a scris:
Ma numesc Marius 24 ani, si sufar de scleroza multipla de 3 ani ,as dorii sa intru in legatura cu alte persoane care sufera de aceasta boala.
daca doriti sa vorbim sau va intereseaza ceva despre aceasta boala lasati un mesaj pe forum.


SALUT,

SUNT IULIAN, BUCURESTI, 37 ANI, AM SM DE LA 11 ANI. MI-AR PLACEA SA VORBIM [..]

Cu stima,
Iulian Gheorghe


- iulian - 06-01-2006 06:02 PM

BUNA ZIUA,

SUNT IULIAN GHEORGHE, DIN BUCURESTI, AM 37 ANI, SUFAR DE MS DE LA 11 ANI, SUNT F.BINE INFORMAT, DAR TOT TIMPUL MAI AI CEVA DE INVATAT. AM TRECUT PRIN MULTE PUSEURI CU LOCALIZARI DIFERITE. DE CURIND AM INCEPUT TRAT CU BETAFERON, DAR REACTIILE ADVERSE SUNT DURE. CEI CE VOR SA NE CONSULTAM IMI POT SCRIE [..].

Cu stima,
Iulian Gheorghe


- ada - 11-01-2006 03:57 PM

Sunt noua pe aici,si eu am Scleroza multipla,am 38 de ani si m-am captusit cu SM-ul acum un an,am debutat cu o forma urata ,paralizie totala,diplopie,dizartrie,e.t.c.Fac tratament cu betaferon,acum sunt relativ bine,merg nu tocmai corect,vorbesc f.bine,Am probleme cu ameteala si cu vederea.As vrea sa aflu mai multe de la cei cu experientza in aceasta afectiune.Ce stitzi despre Mickmed?


- Marius - 12-01-2006 11:54 AM

salut,eu am sm de 3 ani, dar aici poti vb.si cu  alte persoane bolnave de sm.


- maka - 20-01-2006 06:08 PM

buna, sunt mihaela shi am 18 ani, shi am scleroya multipla, nu e intr/un stadiu fff avansat, shi nici grav dar sunt speriata, pt k nu stiu exact ce se intampla, mie frik, shi as avea nevoie d ajutor cu niste informatii despare aceasta boala. va multumesc.astept informatiile voastre


- ada - 20-01-2006 07:20 PM

inteleg foarte bine ca esti speriata,dar cu frica si sperietura nu rezolvi prea multe.


- maka - 22-01-2006 04:04 PM

buna mihaela sunt, as dori mai multe informatii despre boala aceasta, va multumesc.


- sfantul - 24-01-2006 06:29 PM

Va salut pe toti . Sint nou in forum.Am scleroza in placi de sase ani , si fac tratament cu betaferon tot de sase ani.Ma simt destul de bine si nu am mai avut in aceasta perioada nici un puseu.Vreau sa discut cu cit mai multe persoane cu aceasta maladie,despre simptomele pe care le au sau le-au avut pe parcursul bolii si pareri despre tratamentul cu betaferon.


- Gabriel - 25-01-2006 03:15 PM

Salut. Numele meu este Gabriel, 42 ani si sufar de aceasta maladie din 2000. Pana acum am avut internari anuale facand tratamentul standard. Ameliorarile au fost semnificative la inceput, dar apoi neimportante. Asa cum scrie in literatura de specialitate, evolutia bolii este imprevizibila, si fiecare persoana afectata de aceasta maladie are propria simptomatologie si evolutie. Intrebare pentru voi: a incercat cineva tratamente naturiste? Daca da, cu ce rezultate? Multumesc anticipat pentru raspunsuri.


- cit4mcd - 29-01-2006 12:38 PM

salut.
sunt medic am 30 de ani si am descoperit ca ma scleroza multipla acum 4 ani.
ce te intereseaza in legatura cu sm?


- cit4mcd - 29-01-2006 12:42 PM

nu ne-ai spus cati ani ai?
dar oricum este un lucru minunat faptul ca nu ai avut nici un puseu sub tratamentul cu inf.
eu fac tratament de doi ani si pot spune ca ma simt foarte bine.
cum a debutat la tine?


- maka - 29-01-2006 02:22 PM

buna sunt mihaela, as dori s primesc un email cu cat mai multe informatii despre aceasta boala. multumesc


- monica - 01-02-2006 07:19 PM

Buna. Ma numesc Monica, am 23 de ani si mi s-a pus diagnosticul de SM Recurent-Remisiva acum un an. Fac tratament zilnic cu Copaxone de cateva luni. As dori si eu sa stiu daca e vreo metoda sa nu mai fie asa de dureroase injectiile. Am senzatia ca mi s-a intarit pielea, parca intra mai greu acul pe masura ce trece timpul. Ma gandesc cu groaza ca am inceput doar de cateva luni si deja ma dor foarte tare injectiile. In ritmul asta cum o sa fie dupa cativa ani?


- doina - 01-02-2006 11:34 PM

Buna Marius! Din fericire, la barbati, scleroza multipla are manifestari mai usoare, si, oricum,este de trei tipuri.Forma benigna , poate fi ,,tinuta in frau" si de regula nu duce la invaliditate Rezultate f bune a obtinut dr Stangaciu prin intepaturile cu venin de albine.Se stie ca veninul contine mielina,deci poti lua in seama aceasta recomandare.Sora mea se simte forte bine in urma acestui tratament.
In rest, numai bine, multa sanatate!


- mariana49 - 05-02-2006 09:08 PM

doina a scris:
Buna Marius! Din fericire, la barbati, scleroza multipla are manifestari mai usoare, si, oricum,este de trei tipuri.Forma benigna , poate fi ,,tinuta in frau" si de regula nu duce la invaliditate Rezultate f bune a obtinut dr Stangaciu prin intepaturile cu venin de albine.Se stie ca veninul contine mielina,deci poti lua in seama aceasta recomandare.Sora mea se simte forte bine in urma acestui tratament.
In rest, numai bine, multa sanatate!




- dica - 06-02-2006 09:17 PM

buna sunt dica am 30 ani am fost diagnosticata anul trecut in aprilie imi e foarte frica deoarece am 2 copii si vreau sa-i ajut nu sa-i impovarez cu boala mea


- gabi,gabi - 16-02-2006 10:51 AM

Buna!
sunt bolnava de SM.de un an si jum.
Vreau sa intreb si poate imi raspundeti.
Solarul afecteaza in vreun fel ?
Deja am facut 3 sedinte a cate 9 min.fiecare.
Va multumesc.


- anna - 16-02-2006 01:06 PM

salut ! eu am scleroza multipla de 1 an si 6 luni, iar din august fac tratament injectabil cu copaxone, nu e dureros si ma simt mult mai bine decat inainte de a apela la el. Va pup pe toti si as vrea sa mai vorbim despre aceasta boala.


- Andra Ghergulescu - 21-02-2006 11:38 PM

Am fost diagnosticata cu SM acum o luna, ca simptome am avut: diplopie, ameteli, vedere periferica dubla, amortela in picioare, oboseala...ma rog, cam toate simptomele. Am fost internata, 5 zile mi s-au facut perfuzii de glucoza cu cortizon, apoi 10 zile am luat medrol ( care contine cortizon). In mare mi-am revenit, as putea spune cam 90%, a ramas putin oboseala. Intrebarea mea de fapt ar fi, credeti ca este in regula faptul ca dupa acest tratament, nu mi s-a mai recomandat un altul, ci doar daca revine boala sa contactez neurologul? Ma sperie faptul asta, pentru ca stiu multe cazuri in care doctorii au dat gres, sau nu au fost destul de interesati (nu vreau sa jignesc, dar chiar stiu cazuri), si chiar as dori sa stiu, pentru a face ceva mai departe, poate sa consult mai multi doctori neurologi. M-am gandit la asta, pentru ca am citit pe forum despre voi ca urmati tratamente cu betaferon, etc. Ma intreb daca tratamentele continua in cazul unei recuperari incomplete, si mie nu mi s-a dat din cauza ca mi-am revenit aproape complet? Orice raspuns si sfat este binevenit. Va multumesc. Andra


- monica - 22-02-2006 03:05 PM

Buna Andra. Exista tratamente care se dau doar in timpul puseelor, fara alt tratament in rest si tratamente permanente care ar trebui sa tina boala sub control, cum este tratamentul cu Copaxone pe care il fac eu. Din cate am inteles medicul la care ai fost a optat pentru prima varianta, nu neaparat din lipsa de interes. Cred ca ar trebui sa consulti si alt medic si sa incerci sa intri intr-un program national pentru pacientii cu scleroza multipla (nu stiu exact care este procedura, dar banuiesc ca poate sa-ti dea detalii medicul respectiv in cazul in care te hotarasti sa consulti si pe altcineva). Sper ca te-am putut ajuta cat de cat. Monica


- ada - 22-02-2006 09:20 PM

Andra Ghergulescu a scris:
Am fost diagnosticata cu SM acum o luna, ca simptome am avut: diplopie, ameteli, vedere periferica dubla, amortela in picioare, oboseala...ma rog, cam toate simptomele. Am fost internata, 5 zile mi s-au facut perfuzii de glucoza cu cortizon, apoi 10 zile am luat medrol ( care contine cortizon). In mare mi-am revenit, as putea spune cam 90%, a ramas putin oboseala. Intrebarea mea de fapt ar fi, credeti ca este in regula faptul ca dupa acest tratament, nu mi s-a mai recomandat un altul, ci doar daca revine boala sa contactez neurologul? Ma sperie faptul asta, pentru ca stiu multe cazuri in care doctorii au dat gres, sau nu au fost destul de interesati (nu vreau sa jignesc, dar chiar stiu cazuri), si chiar as dori sa stiu, pentru a face ceva mai departe, poate sa consult mai multi doctori neurologi. M-am gandit la asta, pentru ca am citit pe forum despre voi ca urmati tratamente cu betaferon, etc. Ma intreb daca tratamentele continua in cazul unei recuperari incomplete, si mie nu mi s-a dat din cauza ca mi-am revenit aproape complet? Orice raspuns si sfat este binevenit. Va multumesc. Andra



Buna ,eu am fost diagnosticata in 2004 am facut tratament in spital 5 zile si abia la al doilea puseu adica dupa aprox 2 luni de la diagnosticare am intrat in program cu betaferon .Si neurologul meu a optat sa intru in tratament cu betaferon abia dupa ce boala a recidivat sunt cazuri cand boala stagneaza chiar de la primul puseu poate din acest motiv neurologul tau a decis asa.Citeste mai multe la http://www.smromania.ro acolo este si un nr.de telefon Help line 0800800044.Si daca nu esti multzumita de neurolg,schimba-l,gaseste unul care sa-ti acorde atentzie la toate intrebarile care le ai ,e o boala destul de complicata dar cu vointza se poate convietzui cu ea...Multa sanatate si sa auzim de bine Smile


- cri - 18-03-2006 10:34 PM

salut
sunt noua pe forum, am 29 ani, am fost diagnosticata cu sm din 1999, fac tratament cu betaferon din 2000, si de atunci nu am mai avut nici un puseu.
simptomele bolii le-am simtit de la 11-12 ani, ( amortelelile mainilor sau picioarelor, nesiguranta si dezechibru in mers, vederea incetosata) dar am continuat asa pana in momentul diagnosticarii, medicii crezind ca e vorba de lipsa de calciu si magneziu.
As vrea sa discut cu cat mai multi despre aceasta boala, daca exista cum vreun tratament pe baza orala nu injectabila, daca exista repercursiuni in perioada sarcinii pentru tine sau copil.
multumesc si va pup


- claudia - 20-03-2006 02:28 PM

sunt claudia am 26 de ani si acum 2 ani am aflat ca am S.M .
pt cine nu stie S.M inseamna demielizare nervilor si de obicei se manifesta prin amortirea unor parti ale corpului .
de aceea iti da imposibilitatea de a misca mainile sau picioarele nemaiputand sa te misti singur.
acum fac tratament cu rebif 44


- alina - 20-03-2006 06:28 PM

:angel:
am sm va rog daca site cineva ceva despre tratamentul cu omega3


- In22grid - 21-03-2006 05:21 PM

Buna

Sunt Ingrid si am 33 ani. In urma unor simptome ciudate am mers la neurolog care mi-a spus ca ar fi bine sa-mi fac un RMN la cap si daca nu am un rezultat bun sa merg la spital in Bucuresti. In decembrie 2005 am facut un RMN in Bucuresti . Dr. radiolog mi-a sris pe rezultat- zone de demielinizare - posibil boala demielinizanta de tip SM - de investigat etiologic. Cu acest RMN am mers la Clinica de Neurologie unde mi s-a spus ca este vorba despre trei puncte dar ca acestea sunt foarte mici si nu se pune problema de SM. Doctorul mi-a spus ca unde mi-am facut eu RMN au un aparat performant si nu sunt prima care vin cu un astfel de rezultat si probabil ca daca il faceam la ei nu mi-ar fi iesit nici un punct. Mi-a mai spus ca aceste puncte pot avea si o alta cauza si ca as putea sa le fac si de la o raceala. Eu nu pot fi de acord cu el pt. ca am in continuare simptome care ma duc cu gandul la SM ( vedere incetosata, furnicaturi, rigiditate, fasciculatii, amorteli,durere de spate). Dr. a zis ca fasciculatiile( ondulari ale fibrelor musculare) pot fi din lipsa de magneziu. Dupa doua luni am mers din nou in Bucuresti si i-am spus doctorului ca nu ma simt bine si la fel ca si prima data mi-a spus ca nu am nimic ca poate fi din lipsa de vitamine.Mi-a dat totusi sa fac potentiale evocate vizuale si auditive, care mi-au iesit bine si care de fapt nu m-au linistit asa cum imi spunea doctorul. Mentionez ca toate simptomele mi-au aparut la 3-4 luni dupa nastere. Eu am nascut acum un an si jumatate.
Vad incetosat si niste bilute cenusii negricioase care se misca odata cu miscarea globilor oculari.
Intrebarea mea este : daca cei ce au SM sau sunt suspecti SM au vederea incetosata pe perioada lunga de timp, sau aceasta trece si dupa aceea revine , sau daca este permanenta, sau se agraveaza de la o zi la alta. In cartea pe care o am eu scrie ca printre simptome mai sunt si mii de ace, tremor. Nici unul dintre voi nu ati scris de asa ceva.
In speranta ca voi primi un raspuns ,ma opresc aici si poate ca si eu la randul meu poate voi avea un raspuns pentru voi.


- mihai - 23-03-2006 12:17 AM

Hallo! S-ar putea sa te impacientezi cam devreme. Eu am 6 zone nu puncte, dintre care o zona cam de 1cm x 1cm. Simptomele mele au fost de semipareza faciala(dizartrie) si fac tratament cu betaferon injectabil 1 la 2 zile. Inca si acum dupa 3 luni de tratament iau un paracetamol inainte si unul dupa injectie la 1 ora. Ma scapa de frisoane si de starea proasta de a doua zi. Incearca sa nu te mai supreri de loc, iar daca ajungi in acest stadiu cu tensiunea, sa inchizi ochii, sa-ti repeti continuu in gand ca esti calma si sa vizualizezi o imagine placuta.


- In22grid - 25-03-2006 04:08 PM

Haloo Mihai !
Banuiesc ca ai primit diagnostic de scleroza multipla daca faci tratament. As vrea sa stiu daca cele sase zone de demielinizare despre care vorbesti ti-au iesit de la primul RMN si daca acestea sunt numai la cap sau ti-ai facut RMN si la coloana. Poate imi spui daca ti-au facut si punctia lombara pt. a-ti da diagnosticul.


- mokanumihaela - 27-03-2006 02:02 PM

Ma numesc Mihaela Mocanu , am 37 de ani si din martie am dost diagnosticata cu SM dupa un RMN. SM mi-a afectat vederea, dar este al doilea puseu in 5 ani (prima data nu am dat importanta pentru ca mi-am revenit) si acum intreb..cam tarziu.. cum ati intrat in programul de tratament cu betaferon .Am luat timp de 7 zile medrol 16mg,dat de catre neurolog.de la mine am facut 12 zile injectii cu B1,B6,B12 .
Ce pasi trebuie sa fac si la cine trebuie sa ma adresez sa intru in acest program cu betaferon.
Poate imi da-ti niste detalii. Locuiesc in Braila si medicii de aici dau din umeri.
o zi buna si multumesc anticipat


- In22grid - 28-03-2006 03:29 PM

Buna Mihaela!
Ma numesc Ingrid si am 33 ani.Eu sunt suspect SM pentru ca pe RMN mi-au iesit trei zone de demielinizare. Cu toate acestea nu mi s-a pus nici un diagnostic. As vrea sa stiu cate zone de demielinizare ti-au iesit tie si cat de mari sunt daca ti-au dat acest diagnostic.Nici eu nu ma simt bine, mai ales imi este afectata vederea dar probabil ca si tine o sa primesc diagnosticul mai tarziu.Poate imi spui si mie cum au progresat la tine simptomele( sau ce fel de simptome) in acesti 5 ani. Multumesc anticipat.


- mokanumihaela - 28-03-2006 04:20 PM

buna Ingrid

Am facut RMN acum jumatate de luna si am 4 zone intre 3 si 12 milimetri .
in 2000 am avut amortita partea dreapta a capului dar atunci am mers pe un tratament de calciu si in o luna si jumatate a trecut . Acum o luna am inceput sa nu mai vad cu ochiul stang si din control in control am fost trimisa sa fac RMN. acum vad aproximativ 80% cu ochiul afectat.

si mai departe nu stiu ce sa mai fac si ce sa astept ca nu imi spune nimeni nimik. :'( si vroiam sa aflu de la altii care urmeaza tratamentul cu betaferon cum au ajuns in acel program.


- In22grid - 28-03-2006 09:38 PM

Buna Mihaela.

Vorbeste cu Marius care ti-a scris mai devreme sa vorbesti cu el pe messenger. El face tratament de vreo 4 ani si poate ca el o sa te mai lamureasca. Stai si tu mai mult pe messenger. Mai devreme era si el pe messenger.
Ingrid


- In22grid - 28-03-2006 09:50 PM

Mihaela,
Mai sunt mesaje in care unele persoane si-au dat adresa de e-mail. Poate iti raspund ei. Nu stiu de ce dar se raspunde foarte greu la intrebari. Toti cei care au trecut prin asta ar trebui sa le raspunda celor care sunt la inceput si nu stiu ce sa faca.

ADMIN: Tocmai pentru ca si-au dat adresa de e-mail sau messenger vor conversa numai o persoana cu alta persoana. Daca ar conversa mai mult pe forum ar fi in beneficiul tuturor, fiecare putand citi informatiile oferite de ceilalti. De asemenea este util sa va inregistrati pe forum pentru a beneficia de toate avantajele (setarile personale, mesaje private, avatar etc.).


- Marius - 29-03-2006 02:36 AM

SALVE, sunt Marius ... pentru informatii si intrebari despre SM :uglystupid2:


- ady - 31-03-2006 01:05 PM

sunt marius si am 21 ani .am fost diacnosticat cu scleroza in placi in noiembrie 2005.Sunt foarte speriat de acest lucru cu gandul ca nu voi putea niciodata sami intemeiez o fam.Ce sfaturi imi puteti da.


- alina - 31-03-2006 03:05 PM

Buna,

Sunt Alina si am niste probleme cu amortirile. Mi se intampla sa imi amorteasca capul la spate sau fata. De asemenea gatul mi se strange si am crampii. Ma sperii tare, dar cand ma calmez imi trece. Vroiam sa va intreb daca asa se manifesta SM? CE inseamna exact tulburari de vedere (vedere in ceata?)? Cat de des se intampla asta? Poate cineva sa imi dea mai multe detalii despre cum se manifesta boala la inceput?

Multumesc
Alina


- In22grid - 31-03-2006 03:49 PM

Buna Alina!

Sunt Ingrid si vroiam sa-ti spun ca sunt suspect de SM. Nu stiu cat dureaza tulburarile de vedere caci eu nu mai vad bine de 2 luni si ceva .Am fost si la oftalmolog dar mi-a spus ca nu am nimic. Eu vad incetosat si niste pete cenusii negricioase care sunt mai puternice la miscarea globilor oculari. Am amorteli, furnicaturi...Ca sa vezi daca ai leziuni de demielinizare trebuie sa-ti faci un RMN(rezonanata magnetica nucleara) la cap. Din cate am citit eu de aceasta boala simptomele de debut sunt in functie de unde are fiecare leziunile.
Poate cineva care are SM de mai mult timp vine cu alte detalii.


- alinadima - 31-03-2006 04:11 PM

Buna,

Mersi mult de rapsuns! Am fost azi la doctor si mi-a zis ca am amigdalele inflamate. Mi-a luat tensiunea si mi-a zis ca e buna. Crezi ca am motive sa imi fac griji? Luni imi fac analize de sange. Se poate vedea ceva din analizele de sange(daca sunt suspecta sau nu?)? Imi este foarte frica...sunt terorizata!

Multumesc mult,
Alina


- alina - 31-03-2006 04:16 PM

Buna Ingrid,

Am uitat sa ma loggez. Mersi mult de rapsuns! Am fost azi la doctor si mi-a zis ca am amigdalele inflamate. Mi-a luat tensiunea si mi-a zis ca e buna. Crezi ca am motive sa imi fac griji? Luni imi fac analize de sange. Se poate vedea ceva din analizele de sange(daca sunt suspecta sau nu?)? Imi este foarte frica...sunt terorizata!

Multumesc mult,
Alina


- In22grid - 31-03-2006 05:22 PM

Alina,

Nu pot sa-ti spun eu daca simptomele tale sunt sau nu neurologice. Daca ai mers la medic si el ti-a spus ca din cauza amigdalelor ai aceste simptome atunci totul este in regula.
In ce priveste analizele de sange mie mi-au iesit bune cu exceptia calciului. La examenul neurologic nu am iesit chiar in regula si mi-a recomandat sa-mi fac un RMN.
Pentru linistea ta ai putea merge si la un doctor neurolog pentru o consultatie. El iti va verifica reflexele. El iti va spune daca aceste simptome sunt din cauza unei boli neurologice sau daca nu sunt atunci totul este ok.
Ingrid


- Marius - 31-03-2006 05:36 PM

pentru  ady, intra ... sa vorbim de sm. Si eu am fost diagnosticat la 21 de ani de SM. POATE TE POT AJUTA CU CEVA


- Marius - 31-03-2006 06:35 PM

Tot pentru ady, nu dispera ca va fi bine, trebuie sa ai rabdare si nu te mai gandii la cei mai rau


- sumi - 03-04-2006 08:44 PM

daca s-a descoperit vreun tratament


- sumi - 03-04-2006 08:48 PM

de ce nu se poate opera nimic


- alinad - 04-04-2006 10:24 AM

Buna Ingrid,

Vroiam sa iti spun ca am fost ieri la neurolog. M-a consultat: tot tacamul (verificari de mers, maini, picioare etc) si mi-a zis ca totul e in regula dar pentru linistea mea sa fac un EKG. L-am facut si a iesit totul in regula. SmileAcum astept analizele de sange. M-am calmat si ma simt mai bine. Deci, sper ca totul sa fie in regula. Tu cum te mai simti? Ai mai fost la neurolog?

Multa sanatate,
Alina


- In22grid - 04-04-2006 04:21 PM

Buna Alina,

Ma bucur ca ti-au iesit analizele bune.Este un lucru bun ca ai scapat si nu mai esti terorizata.
In ce ma priveste pe mine mi-am facut si eu ieri un alt RMN dar mi-au dat rezultatul prea tarziu si nu l-am mai gasit pe doctor la spital. Voi merge iar in Bucuresti ca sa-l caut cand este de garda(are mai mult timp atunci si sta pana seara) peste o saptamana . Voi vedea atunci.

Ingrid


- alinad - 04-04-2006 08:39 PM

Buna Ingrid si cititori ai forumului,

Din pacate am observat azi ca simptomele mele nu au trecut. Am aceleasi senzatii de amorteli, si imi ingheata tot corpul si simt frisoane. Ma ia si cu crampi si simt nevoia sa ies afara. Crezi ca daca rezultatul EKG-ului a fost bun si doctorul mi-a spus sa nu imi fac griji ca e totul in regula, mai exista posibilitatea sa fie SM? Tie ce anume nu ti-a iesit bine la neurolog? Ai facut EKG (testul cu electrozi)? Oare ce ar putea fi Doamne...imi este foarte frica...sa fie oare de la anticonceptionale(abia am inceput sa le iau)?Daca cineva are vreo idee sau sfat, va rog mult ajutati-ma...

Alina


- In22grid - 05-04-2006 10:54 AM

Buna Alina,

Nu stiu nici eu foarte multe despre SM dar in ultimul timp am citit foarte mult. Mie nu mi-a iesit bine RMN( rezonanata magnetica nucleara). Eu nu mi-am facut acum EKG pentru ca din cate stiu eu se face la inima. Eu mi-am facut analize care vizeaza SNC(Sistemul Nervos Central). De exemplu RMN si Potentiale Vizuale. SM este o boala a SNC.
De ce ti-a intrat tie in cap ca ai avea SM? Din ce mai stiu si eu ar trebui sa iti fie afectata vederea. Este chiar un semn caracteristic.Eu de ex. vad incetosat. Vezi incetosat sau dublu? Am citit pe internet simptomele SM dar nu scria de frisoane.
Nu stiu cat de mult te-am ajutat dar poate o sa fie bine.

Ingrid


- mokanumihaela - 05-04-2006 01:58 PM

nu raspund in mod special pentru cineva.
SM se descopera numai daca faci RMN si chiar si asa se spune ca mai pot fi demielinizari si fara a avea SM.nu se vede la encefalograma sau la analizele de sange.eu daca nu faceam RMN-ul nu stiam ca am SM.la mine a debutat in nov.1999 cu o parestezie a partii drepte a capului dar dupa vizite la mai multi medici care nu-mi spuneau nimic am considerat-o spasmofilie(puternica lipsa de calciu)si am tratat-o ca atare.prin 2003 nu am dat prea mare importanta iar incepuse sa-mi amorteasca aceeasi falca dreapta si am urmat tratamentul ptr.lipsa de calciu si parestezia a stopat.numai ca acum in februarie cand am inceput sa nu mai vad cu un ochi ,iar intr-o saptamana nu mai vedeam deloc ,am fost la 2 oftalmologi,am ajuns la Bucuresti ptr.ochi dar s-a ajuns la concluzia ca nu am nimic la ochi si mi-au recomandat sa ma duc la neurolog de unde am fost trimisa la RMN .am fost , am aflat si am am vazut ce am.Intr-o luna ochiul si-a revenit cam 90%,dar eu am ramas cu boala.sper sa nu fie continue mai grav in continuare.TREBUIE SA CRED ASTA !


- alinad - 05-04-2006 04:39 PM

Buna,

Am fost azi din nou la neurolog si mi-a recomandat niste pastile pt anxietate. Nu am probleme de vedere. In urma analizelor de sange, mi-a iesit fierul foarte mic 8 pe cand normalul e intre 20 si 170. Neurologul m-a verificat complet si mi-a zis ca examenul e in regula si nu e nevoie de RMN si ca el nu imi poate recomanda acest test. Eu stau in Germania momentan, unde testul se face numai cu consentul unui medic. De asemenea, am citit ca la electrocardiograma se poate vedea daca ceva nu functioneaza bine prin analiza mesajelor creierului si daca este asa, se fac teste mai departe. Pe tine Ingrid de ce te-a trimis neurologul la RMN?

Alina


- alinad - 05-04-2006 04:51 PM

Si inca ceva..din ce stiu eu, potentialele vizuale sunt un tip de encefalograma..iti masoara viteza de raspuns a neuronilor...asta e si testul facut de mine...care a iesit bine...

Alina


- alinad - 05-04-2006 06:11 PM

de cate ori am zis electrocardiograma, ma refeream bineinteles la testul cu eletcrozii pentru cap...gen encefalograma...prin care se analizeaza mesajele catre creier...nu stiu de ce ma tot incurc cu electrocardiograma...imi cer scuze pt confuzie.

Alina


- In22grid - 05-04-2006 09:31 PM

Buna Alina,

Eu am fost la trei neurologi inainte si nu mi-a recomandat nici unul. In final al patrulea mi-a zis ca ar fi bine sa fac un RMN.Atunci m-am hotarat sa merg in Bucuresti sa vad unde pot face RMN.In momentul acela aveam amortit un picior, furnicaturi pe spate,crampe musculare la picioare.Am mers la Spitalul 9 si am gasit un Dr. care m-a trimis la o clinica particulara unde am platit ceva pentru un RMN la cap. Nevrita optica mi-a aparut dupa ce am facut RMN.Potentiale evocate vizuale mi-au iesit bine( le-am facut dupa ce mi-a aparut nevrita optica). La RMN nu am iesit bine.
Dar stii cum e: fiecare are cazul lui particular.
In Germania poate doctorii sunt mai buni.
Ingrid

Ingrid


- alinad - 05-04-2006 10:12 PM

Buna Ingrid,

Tu cand vb de amorteala, vb ca nu simteai piciorul si ca toate obiectele pe care le atingeai nu simteai ca le atingi..sau usoara amorteala? Simteai senzatia de arsuri pe maine sau picioare...sau senzatia de frig...sau ca ti se strange gatul si e uscat? Aveai probleme de mers? Iar amoreteala piciorului te tinea continuu? Iar neurologul ti-a zis ca ceva nu e in regula nu? Sau toti trei neurologii ti-au zis ca e totul in regula si nu e din cauza neurologica?

Alina


- in22grid - 06-04-2006 03:26 PM

Nu mai imi simteam piciorul aproape deloc, aveam arsuri pe spate si o mana. Aveam furnicaturi foarte puternice pe spate. Piciorul il am amortit dar imi trece si dupa cateva luni revine.Acum am nevrita optica.Nu am si nu am avut probleme de mers. In ce priveste gatul nu am avut probleme. Neurologul(ultimul) mi-a zis ca ceva nu e in ordine.Primii neurologi mi-au zis ca poate fi o nevroza si mi-au dat sa fac calciu si magneziu.

Ingrid


- sumi - 06-04-2006 08:34 PM

va recomand trei mediciBig Grinr.bajenaru-seful asociatiei de neurologie pe tara;dr.esergian-cel mai bun nurochirurg si dr.boieru


- bianca - 06-04-2006 09:21 PM

ce fel de tratament este tratamentul cu imunoterapie BHT-3009?


- in22grid - 07-04-2006 04:10 PM

sumi,

Ne-ai recomandat niste doctori dar nu ne-ai spus unde sa-i gasim.


- sandman - 09-04-2006 10:57 PM

Pentru cris. Ai facut un examen RM daca spui ca ai SM de la 11 ani? Sunt destule boli demielinizante care pot arata ca SM. Depinde de interpretarea corecta a medicului ce a facut examenul RM. Dupa cate stiu 11 ani este o varsta destul de frageda pentru SM. Pana acum nu am coborat sub 17 ani la descoperirea leziunilor demielinizante caracteristice SM.
In rest tineti-va de tratament cu betaferon sau glatiramen pentru ca acestea sunt cele mai bune ca rezultate (pot sa spun asta dupa 300 pacienti in 5 ani). Dar glatiramer-ul actioneaza mai specific.

Va rog sa uitati de ceaiuri sau venin de albina. Pana la proba contrara. Nimeni nu a facut o urmarire corecta imagistica a tratamentului.


- cip - 10-04-2006 01:01 AM

sandman a scris:
Va rog sa uitati de ceaiuri sau venin de albina. Pana la proba contrara. Nimeni nu a facut o urmarire corecta imagistica a tratamentului.


Inteleg sa recomandati a nu fi utilizat un tratament alternativ cand stiti macar despre ce tratament este vorba. Spuneti-mi va rog ce tratamente alternative ati studiat si ce rezultate au avut sau ce rezultate NU au avut si de ce?

Am inteles dintr-un alt mesaj al dv. ca din experienta dv. nu s-a vindecat nimeni folosind medicamente sau alt tratament alternativ. Atunci ce rost are sa sustineti un anume tratament in detrimentul altuia mai ales ca medicamentle au in plus si multe efecte adverse:

Betaferon

Citat:
Reactii adverse: Cele mai des ntlnite au fost febra si oboseala (simptome pseudo-gripale). Cele mai obisnuite reactii adverse sunt anorexia, diareea, greata, mialgia, cefaleea, trombocitopenia si granulocitopenia. Printre reactiile adverse mai putin ntlnite sunt hipotensiunea arteriala, hipertensiunea arteriala, voma, artralgia, confuzia, ameteala, ataxia, parestezia, anxietatea, depresia, nervozitatea, somnolenta, pruritul, alopecia, afectarea starii de constienta. Printre cele mei frecvente modificari ale probelor de laborator, n special la doze mai mari de 10 MU zilnic sunt cresterea transaminazelor hepatice si scaderea numarului granulocitelor si trombocitelor.


Glatiramer

Citat:
What are the possible side effects of glatiramer?
• Stop using glatiramer and seek emergency medical attention or contact your doctor immediately if you experience an allergic reaction (difficulty breathing; closing of the throat; swelling of the lips, tongue, or face; chest pain; hives; skin rash with irritation; dizziness; sweating; or severe pain at the injection site).
• Other less serious side effects may be more likely to occur. Notify your doctor if you experience
· flushing, increased heart rate, or anxiety shortly following an injection;
· fever or chills;
· headache;
· weakness or joint pain;
· swelling or fluid retention;
· redness, pain, inflammation, itching, or a lump at the injection site;
· nausea, vomiting, or decreased appetite; or
· diarrhea.
• Side effects other than those listed here may also occur. Talk to your doctor about any side effect that seems unusual or that is especially bothersome.




- stanica - 29-04-2006 07:33 AM

salut.sunt georgets,am 38 de ani,sufar de aceasta boala de 3 sni,as vrea sa stiu daca exista tratament sau o clinica unde se poate ameliora,vindeca.multumesc!


- georgeta - 29-04-2006 07:38 AM

salut.sunt georgets,am 38 de ani,sufar de aceasta boala de 3 sni,as vrea sa stiu daca exista tratament sau o clinica unde se poate ameliora,vindeca.multumesc!


- Marius - 29-04-2006 11:39 AM

salut Georgets,tratament pentru scleroza exista,(betaferon, copaxone, avonex, etc.) .Suna la nr. 0265216375 este nr. de la spitalu din TG-MURES sau 0265231920, nr. de-la o clinica si cere cu doctor Pascu Ioan, este doctor neurolog.


- Marius - 29-04-2006 01:10 PM

doctor Pascu Ioan te poate baga in programu cu betaferon,sau alt medicament de care ai nevoie. BAFTA SI SUCES
:yes:


- Sophie - 03-05-2006 08:16 PM

buna. ma numesc Sophie, 29 de ani. exista vreo legatura intre aceste simptome pe care le-am avut in numai cateva zile: dureri f puternice de inima(asta survenit in urma unui stres puternic si a durat o zi dar la o intensitate f mare, acum a trecut). a urmat cistita. apoi criza de lombosciatica- o boala pe care o am de 10 ani dar de 2 ani nu mai avusesem nici un episod. acum sunt intr-o stare depresiva, brusc am inceput sa vad in ceata si in acelasi timp o semipareza la nivelul buzelor.plus stari de oboseala inexplicabile, foarte sensibila la frig- suport foarte greu frigul iar la soare puternic mi se irita pielea.din toata simptomatologia citita despre scleroza multipla , incep sa ma cam sperii.
multumesc pentru orice raspuns


- ada - 03-05-2006 10:56 PM

Buna Shopie,in primul rand nu lasa frica sa puna stapanire pe tine iar in al doilea rand mergi cat mai curand la un medic si povesteste-i toate acestea,e raspunsul pe care consider eu sa ti-l dau acum cand citesc mesajul tau.Multa sanatate si sa "auzim" de bine.Ada


- CARMEN Magda - 17-05-2006 11:26 PM

va salut,
azi am fost la un medic naturist care mi-a spus ca ii pare rau ca trebuie sa-mi spuna ca aceasta boala nu se mai vindeca, ce sa fac nu stiu, imi este tare frica de ceea ce urmeaza,de curentul din coloana nu mai scap, ma doare capul si mana inca nu-i dezamortita complect.
Cum sa fac sa nu mai am puseuri... ce sa fac? asta-i intrebarea care ma macina pe minein acest moment.Aici imi mai descarc sufletul si vreau sa va spun ca imi doresc asa de mult un copilas, insa acum mai am si un fobrom uterin care nu ma lasa sa duc sarcina la capat.
Eu va salut pe toti si sper sa citesc numai lucruri de bine!!
Ingrid, ai fost la doctor ? Nu faci tratament ?Incearca sa reduci din tigari ca ne intoxoica creierul.Eu una nu mai fumez asa de mul (1-3 tigari pe zi.)
Creierul este un dar de la Dumnezeu, hai sa incercam sa avem grija de el.
Ada, tu ai voie sa bei cafea..hmmmmm.
e adevarat ce ziv=ci de fula ca tratamentul lui consta in cure de dezintoxicare si ceva tincturi,are si aici,in TM un colaborator care mi-a pus ca persoanele cu SM nu se vindeca dar ca au pacienti care inainte nu puteau sa mai mearga si acum pot. Vreau sa incerc acupuncura, cand incep cu astea o sa va scriu.
Va pup si va doresc o viata normala!
Dumnezeeu sa fie cu voi si sa va binecuvanteze!!!


- ada - 17-05-2006 11:47 PM

Carmen Magda,imi pare bine ca te revad pe aici.Numarul puseelor se reduce cu ajutorul tratamentului cu interferon sunt singurele tratamente in urma carora sa observat scaderea ratei frecventei lor precum si a intensitatii.Si ai incredere chiar daca momentan nu sa descoperit ceva care sa vindece aceasta boala cercetatorii continua lupta si se pare ca pasii care se fac acum sunt destul de mari comparativ cu anii 60-80 cand multi dintre cei cu SM erau tratatzi doar placebo.Ramai in legatura permanenta cu neurologul tau chiar daca vei alege sa te tratezi in paralel si cu metode complementare.
Te imbratisez cu drag .


- Ingrid - 18-05-2006 09:36 PM

Buna,
Carmen Magda ma bucur ca iti doresti un copilas. Ai grija ce faci cu fibromul( poate te operezi si scapi de el daca este mic, sau poate il tratezi). Eu iti doresc din toata inima mea sa reusesti si sa faci bebele mult visat. Vezi poate reusesti sa faci asta inainte sa incepi tratamentul cu interferon( ca sa nu faci rau la bebe). Daca nu, poti sa incerci si mai tarziu. Eu am nascut la 32 ani si am o fetita perfect sanatoasa.
Eu nu am mai fost la doctor in Bucuresti pentru ca trebuie sa repet un RMN dupa sase luni( una deja a trecut)-asta daca nu mi se intampla ceva rau pana atunci. Merg la neurologul meu din Craiova care nu mai stie nici el ce sa-mi mai spuna. Am leziuni pe creier dar mai imi trebuiesc inca doua pentru diagnostic sau una mai mare decat cele pe care le am eu acum( asa scrie la carte). Din cate am mai citit si eu, stiu ca se poate sa ai mai multe leziuni dar care ies la RMN numai cand sunt active.(nu stiu cum mai vine si asta). Ideea este ca nu ma simt bine deloc dar nu mai vreau sa scriu despre asta.
Fetita mea creste vazand cu ochii si ne miram toti de ea ce mult vorbeste si cat de multe stie.
Este singura mea alinare. Eu daca stau acum numai acasa nici prieteni nu mai am asa de multi ca inainte( cand ai nevoie mai multa de ei atunci vezi ca nu prea mai sunt).
Ai grija ce faci cU fibromul asta,macar sa nu evolueze.
Despre SM ce sa spun: o da DUMNEZEU SA SE GASEASCA VREUN TRATAMENT MACAR PENTRU O STAGNARE A BOLII. TREBUIE MACAR SA SPERAM. SPERANTA MOARE ULTIMA.

Multa sanatate tuturor !
Ingrid


- claudia - 20-05-2006 08:56 PM

Sfatul meu este sa te feresti de orice raceala si curent. CLAUDIA FUNARIU


- CARMEN Magda - 21-05-2006 02:09 PM

Salut ADA si INGRID (in ordine alfabetica),
ORICE DURERE NASHTE SPERANTZA!
Aceasta boala este o boala karmica, data de destin. Sperzantza este cea mai mare curva :laugh: toata lumea traieste cu ea, eu acum ma simt bine, astept sa termin sesiunea si sa caut o chirie noua, in iulie vine proprietarul, pana atunci trebuie sa strang ceva banii pentru renumita shpaga, o sa ma dus sa inteb cat ma costa una bucata operatie.
Ada, cand ai pusseuri inseamna ca leziunile se extind adica atunci cand ai pusseu are loc diminilizarea si cat timp  dureaza acest puseu inseamna ca te demielinizezi? logic cred ca asa este ..
Daca consideri ca sunt indiscreta te rog sa ma scuzi si sa nu imi raspunzi la intrebare, tu ce fel de SM ai ?
Ingrid, sa dea bunul Dumnezeu ca fetitza ta sa aibe o mama sanatoasa si atunci cand ea va avea 50 de ani, cum te mai simti? sa stii sa trece, toate-s trecatoare.sa fereasca D-zeu sa mai aiba cineva pusse, si aceeia care sunt la pat sa faca Dumnezeu minune sa-i vindece..
e important sa incerci sa te lasi de fumat si sa nu mai papi macare grea, cu prajeli, sucuri cu chimicale, coloranti, intoxica organismul si  nu ne face bine.  Ai zis ca leziuniile ies la RMN numai cand sunt active, adica cand sunt pusse, cum se instaleaza pussele astea sau cand devin  active leziunile? Nici eu nu intzeleg!
Ai zis ca ai leziuni pe creier dar iti mai trebuie inca doua ca sa-ti puna diagnosticul, Doamne fereste, dar vreau sa stiu si eu daca stii tu sau altcineva cate leziuni iti trebuie sa fii doagnosticat cu Sm, nu-s suficinte doua,tie ti le-a numarat cineva ?? la mine spune ca sunt multiple arii dimienilizante Sad

va pup si va doresc sanatate tuturor!
CM


- ada - 21-05-2006 08:33 PM

Buna fetelor ,
La multi ani cu sanatate,bucurii si impliniri in toate pentru toti cei dragi voua ce poarta numele Sfintilor Imparati Constantin si Elena.Aceleasi sincere urari tuturor celor ce citesc aceste randuri si a caror onomastica se serbeaza astazi.
Si acum sa incerc sa raspund intrebarilor voastre,atat cat am si eu cunoastere ocazionata de traiul la comun cu aceasta SM.Carmen Magda, Serghei NiKolaevici Lazarev in lucrarea sa Principii de vindecare vorbeste la un moment dat si despre scleroza in placi ca fiind o boala Karmica-aceasta boala traducand-o ca fiind plata pentru pacatul geloziei.Dupa ce am citit aceasta ipoteza recunosc ca am facut o introspectie asupra personalitatii multor descendenti ai familiei din care provin si am descoperit un sambure de adevar in aceasta teorie.Referitor la numarul leziunilor de ce trebuie ele sa fie 2 sau mai mult de 2,raspunsul ar fi urmatorul:Simptomele SM sunt comune multor boli ale sistemului nervos central dar nu toate acele boli cu simptomatologie similara,produc demielinizari ,aparitia la investigatia RMN a unui numar mai mare de 2 leziuni conduce mai lesne la diagnosticarea clara a SM.Instalarea unui pusseu este atunci cand un simptom,(nou sau vechi)persista mai mult de 24 de ore.Factorii declansatori ai puseului nu se cunosc , daca s-ar cunoaste probabil s-ar afla mai repede si cauza acestei afectiuni. Stiu doar ca sa observat ca anumitzi factori de mediu influenteaza in mod direct aparitzia puseelor(expunerea la temperaturi f.scazute precum si expunerea la temperaturi f.ridicate si alte variatii climaterice bruste).Sunt si pusee care nu lasa demielimizari in urma lor,revenirea la functiile normale facandu-se complet (remisie completa).Carmen Magda,nu esti deloc indiscreta si ti raspund ca eu sunt diagnosticata cu Scleroza multipla recurent remisiva.Diagnosticul acesta mi-a fost inscris in fisa abia dupa ce am facut si al doilea puseu .Curva ne curva sperantza dar eu traiesc cu ea si cu Credintza ferma ca Bunul Dumnezeu ne va ajuta sa depasim aceasta incercare numita SM. Dupa primul puseu (cel de la debut si cel "devastator"asa cum a fost el numit la vremea respectiva la RMN s-au evidentiat un numar de 13 leziuni de diferite dimensiuni cuprinse intre 3 si 16 mm .Dupa 1 an la un nou RMN sa constatat un numar mai mic de leziuni (au ramas numai 9) si cu o discreta reducere a dimensiunilor.In finele anului acesta voi face un al treilea RMN si va voi tine la curent cu rezultatul.Durata unui puseu variaza de la cateva zile la cateva luni.La mine simptomele primului puseu s-au instalat rand pe rand in decurs de 3 saptamani,o luna,puseul odata instalat si-a facut de cap cam 3 luni dupa care treptat, treptat sa instalat si mult asteptata remisie (ce-i drept incompleta) odata cu care a venit si o stare a sanatatzii din ce in ce mai buna.Simptomele celui de-al doilea puseu s-au instalat cam in 7-10 zile,puseul a durat cam 20 de zile dupa care a intervenit remisia mult asteptata.Al treilea puseu sa instalat in 48 de ore si a avut o durata de 5 zile cu o remisie completa .Sper ca pentru moment am putut sa raspund framantarilor tale.Iti doresc sa treci cu bine sesiunea, sa nu te stresezi prea tare nici cu sesiunea nici cu chiria si astept ca de fiecare data cand ne scrii sa ne dai numai vesti bune si f.bune.(Apropo ce studiezi?).Te pup si la buna revedere electronica :yes: :-*
Ingrid,referitor la intrebarea ta vizavi de rujeola iti pot spune ca am citit si eu cate ceva despre faptul ca cercetatorii incrimineaza acest virus ca posibil cauzator al acestei boli. Eu personal am avut rujeola pe la varsta de 4-5 ani intr-o forma destul de comuna.Cei drept am avut insa o scarlatina intr-o forma urata si repetitiva (o forma simpla la varsta de 5 ani si o forma urata la varsta de 10 ani).Medicul meu neurolog spune ca scarlatina insa nu intra in discutie ca fiind posibil factor virusologic declansator al SM.
Sper din tot sufletul ca cercetataorii sa descopere cat mai repede cauzele pentru a putea apoi sa
creeze un medicament care sa vindece aceasta afectiune.
Pupici dulci :-* :-* :-*pentru "mica printesa" asa cum imi place sa o numesc eu pe fetitza ta,iar pe tine te rog sa te odihnesti cat mai mult cu putintza si nu te mai stresa ptr.lucruri marunte (dezordine,praf,bla,bla)daca musafirilor tai nu le place ceva sa-si schimbe statutul din musafiri in ajutoare.Iti doresc sa ai parte de prieteni adevarati adica sa-ti fie aproape si la greu nu numai la bine.Te pup si te imbratisez cu mult drag si am sa revin si cu un mesaj personal in cazul in care nu am reusit sa ating toate problemele pe care mi le-ai semnalat. :yes:
Doamne ajuta si Sanatate maxima tuturor Smile


- Ingrid - 22-05-2006 05:22 PM

Buna fetelor,
Carmen Magda eu incerc sa ma las de fumat desi este foarte greu. Sotul meu a reusit asta de cand a fost diagnosticat cu stenoza mitrala si aortica. Am sa incerc si eu si sper ca voi reusi.
In legatura cu zonele de demielinizare nici eu nu mai stiu ce sa cred ca nu sunt doctor. Eu am un manual de medicina care este pentru doctorii din Anglia- este tradusa in romaneste. E destul de greoaie dar mai inteleg cate ceva. Acolo printre altele scrie:
RMN poate fi folosit pentru depistarea unei a doua leziuni cand numai o singura localizare a leziunii a fost demonstrata la examenul fizic. Un RMN de confirmare trebuie sa cuprinda fie patru leziuni situate la nivelul substantei albe, fie trei leziuni daca una dintre ele este situata periventricular. Leziunile acceptabile trebuie sa aiba un diametru de minimum 3mm.
Eu am patru leziuni dintre care una este situata periventricular si are peste 5mm. Celelalte trei au intre 2-2,5mm.
In schimb la spital mi-au spus ca pot fi si mai mici dar sa fie mai multe decat am eu. Nu mai stiu nici eu. Probabil ca numai Dumnezeu stie ce e in capul meu.
la spital am intalnit o fata care avea SM de 5 ani si nu avea leziuni decat la coloana.
Eu am partea stanga amortita.
Voi inainte da luna in care ati fost diagnosticate nu ati simtit nimic?
Stiu ca SM are un debut in mod brutal sau insiduos.
Eu nu ma mai stresez acum pentru lucruri marunte si nici prieteni prea multi nu mai am. De cand le-am spus de boala mea au cam dat bir cu fugitii. Eu vorbesc de spital, de RMN ei vorbesc de masini, de ce mobile sa-si mai ia. Fiecare cu cel doare.
Va pup si mai vorbim.
Ingrid


- CARMEN Magda - 23-05-2006 08:36 PM

Ciao fetelor,
Ingrid, prieteni poate nu stiu ce inseamna aceasta boala, poate nu stiu ce inseaman un umar la nevoie , poate ca nu stiu ca trebuie sa fii linga celelalt de langa tine cand are nevoie de tine, cand este la necaz, dar e bine daca mti-au mai ramas macar cativa care iti sunt langa tine, e bine opentru ca aceia sunt prietenii tai.
Dumnezeu este singurul care ne poate vindeca, doar el , e bine sa ne rugam la el sa faca minune cu noi si sa ne vundece.
Eu sunt convinsa ca am SM , cica am "multiple ari" dintre care un de maxim un cm.. ce sa mai zic... n mai zic nimk
In legatura cu foromul trebuie sa zic ca dr, a zis ca nu ma opereaza, ca sunt cauze n din cauza carora eu am avut o pierdere de sarcina,... offf... su cand ma gandesc ca din cauza asta eu am plans atat de mult, am fost practic sub stare de soc.. cred ca asat a declansat boala.
Cred ca o sa ma arunc intr-un stup de albine..si cred ca o sa fac si acupunctura si masaj si dieta si ce sa mai fac sa nu ajung la orizontal?80% din pacienti cu sm mai veche de 10 ani stau la orizontala, citisem e pe undeva pe net.
Traiesc si eu cu curva aia de sperantza cu care traieste toata lumia.
Ada, de studiat nu prea studiez dar sunt studenta la drept si la jurnalism mai si lucrez ca jurnalist de 4 ani.
Cam atat de la Timisoara
Pe caldura asta cred ca o sa am un nou puseu, mi s-a amortit un pic mana.
Nu-i bine sa stam la cald.
Va iubesc si va pup,
Cu drarag
Carmen MAGDA
sanatate maxima !!


- ada - 25-05-2006 12:28 PM

Felicitari pentru atitudinea optimista in care ai abordat lupta proprie cu aceasta boala.Am convingerea si credintza ca Bunul Dumnezeu te va ajuta curand ,sa mergi.Te admir si te respect pentru fortza ta interioara.Si eu am fost paralizata de la gat in jos de aceasta nesuferita SM dar astazi sunt pe picioarele mele.Parerea mea (bazata pe experientza proprie)este ca un moral bun face mai mult decat orice medicament.Poate ne spui despre ce regim alimentar vorbesti si ce fel de tratament naturist,in ce a constat,unde l-ai facut,amanunte daca nu deranjez prea mult cu aceasta solicitare.Sanatate maxima si sa ne reauzim cu vesti bune si foarte bune
Ada


- Mar_ius - 29-05-2006 02:08 PM

Salut toata lumea de pe forum si va spun ca trebuie sa fim foarte optimisti, si sa ne inpacam cu gandul ca suntem bolnavi. Eu asa-m trecut peste boala. Mult succes persoanelor care acuma incep un tratament pentru sm.


- CARMEN Magda - 29-05-2006 04:40 PM

Buna Marius,
cum te simti? decati ani ai SM ? care e strea ta fizica?
Ce tratament faci?
Multa sanatate tuturor!
CArmen MAGDA


- Mar_ius - 29-05-2006 07:23 PM

Ceau Carmen.
- Am SM de 4 ani, starea mea fizica acuma este foarte ok.
- Fac tratament cu Betaferon, de aproape 3 ani.


- ada - 29-05-2006 10:54 PM

Salut si eu toate lumile de pe forum si reafirm cele spuse de Marius,aceptare si optimism.Sanatate maxima tuturor!
Ada


- CARMEN Magda - 30-05-2006 12:41 PM

Ciao!
Ma bucur ca sunteti acum bine , tot timpul sa fiti asa!
Eu daca o sa trebuiasca sa fac trataemente cu interferon sau alte cortizoane, decalar pe propria mea raspunde ca nu le fac!
Nu ati vazut ca Stanescu isi revine, a fost paralizat si acum isi revine pep zi ce trece,si asat nu datorita tratamentului cu interferon, Doamne ajuta.
Va pup si cred ca mai am putziun si tre sa ajung la psihiatru!
Cam atat de la mine pentru azi.
Va imbratzisez cu drag si vreau sa vad ca scrieti ca va simtztiti cu adevarat bine.
Asa sa dea bunul Dumnezu!
Carmen M


- ada - 30-05-2006 12:54 PM

Salutare Carmen Magda,sper sa ajungi la psihiatru doar ca sa schimbi impresii cu el asa la o cafea decofeinizata in calitate de prieteni nu in calitate de pacient.Eu sincer iti spun chiar ma simt bine Multumesc lui Dumnezeu pentru asta ,nu stiu ce sa zic ca ar fi contribuit majoritar la aceasta stare de bine tratamentul cu interferon,suplimentele nutritive,optimismul....in fine raman totusi la o convingere clara,BINELE vine din noi dar numai cu Credintza ferma in ajutorul lui DUMNEZEU.
Si eu te imbratisez cu mult drag si sa ne reuzim cu bine si f.bine.
Ada


- Ingrid - 30-05-2006 04:06 PM

Salut,
Este foarte bine ca sunteti optimisti si cred totusi ca starea voastra de sanatate se datoreaza in cea mai mare parte interferonului si intr-o mai mica masura suplimentelor nutritive, regimului alimentar etc..
Carmen cred totusi ca vei decide sa faci si tu tratamentul cu interferon. Referitor la ceea ce ai scris tu cred ca a fost o gluma ca nu vrei sa il faci( un fel de hai sa fac haz de necaz!) .Eu una cand citesc mesajele tale zambesc pentru ca esti foarte directa. Si eu sunt tot asa.Totusi cred ca tratamentul cu interferon, momentan, este singura solutie.
Intrebarea este ce se intampla dupa ce se face acest tratament? Din cate am inteles de la Marius se face tratamentul cu interferon pe o perioada de 5 sau 6 ani. Si dupa aceea ce se intampla? Se continua tratamentul cu interferon sau ce?
Ada poate tu ne lamuresti.
Ideea cu psihiatrul nu este rea. Cred ca si mie imi trebuie un psihiatru. Ieri am fost la neurologul meu din orasul in care locuiesc, iar dupa ce am plecat de acolo chiar as fi avut nevoie de un psihiatru. Ideea este ca de fapt nici un psihiatru nu poate rezolva suferinta din noi ci numai daca s-ar descoperi un tratament pentru SM.Atunci Carmen sa sti ca ti-ai reveni. Si nu numai tu, ci toti cei care sunt suferinzi.
Momentan si acest interferon este o salvare dar pentru cat timp?
Iar cu speranta curva necurva traiesc si eu cu ea,nu-i asa Carmen?

Ingrid


- Mar_ius - 30-05-2006 04:31 PM

Salut
Referitor la intrebarea voastra: cat timp fac tratament, si ce se-va intanmpla cu mine, dupa oprirea tratamentului. Am intrebat doctorii de la TG-Mures, cat tinmp se face betaferon , si m-i s-a spus ca s-ar putea sa fie pe viata. Pentru Carmen, daca gandesti asa, inseamna cu prea te intereseaza persoana ta.
Daca nu stiati, in acest moment in spitale-le din Romania, se face un experiment cu un medicament pentru SM, asa ca trebuie sa avem RABDARE.


- Mar_ius - 30-05-2006 04:45 PM

Carmen, pentru tine cel mai bine este sa vb. fata-n fata cu o persoana ce are SM, si care a trecut prin asa ceva.


- CARMEN Magda - 30-05-2006 10:40 PM

va salut,
Va spun sincer ca eu sunt convinsa ca sunt cu nervii la pamantcaci altfel eu nu inteleg de ce in ficare zi plang, plang de ,mila mea bineinteles, pentru ca stiu evolutzia acetei boli si cel mai tragic e ca stii ce te astepatpta si cum este sfarsitul, nasol, nashpa, aiurea, ce sa mai e GROAZNIC!!!!
ce se intampla cu interferonul..,pai dupa cativa ani de la administrare se instaleaza anticorpii si cred ca nu mai are efect.
nu stiu daca e adevarat dar o sa va spun o intamplare pe care am auzit-o si eu: cica merege bolnavul la dictor pentru o consultatie, dupa consultatie doctorul ii da o reteta si ii spune pacientului sa o ia dupa masa.Pacientul ce face, merge acasa se pune dupa masa si incepe sa manace din reteta ca asa a zis doctorul, si iaca asa sa facut omul sanatos!!cred ca mai bine ar fi foast sa fiu intarziata mental..decat sa trec prin chestia asta.
Va mai spun ceva, cred ca mai am un pic si devin insuportabila, ma enervez din orice.
MAI fetelor, sa stiti ca eu nu am auzit nimk de vaccin si cred ca daca imi fac sperante vor fi desarte,
si cu toate astea, ca sa nu demoralizez pe nimeni, sa stiti ca atat timp cat va exista viata pe pamant va fi si speranta, asta cu care traieste toata lumea
Va pup tare si apasat :-*
Carmen
INGRID, nu mi-ai spus cum te-ai simtzit!
Astept vesti de la voi,
Am primit 2 botzuri de propolis pe care trebuie sa le pun la macerat, cica ar fi bun,,, dar stii la ce e bun ? n-am putut sa nu iau propolisu, eu iau orice ce aud ca-i bun pentru sanatate, azi mi-am mai luat si coenzima Q 10 cu ulei de catina.Oricum rau nu fac!
mai zic una si am plecat, cica karma nu-i destinul, karma e cum recationezi la ceea ce ti se intampla, numai stiu unde am citit fraza asta.
V-AM PUPAT PE PORTOFEL
TOT EU


- ada - 30-05-2006 11:32 PM

Carmen Magda,lasa-i pe altzii sa spuna daca esti sau nu cu nervii la pamant.Eu personal am convingerea ferma ca nu esti cu ei la pamant,o persoana atat de spirituala ca tine nu cedeaza asa usor.Te-as contrazice nitzel atunci cand spui ca sti evolutzia bolii si anticipezi un sfarsit nashpa,aiurea,etc.,asa vedeam si eu initzial lucrurile (in special cand eram complet paralizata)chiar gandeam sa-mi rog prietenii si rudele sa-mi modifice locuintza in asa fel incat sa pot sa folosesc caruciorul mai lesne,dar am schimbat optica in gandurile mele ,am incetat plansul inlocuindu-l cu rugaciunea si am lucrat mult cu starea interioara pana am scos la iveala optimismul,visele ,planurile,creatoare si datatoare de viatza mai pe scurt am reinceput sa tzes planuri de viitor .Si multumesc lui Dumnezeu azi,merg,lucrez,invatz,e.t.c..Poate nu in ritmul de dinainte de SM dar intr-un ritm constructiv zic eu.
Te imbratisez cu mult drag si tuturor va doresc SANATATE MAXIMA
Ada


- CARMEN Magda - 31-05-2006 02:10 PM

Ada, sa stii ca atunci cand am zis ca devin insuportabila am gresit,defapt trebuia sa spun ca sunt insuportabila, sa stii ca cineva chiar mi-a spus: chiar vrei sa ajung ca tine,cu nervii la pamant? ce crezi ca inseamna asta?
Am data acum untelefon la fundatia dlui Petre Anca, o sa ma programez maine,
VA mai anuntz ce mai fac,
Oricum trebuie sa-mi schimb regimul de viata cat mai traiesc... dar vreau cat mai traiesc sa traiesc pe picioarele mele!
Va pup si va doresc sanatate tutoror.


- CARMEN Magda - 31-05-2006 02:40 PM

Ingrid?!?!!?
ce faci, unde esti???? Nu ne mai spui nimc despre tine?
Printesa ce face ?
Te pup si sanatate maxima la toti !


- Mar_ius - 31-05-2006 04:04 PM

Carmen, nu te mai gandi numai la RAU, daca gandesti asa, nu o sa-ti revi niciodata. Gandind numai asa, o sa te scufunzi in viata, ca o caramida aruncata intr-o apa


- CARMEN Magda - 31-05-2006 05:17 PM

multumes Marius pt sfarturi, dar cum pot sa gandesc pozitiv cand eu sunt ... si stiu ce devin,...oricum o sa fiu ca o caramida.
Sanatate maxima! (ce fain suna)
Carmen


- Ingrid - 31-05-2006 06:03 PM

Salut,
Carmen pot sa-ti spun ca in privinta moralului suntem pe aceeasi lungime de unda.
Eu am fost la neurologul meu. Cand mi-a verificat reflexul acela Babinski( care mie imi iese pozitiv de un an) abia mai simteam chestia aia cu care iti face pe talpa dar sa mai am si reflex.
Reflexele mele abdominale pana acum erau mai slabe dar acum mi-a spus ca sunt absente. In chimb celelalte reflexe le am prea vii. De vazut cred ca am ramas cu vederea asta de la un puseu de nu mi-a mai trecut nici pana acum. De furnicaturi nu mai zic nimic. Asta e! Astept sa treaca timpul sa fac al treilea RMN.
Dumnezeu trebuie sa-i dea omului o boala care sa o duca pe picioare si cand o fi sa nu mai fie sa cada din picioare si sa se duca, nu sa-i dea o boala care sa-i mai chinuie si pe ceilalti membrii ai familiei.
Carmen de unde stii ca dupa cativa ani de tratament cu interferon nu mai are nici asta efect?
Poate imi spui si mie cum dizolvi tu propolisul. Am si eu un borcanel de propolis si nu stiu cum sa-l fac. Parintii mei au patru stupi cu albine si am niste propolis. Cand mai merg pe acolo ar trebui sa ma mai las muscata de cate o albina poate o avea ceva efect( sau cum spunei tu :imi vine sa ma arunc intr-un stup- cred ca atunci as rezolva toate problemele)
Este greu sa trec de la extaz la agonie. Pana acum un an aveam planuri, care au fost la un mic pas sa se indeplineasca. Pentru asta ne mai trebuia sa fim si sanatosi.
Si eu am nevoie sa fac ceva schimbari in viata mea.
Poate ma lamuresti si pe mine cum e cu KARMA ca nu stiu cum sta treaba.

De vaccin nu am auzit nici eu nimic.
Stiu doar ca doctorul meu de familie are in evidenta o fata de 21 ani cu SM. mi-a spus ca este intr-o stare grava si nu vrea ca eu sa o cunosc ca sa nu ma sperie. Totusi eu vreau sa o cunosc. Ideea e ca ea face un tratament experimental pentru care a semnat(nu stiu despre ce tratament este vorba). Deci se fac tratamente experimentale. Nu stiu daca este vorba de ceva din afara sau se face numai la noi in tara. Sa speram ca este ceva din afara si ca aceste sau acest tratament experimental nu va mai fi experimental ci v-a fi bun in tratarea sau ameliorarea SM.

Ingrid


- Ingrid - 31-05-2006 06:17 PM

Salut,
Ada tu ce parere ai de tratamentul cu interferon? Crezi ca dupa cativa ani de administrare nu v- a mai avea acelasi efect? Ai citit ceva de genul asta?
Fetita mea creste si intreba " Vrei calumi?( capsuni); Vrei cilese?(cirese). Este frumos acum cand vorbeste.
Doamne ce bine ar fi daca as mai fi o data copil!( dar cu mintea de acum). Cred ca as avea un regim alimentar foarte bun, nu as mai fuma niciodata, nu m-as mai enerva niciodata, nu as mai avea nopti nedormite si cred ca nici nu as mai fi bolnava.
Va pup
Ingrid


- CARMEN Magda - 31-05-2006 07:10 PM

Ingrid,
eu una nu am cum sa lupt cu sm asta, nu suntem pe pozitii de egalitate, Sm  e ca un fel de Godzila si eu un fel de MIKEY MOUSE, cand imi da intepaturi in cap si amortezli mai pot eu sa ma ridic si sa-i fac ceva, nici numai vb ca poate sa enerveaza si mai da una  de nu pot sa o duc.
Cauta si tu pe google pe colonel Petre Anca, are o fundatie si spune ca mai trateaza boli grave cum e si Godzila noastra, trebuie sa te programezi, dar regimul e strict, numai harana vie, adica legume fructe netrecuute prin foc. N-am vb cu domnia lui , o sa vb maine, sper, trebuie sa ma progarmez la fundatia aia.
Trebuie sa nu te intoxici cu medicamente dein astea chimice, care la inceput iti fac bine si dupa aceea nu mai au nicoi un efect si iti mai intoxici si corpul  cu ele,
Eu ma duc, sa de-a Dzeu sa nu ma apuce mai tare, si sa ma lase sa ajung sa incep tratametul .
este un domn pe forum care spunea ca  din cauza medicamentelor a inceput sa-i cada parul, dantura si era la orizontal, nu putea sa se intoaraca de pe o parte pe alta si uite ca acum a inceput sa se poate pune singur in carut si sa se imbarece singur, mai face si oleacca de intapari cu albine dupa o metoda chinezeasca, deci  nu e metoda mea aia cu aruncarea in  stup.
PAPA SI TU CALUMI SI CILESE SI DIN ASTEA,
s ADE-A DUMNEZUEU SA O VINDECE PE FATA AIA DE 2 DE ANI,  IA GRIHJA DE PRINTZESYCA TA , E BINE CA AI UN INGERAS LANGA TINE!
maI FUMEZI ????FII TARE SI NU TE LASA IN FATA BOLII CA AI COPILAS DE CRESCUT SI DE EDUCAT SI DE PUS LA CASA LUI, DE CRESCUT NEPOTI!

CARMEN Magda


- CARMEN Magda - 31-05-2006 07:12 PM

cred CA DESPRE karma POATE SA-TI VB TOT ADA PT CA EA SCRED CA STIE MAI MULTE DECAT MINE,


- ada - 31-05-2006 11:16 PM

Salutare tuturor,mi-a fost tare dor sa vin acasa si sa citesc postarile voastre.Aseara am trimis si eu 2 mesaje dar numai unul a aparut pe forum ,nu stiu ce sa zic ca eu am probleme cu computerul si reteaua de net.In fine ,va mai spun acum ce am vrut sa cititzi de aseara.Eu fac interferon de aproape 2 ani,initzial mi s-a spus ca voi face acest tratament timp de 1 an de zile sau mai putzin in cazul in care se va constata din analize(trigliceride,transaminaze si altele)ca tratamentul nu-mi face bine.Apoi am vizionat intamplator o emisiune despre SM pe postul RealitateaTV,in acea emisiune a fost invitata dna,dr.neurolog Mandruta (sotzia cunoscutului prezentator tv Lucian Mandrutza)care a precizat ca in SM singurul tratament prin care s a obtzinut incetinirea progresiei acestei maladii iar in unele cazuri chiar stoparea evolutiei, este tratamentul imunomodulator (trat.cu interferon)si acest tratament este bine sa se faca pe o durata de minim 2 ani sau chiar intreaga viatza.Pe acest subiect(durata tratamentului cu interferon)am mai aflat acelasi raspuns ca cel citat mai sus de la persoane cu vechime de peste 6-8 ani in SM.Mi-au povestit ca au facut tratament cu interferon (in diversele lui forme cunoscute Copaxone,Rebif,Avonex,Betaferon) pe durata de ai mult de 8 ani alternand perioadele de tratament si cu perioade de pauze.Nu stiu ce sa zic despre o presupusa ineficacitate in timp a acestui tratament si personal incerc sa nu ma gandesc in acest fel la el,eu incerc sa-mi implementez in subconstient doar idei pozitive(si-mi cer scuze daca va stresez cu aceasta teorie,dar sincer va spun ca la mine functzioneaza teoria asta pozitivista).Cam atat stiu despre subiectul acesta deschis de Ingrid .Va imbratisez cu drag si va doresc tuturor sanatate maxima si grabnica.


- ada - 01-06-2006 12:26 AM

Carmen Magda,ma bucur sa aud ca te-ai programat la o consultatzie la dl.Petre Anca sper sa ajungi sa-i citesti si cartea despre care va vorbeam intr-o alta postare pe care am facut-o pe forum in urma cu ceva timp.Sper ca lectura acestei carti si intalnirea cu acest discipol a lui Valeriu Popa sa te faca mai increzatoare si mai plina de sperantza,deasemenea iti doresc multa vointza ptr cazul in care te vei hotara sa urmezi tratamentul pe care ti-l va propune dl.Petre Anca.Recunosc ca personal anumite slabiciuni ma impiedica sa-mi impun intr-atat de mult vointza incat sa ma hranesc numai cu hrana vie desi sper din tot sufletul ca voi reusi intr-o buna zi sa fac si acest lucru.
Succes si sanatate maxima.


- CARMEN Magda - 01-06-2006 12:28 PM

Ingrid, am uitat sa iti spun de propolis,deci din ce am auzit si eu se face asa: una bucata de propolis, mai mica de cat o minge de tenis, se da prin razatoare si in 0,500 l se pune in alcool dublu rafinat, la macerat, 10 ziele, la loc intunecos si se mai rastoarna sticla din cand in cand.
Dupa 10 zie incepe tratamentul : prima zi 5 pic. a 2-a zi 6 pic..... pana lajungi la 30 de pic pe zi, dupa aceea reduce pic. progresiv;29, 28, 27,.... pana la 5. Cam atat
Sanatate!
astept sa imi spui ce mai faci si cum te simti
Carmen


- CARMEN Magda - 01-06-2006 12:32 PM

Ada, multzumesc pentru incurajari, vreau sa incep tratamenul asta naturist, cred ca imi face bine, nu vreau sa-mi intoxic corpul cu chimicale.
sa stii ca inca amai sunt in puseu, mai am "curent".
Te pup si iti doresc sanatate
Carmen


- ada - 01-06-2006 06:12 PM

HRISTOS S-A INALTZAT!
LA MULTI ANI DE 1 IUNIE
Salutare dragilor am intrat sa va spun ca pe site-ul http://www.smromania.ro ,in sectiunea Publicatii,Biblioteca SM literele A-Z a fost postata o brosura - manual de kinetoterapie!Eu zic ca-i f.interesanta si utila.
Tuturor va urez sanatate si voie buna .


- Ingrid - 01-06-2006 10:14 PM

ADEVARAT S-A INALTAT!
Sa dea Dumnezeu la toata lumea multa sanatate.


- catalin - 09-06-2006 04:23 PM

salut

sunt nou pe forum. acum trei luni am fost diagnosticat cu SM. totul a inceput cu diplopie. Initial am fost suspect de nevrita optica insa dupa efectuarea RMN mi s-a pus diagnosticul de SM.
de trei luni fac tratament cu betaferon. deocamdata ma simt foarte bine. analizele sangelui pe care le fac din 3 in trei luni mi-au aratat ceva modificari la ficat. Vreau sa intreb daca si daca dintre voi ati avut astfel de probleme si ce ati facut?


va multumesc,

catalin
bucuresti


- CARMEN Magda - 12-06-2006 01:24 PM

Salut Catalin,
LA mine a inceput in martie, anul acesta, primele simptome,
nu fac nici un tratament, sunt doar pe naturiste, nici nu o sa fac, imi pare rau ca acum ai probleme la ficat.
Si eu sunt ca si tine , la debut, dar pe mine nu ma pus pe nici un tratament deoarece a zis ca in Romania trebuie sa ai doua pusee ca sa poti intra in program, nu am intrat nici nu vreau si nici la dr. nu am fost. Ii multumesc Domnului Isus Hristos ca sunt bine.
Sanatate maxima1
Carmen MAGDA


- CARMEN Magda - 12-06-2006 01:27 PM

Buna Stanescu, Ada, Ingrid,
Eu sunt mai bine, cum sunteti voi, Stanaescu care e starea ta de sanatate, ce mai fac albinele? Big Grin
VA pup si mai vb.
Sanatate la toata lumia!


- Ingrid - 12-06-2006 04:55 PM

Buna Carmen MAGDA

As vrea sa-ti spun ca am gasit un produs naturist care se numeste IMUNOSTIM.Este un produs natural din USA. Este pentru intarirea sistemului imunitar.De fapt pe aici a fost cam greu de gasit pentru ca nu il gaseam la farmaciile din apropierea mea. Nu mi l-a recomandat nici un doctor. Mi l-a recomandat sora mea care este farmacist. Nu stiu cat este de bun dar cred ca rau nu imi face. Trebuie sa-mi intaresc sistemul imunitar.In lipsa de interferon nu pot sa ma tratez decat asa.
Ma bucur sa aud ca esti bine. Chiar ma gandeam ca nu ai mai dat nici un mesaj pe forum. Sa-ti ajute DUMNEZEU sa te simti bine si tie si la toata lumea.
Ingrid


- CARMEN Magda - 13-06-2006 03:30 PM

Ciao Ingrid,
Sa fii sanatoasa, si eu am luat imunostim are calitatiile interferonului, parca asa scria pe verso, oricum, vreau sa multumesc lui Dumnzeu ca ma simt bine, slavit sa fie numele Lui!Vreau sa iti mai zic ceva: i-am promis lui Dumnezeu ca daca ma vindec o sa ma pocaiesc, asa o sa fac, numai El ne poate vindeca..
Acum sunt bine dar sa-ti zic cu ce ma doftoricesc, iau ulei de in, cate 7 linguri pe zi timp de 21 de zile, am inceput pe data de 3 iunie, si mai beau cate un ceai de coada soricelului, unul dimineata si unul seara, inafara de asat am capsule de omega 3 si coenzima q 10 in ulei de catina, m-am lasat de fumat si am pus 10 kg.
Ma rog la Dumnezeu ca toti aceia ce sunt bolnavi Dumnezeu sa-i aiba in paza si sa-i vindece.
Vreau sa fac incep cu albinele, insa femeia aceia care se afla in judetul meu nu este in tara.
Ingrid, sfatul meu este sa cauti o metoda de tratament in care sa crezi.
Mai vreau sa incep sa mananc numai hrana vie, cauta pe internet "colonel Petre Anca", o sa gasesti marturii d' ale suferinzilor.
P.S dupa tratamentul cu ulei de in in care iei timp de 21 de zlie 7 linguri de ulei, dupa cele 21 de zile se iau 2 linguri pe zi pentru intretinere.
Ce mai face printesa ta ?
P.S 2 Iti dai seama ce frumosa o sa fiu cand o sa incep sa mananc hrana vie, si mai ales ce sanatoasa...
ca sa-ti imaginezi cum arat iti spun parametrii'
90-60-90... bineinteles ca nu-i adevarat.
Am 1 60 si azi m-am cantaritSad( am 78 de kg :yes:
Toate cele bune si multa sanatate tuturor si mai ales acelora de care au nevoie!!!
P.S3 nu mi-ai spus cum te mai simti, cu lux de amanunte
Cu drag, Carmen


- roxana nicoleta - 13-06-2006 03:43 PM

buna eu am in martie am avut primele simtome ,am facut RMN cerebral si la coloana diag find diemilinizare activa nu stiu cite puncte sunt dar sunt si cerebral si la midolo, cum eu in doua sapt trebuia sa plec in italia nici macar in spital nu am ramas sa fac cortizon ,am facut tratam in italia pe cale orala ,aici in italia ma vazut un neuro si a zis ca dupa RMN e SM dar trebuie sa fac punctia lombara pt a fi sigura si o analiza de singe, le voi face dar mai astept un pic.simtome ce mai am sunt oboselala ,si cite odata un pic de durei musculare dar eu merg mai departe fara sa mai gindesc la boala fac sport ,ma pregatesc pt casatorie viata merge mi departe ,ma am obisnuit sa am zile bune dar si rele pt ca trec.eu acum iau omega3/6 care ma ajuta mult ,vitamine de la centru sportiv ,plus aloe vera ,mai iau si saruri minerale pt ca fac si sport ,alerg de treo ori pe sapatamina acum ,cel mai mult ma ajutat omega si ma ajuta mult.sfatu meu pt toti e sa fiti mereu optimisti si sa mergeti mereu mai departe sa sa invingeti mereu lupta cu aceasta boala.DUMNEZEU sa va ajute Smile


- Ingrid - 13-06-2006 04:01 PM

Buna Roxana,
As vrea sa te intreb la ce doctor ai fost aici in Romania si unde ti-ai facut RMN. Nu stiu de ce dar povestea ta imi suna cunoscuta.
Ingrid


- Ingrid - 13-06-2006 05:53 PM

Buna Carmen,
O sa iau si eu ulei de in. Sunt in stare sa inghit orice aud ca este bun pentru scleroza. Cred ca si putina hrana vie nu ar strica, dar o sa ma informez mai bine si dupa aceea ma hotarasc.
Eu as opta mai bine pentru albinute dar sper sa nu fiu alergica la intepaturile lor.
De furnicaturi nu am scapat. Ma furnica mai rau mai ales zona gatului- zona cervicala dar ele sunt prezente si in bratul drept, in bratul stang, pe spate si pe burta. Simt intepaturi in zone aleatorii( uneori in picioare, alteori pe burta....) . Nu imi mai simt atat de rau piciorul stang amortit, mai simt amortite numai degetele de la piciorul stang. Ma stringe putin mana stanga.
Durerile de tip arsura si junghi ce le aveam pe partea stanga a spatelui cam in zona omoplatului si a plamanului stang sau ameliorat dar nu prea mult. Nu prea inteleg cum e cu "curentul " ca eu am o senzatie de curent in piciorul stang. Am si ceva probleme cu vederea( vad niste pete intunecate in centrul ochilor dar mai ales la stangul iar cand sunt foarte obosita mi se incetoseaza ochiul stang dar isi revine.
Sa stii ca daca mananci numai hrana vie chiar o sa fii frumoasa. O sa faci un ten super. Si o silueta super.
Si eu m-am mai ingrasat dar asta sa fie problema.
Printesa mea creste si ma uimeste pe zi ce trece de cat de multe stie. Nu ca este fetita mea dar e frumoasa de parca e facuta in ciuda. Cand eram insarcinata am avut niste probleme cu niste babe pe la serviciu( probleme de genul generatia tanara si varsta a treia - din cauza generatiei tinere iesea generatia batrana la pensie- la limita de varsta) Nu neaparat cu mine aveau ele ce aveau dar chiar daca eu eram insarcinata intram si eu in oala cu celelalte care nu erau insarcinate. Cand am fost insarcinata am fost mai sensibila si imi venea sa plang din orice(ceva ce nu era pana atunci).
Dupa aceea am inceput sa plang din cauza bolii. Si acum mai plang de multe ori tot din cauza ca sunt bolnava si ma intreb de ce trebuia sa mi se intample mie.
Toate cele bune . Te pup si mai vorbim.
Ingrid


- Ingrid - 13-06-2006 06:01 PM

Pana ma hotarasc daca trec sau nu pe hrana vie sa stii ca mananc foarte mult peste. Nu mai mananc carne de porc. Mananc multe zarzavaturi, fructe, branza si mult peste.
Sper ca dulciurile nu au efect negativ, ca de carne ma pot lasa dar cu dulciurile e mai grau. Mor dupa prajituri.
Te pup
Ingrid


- roxana nicoleta - 13-06-2006 10:59 PM

buna ingrid eu am fost la spital de boli cerebro vascualre prof nu mi amintesc numele e linga spitalu bagdasar in bucuresti la dr Tuta Sorin un medic exceptional el ma trimes sa fac RMN la PRO LIFE o clinica particulara.cumva tu ai fost internata acolo?


- ada - 13-06-2006 11:12 PM

Salutari la toata lumea si Dumnezeu sa va binecuvanteze,
La multzi ani Carmen pentru ziua ta de nastere si bine ai revenit acasa din pelegrinarile tale.Ma bucur din tot sufletul ca te simtzi bine si sunt convinsa ca ai ales calea cea mai inteleapta in ceea ce te priveste.Citind cele scrise de tine m-am hotarat sa incep si eu sticla de ulei de in pe care o tin in camara de cateva luni.
Ingrid sa sti ca subscriu la sfatul pe care ti la dat Carmen si anume sa cauti o metoda de tratament in care sa crezi.
EU PERSONAL CONSIDER CA ESTE FOARTE IMPORTANT SA CREDEM SI SA CEREM AJUTOR LA DUMNEZEU SA NE INTAREASCA IN CREDINTA.
Catalin,referitor la postarea ta cu privire la ,modificarile la ficat in urma tratamentului cu interferon pot sa-ti spun ca in scopul mentinerii intr-o stare buna a ficatului ,eu fac de 2 ori pe an o cura (de trei saptamani)cu suc de orz verde,produs ce se gaseste la plafar in forma de pulbere din care se obtine sucul de orz verde .Ca sa ajut ficatul sa proceseze interferonul am redus la maximum consumul de carne de porc si vita si am introdus in alimentatie mai multe legume ,fructe verzi si peste .
Si dragilor nu uitatzi faceti cat de multa miscare va permite organismul fara sa depuneti eforturi fantastice .(gimnastica,kinetoterapie....)
Cam atat am avut a va spune astazi
Va imbratisez cu drag si va doresc sanatate maxima
Ada


- Ingrid - 14-06-2006 09:31 AM

Buna Roxana,
Eu am fost internata la Spitalul de Boli Cerebro-Vasculare Bucuresti. Eram pe holul spitalului in pijamale si nu mai stiu cum am intrat in vorba cu o tanara blonda foarte draguta care ma intreba unde mi-am facut RMN si cat m-a costat. Imi amintesc ca il astepta pe dr. Tuta Sorin care nu era disponibil decat dupa ora doua. Acea tanara mi-a spus ca este colega de serviciu cu sotia doctorului. Stiu ca ea mi-a spus de centrul Euromedica dar ca acolo este foarte scump. Eu i-am spus ca am facut RMN la PRO LIFE si ca asistentul doctorului Tuta mi-a spus ca acolo este un RMN performant si este mult peste ce au ei acolo. Imi amintesc ca imi spunea ca trebuie sa plece in Italia ca vrea sa se casatoreasca si ca nu prea are timp dar pentru ca nu se simte bine("am furnici in picioare") ar vrea sa-si faca un RMN. Stiu ca am rugat-o dupa ce termina sa imi spuna si mie unde i-a zis dr. Tuta sa-si faca RMN. Nu stiu daca ai mai avut timp sa vii in salonul in care eram eu internata dar eu nu eram acolo pentru ca eram la oftalmologie unde am stat la o coada imensa.
Imi amintesc ca mi-a spus ca are 20 sau 21 ani si ca era foarte draguta si slabuta.
Eu cand am citit mesajul tau m-am dus cu gandul acolo si cred ca despre tine este vorba pentru ca coincidea luna in care ai fost tu acolo cu luna in care am fost eu internata. Plus povestea cu Italia. Atunci aveai un moral ridicat si imi spuneai ca se face in boala asta interferon si ca totul o sa fie bine.
Iti amintesti de mine?
Ingrid


- Ingrid - 14-06-2006 10:20 AM

Roxana,
Daca esti tu te rog mult sa-mi spui si mie ce a zis dr. Tuta cand ti-a vazut RMN.
Diagnosticul de demielinizare activa l-ai primit de la RMN sau de la dr. Tuta?
Ai scris mai sus ca ti-au iesit leziuni si cerebral si la midolo(nu cunosc termenul midolo).Nu ti-a spus dr. Tuta cate leziuni ai? Primul meu RMN mi l-a citit Tuta si mi-a spus ca am patru leziuni.
Cand iti faci punctia lombara? Ti-o faci in Italia sau in Romania? Nu stiu ca si eu as vrea sa mi-o fac dar nu stiu de ce doctorii se cam dau la o parte sa faca punctia asta.
Imi place de tine ca ai un moral foarte ridicat. Asta este foarte bine.
Ingrid


- roxana nicoleta - 14-06-2006 11:09 AM

buna ingrid cu mine ai vorbit la spital dar au am 27 ani fac acum 28 ani ai uitat ,dr Tuta mi a citit RMN midolo am scris in italiana mia facut RMN si la coloana dar nu la toata si cu substanta de contrast la mine a fost nevoie, ciudat eu am uitat sa intreb cite puncte sunt in total dar sau vazut zone si cerebral si la coloana .acum sunt in italia si aici ma vazut un neurolog mi a zis ca sar putea sa fie SM dupa RMN dar pt siguranta trbuie sa fac punctia lombara si o analiza de singe pt ca fara punctie nu exista siguranta ,pt ca exista si alte boli care se aseamana cu SM .eu ingrid dupa RMN trebuia sa stau 4 zile in spital dar nu puteam pt ca plecam in italia ,am facut tratament cu medrol acasa pe cale orala ,cortizonu mi a dat insomnie e un medicament cu multe contraindicati si se elimina si dupa cel termini mai are efecte pt un timp dar nu efecte bune.eu acum astept sa ma casatoresc ca sa mi pot face asig de sanatate aici ca sa fac punctia sa fiu sigura de diag.eu acum ma simpt bine pot zice iau mereu omega 3/6 ,vitamine,aloe vera. cum te simti?astept sa vorbim.te pup


- Ingrid - 14-06-2006 10:45 PM

Ciao Carmen,
La multi ani de ziua ta de nastere. Sa-ti ajute Dumnezeu sa fii sanatoasa si sa faci un bebe frumos.
Ingrid


- CARMEN Magda - 16-06-2006 05:23 PM

Big Grin Ciao fetelor!!!!
Va multumesc pentru urarile de la multi ani si cu aceasta ocazie cred ca nu o sa va suparati sa va urez, din tot sufletul, tot binele din lume!!!
Bravo Ada ca ai inceput cura cu in, vei vedea ca o sa-ti fie mai bine, ai vazut ca pe sticla scrie bogat in omega 3, asta e de bine!
Azi am mai inghitit inca o portie.
Ieri mi-am mai luat si niste polen, Smile) care pe langa vitaminele pe care le contine imi mai reda si pofta de mancare ;D ;D :-, si paraca nu ar fi fost de ajuns mi-am mai luat si un borcan de miere, dar nu m-am ingrasat mult, numai 10 kg de la inceputul anului, lumea zice ca o duc bine...
Lasa ca va arat eu voua ca se poate trata si cu naturiste, am sunat la dr. Cristin Aosan, de la Semlacul Mare, cea cu apiterapia, nu-i in tara, vine miercuri, ii cam scump dupa parerea mea:1.800.000 lei consultatia + 50 de euro intepatul, cica atat costa veninul, nu are direct del la sursa. Sa vedem de miercuri ce o fi, sanatatea ii mai importanta decat banii, ar trebui sa merg si pe la Petre Anca cered ca alimentatia are un rol esential. Va imaginatzi ce frumoase si sanatoase vom fi dupa ce trecem pe hrana vie, si ce siluete vom avea,,, Claudia Shifer va fi minciuna pe langa noi, cu cine ma intalnesc la Valeni de Munte, jud. Prahova, la Petre Anca, hadeti fetelor, nu mai stati , trebuie sa luptam!!
Timpul e dusmanul nostru, deci.. vine cineva? Hadeti poate asa ma mobilizez si eu, cine imi da si mie un imbold??
tuturor va doresc sa aveti sanatae si viata lunga pe pamant!!
Dumnezeu sa fie cu noi!!
Va pupicesc !!!
Cu drag,
Carmen Magda :yes:
Deci unde ne intalnim ?!


- bbarlea - 21-06-2006 06:18 PM

Buna tuturor,

Ma numesc Bogdan, am 28 de ani si sunt din Targu Mures.
Doresc sa va povestesc prin ce am trecut si poate vine cineva cu un sfat util.
Ultimele luni pentru mine au fost un calvar. Totul a inceput in martie cand in decurs de cateva zile am inceput sa am diplopie cand priveam in jos, diplopia se agrava cu fiecare zi si dupa cateva zile m-am dus la un medic oftalmolog. La investigatia de fund de ochi s-a vazut edem papilar cu hemoragie in flacara (o inflamatie puternica a nervului optic, specifica in tumori si encefalite). Am fost trimis sa imi fac un tomograf pt ca in 50% din cazuri, vedera dubla si edemul papilar este cauzata de o tumoare. La tomograf totul a iesit ok, nici urma de tumoare.
Am fost trimis la clinica de infectioase cu diagnosticul encefalita bacteriana de origine necunoscuta. De la infectioase s-a cerut o rezonanta magnetica (RMN) cu substanta de contrast. La RMN s-a vazut lichid in mastoida stanga, posibila o otita netratata. De la infectioase am fost transferat la ORL cu diagnosticul hipertensiune intracraniaia cu posibila origine otica. Aici mi-au dat antibiotice si dexametazon si m-au operat la urechea stanga la 3 zile dupa internare. Vederea dubla s-a ameliorat progresiv in decurs de 3, 4 zile (probabil de la dexametazon) si am fost externat la o saptamana dupa operatie.
Dupa doua saptamani de la externare iara au inceput semne de vedere dubla. M-am dus la neurologie, unde am primit un tratament cu dexametazon Smile (felul principal) de 2 ori pe zi si mi s-a spus ca neurologic nu am nimic si ca probabil e o nevrita optica. Dupa ce am inceput al doilea tratament cu dexa, am avut stari foarte nasoale: insomnie, senzatie de presiune si furnicaturi in ceafa, vedere incetosata. Crezand ca starile sunt de la boala m-am dus iara la infectioase, de unde m-au trimis la RMN, la RMN surpriza, zonele de lichid din mastoida aratau exact la fel ca inainte de operatie, mi-au zis ca am facut tromboflebita cerebrala din cauza ca la prima operatie nu s-a curatat lichidul cum trebuie, i-am spus doctoritei de la infectioase ca vorbeste prostii, cu tromboflebita cerebrala nu prea mai functionezi, nu am facut medicina dar e de ajuns sa citesc simptomele ca sa imi dau seama ce am si ce nu. Iar am fost transferat la ORL si iara operat, dar mi s-a spus ca nu s-a mai gasit lichid in osul mastoidian.
Interesandu-ma de un neurolog bun am aflat de un doctor la o clinica particulara si m-am programat pt o consultatie. El mi-a cerut sa fac un angio-rmn pt a elimina un anevrism sau ruptura de anevrism. Am facut si angio-rmn, nici vorba de anevrism insa se vad cateva pete albe pe creier, si parca nu eram destul de batut de soarta m-am ales si cu suspiciunea de scleroza multipla. Deocamdata sunt sub observatie, nu mi s-au cerut analize suplimentare, probabil se asteapta medicii sa imi paralizeze o mana sau un picior ca sa poate fi siguri ca nu gresesc diagnosticul Smile
Deci pana acum am avut urmatoarele diagnostice encefalita, tromboflebita cerebrala, hipertensiune intracraniana cu origine otica si nevrita optica am primit tratament pentru toate la un loc si m-am si vindecat, traiasca medicina din Romania Smile
Deci totul e in coada de peste asa cum e din martie incoace. Deocamdata ma simt ok, mai am usoara diplopie la vederea laterala sus stanga si dreapta dar nu ma deranjeaza. Staza papilara s-a redus aproape de tot.
Acum am inceput sa simt usoare furnicaturi in obrazul drept si in mana dreapta.
Va rog sa imi spuneti ce alte investigatii as mai putea sa fac pentru o diagnosticare corecta, sa stiu clar daca e sau nu SM.
Toate cele bune, Bogdan

p.s. Am facut si potentiale evocate vizuale, mi-a iesit 95 ms pt ochiul stang si 115 ms pt ochiul drept. mi s-a spus ca nu e ingrijorator, asa o fi...


- roxana nicoleta - 22-06-2006 12:30 PM

buna bogdan eu ma numesc roxana pt a sti daca ai SM trebuie sa faci si punctia lombara si o alta analiza de singe care se face la institut la cantacuzino ,pt ca sunt si alte boli care se aseamana cu SM .eu sunt in italia aici pt a fi siguri de diagnostic se face punctie lombara ,si acea analiza de singe,la noi am inteles ca nu toti dr vb de punctia lombara ,dar mie mi au vorbit si la fundeni de punctie si la alt spital ,si se mai fac si niste probe pt a vedea in ce stadiu e nervu optic PEV ,probe audidive si de vedere le am facut la bagdasar in buc eu sunt din buc.iti urez sanatate.astept vesti de la tine Smile


- Ingrid - 22-06-2006 03:55 PM

Buna Bogdan,
Sunt Ingrid. La mine primele simptome au aparut sub forma unor furnicaturi in zona cervicala si a spatelui care mai tarziu au inceput sa se extinda si in maini si picioare.Apoi am inceput sa vad incetosat si in urma multor controale la mai multi neurologi am ajuns in Bucuresti unde mi-am facut un RMN. La RMN mi-au iesit leziuni de demielinizare dar doctorul mi-a spus ca poate sa fie vorba si despre o alta boala. Dupa 2 luni din cauza faptului ca au aparut si alte simptome(amorteala puternica a piciorului stang, durere ca un junghi si ca o arsura in zona omoplatilor) , pete intunecate in centrul ochilor,am decis sa fac un al doilea RMN. In urma acestuia am fost internata la Spitalul de Boli Cerebro- Vasculare Bucuresti. De acolo am plecat cu "diagnosticul" - boala demielinizanta in observatie.Doctorul la care am fost eu internata mi-a spus ca el crede ca este un debut de SM dar sa revin dupa sase luni cu un alt RMN pentru a vedea evolutia.
Asa am citit si eu intr-o carte de specialitate ca pentru a vedea exact daca este vorba despre SM trebuie facuta punctia lombara. Cu toate acestea mie nu mi-au facut punctia in spital si nu numai mie. Erau 2 persoane internate cu mine care aveau diagnosticul de SM carora nu li se facuse punctia.
Daca iti faci punctia astept un mesaj pe forum cu rezultatul tau.
Ingrid


- Mar_ius - 22-06-2006 04:11 PM

[b][b] Salut Bogdan, eu am SM de aproape 4 ani, la mine SM s-a descoperit dupa un RMN. Probleme cu ochii am avut si eu la incepu.Adica vedere dubla, in ceata,nu puteam sa ma uit sus-jos. Sper sa nu ai SM.[/b][/b]


- bbarlea - 22-06-2006 04:48 PM

Buna, va multumesc pentru sfaturi si incurajari. Deocamdata mi-am trimis toate analizele si RMN-urile la o cunostinta in Ungaria care e medic generalist si va discuta acolo cu un specialist in scleroza multipla, astept vesti de la el si va tin la curent.
Bogdan


- bbarlea - 22-06-2006 05:36 PM

Salut Marius, sper si eu sa fie vorba de altceva dar dupa cum se manifesta eu sunt 80, 90% sigur ca e SM. Tu urmezi ceva tratament? Cum te simti acum?
Bogdan


- bbarlea - 25-06-2006 01:27 AM

Buna, am primit raspunsul din Ungaria. Se poate spune fara dubii ca este un proces demielizant. Nu se poate da diagnosticul de scleroza inca pt ca am avut doar un puseu. Mi-au numarat douazeci si ceva de leziuni dintre care doua peste 1 cm. Viitorul suna bine... Cred ca rmn-urile astea le-au vazut cel putin 10 medici daca nu mai mult, a trebuit sa apelez la un specialist dintr-o tara straina ca sa am si eu un raspuns clar. Ce naiba e cu sistemul nostru sanitar?


- roxana nicoleta - 26-06-2006 02:22 PM

buna bogdan cind rezultatu este proces demielizant activ iesti suspect de SM si pt confirmare se mai fac investigati si se asteapta alt puseu ,se poate sa nu mai faci altu sau sa-l mai faci peste cinci sau zece ani asa mi au explicat aici in italia, si aici e o birocratie mai rau ca la noi,in unele tari din europa am inteles ca dupa primu puseu se incep tratam .nu ai avut nevoie sa faci cortizon?in general dupa un puseu se face cortizon.


- bbarlea - 26-06-2006 07:51 PM

Buna Roxana, am luat cortizon de mi-a iesit pe urechi ca nu se retragea destul de rapid staza papilara (inflamatia nervului optic). Medicul din Ungaria mi-a transmis sa nu mai iau cortizon ca oricum are efect doar in primele zile, acolo se da doar 3 zile dupa care se reduce treptat. Mie mi-au dat aici vreo 20 de zile de incepusem sa ma ingras ca un porc, aveam tulburari de somn, iritabilitate etc. Asa mi s-a spus si mie ca urmatorul puseu poate fi peste o luna sau peste 30 de ani sau deloc. Nu mi s-au cerut alte analize pentru ca au spus ca rmn-ul e relevant.


- roxana nicoleta - 27-06-2006 12:22 PM

bogdan si eu am luat cortizon ,eu trebuia sa ma internez in spital sa fac 4 zile cortizon dar cum in aceea sapt plecam in italia am luat pastile un dr mi a zis sa iau 10 zile cit doua dar ma am dus la alt pital cu matusa mea care e asist la un alt dr acela mia marit doza mi a zis sa iau cite 4 tb de medrol 16mg o luna,dar cum sintomele se ameliorau nu doream sa mai iau dar am inceput sa iau cind a insistat si logodnicu meu si dr a zis ca este bine ,am venit in italia am mers si aici la un neuro ia-m zis ca iau medrol cite si lui mi a scazut doza in sensu ca mi a zis sa iau cite 4 duar 2 sapt dupa reduc progresiv urmatoarele 2 sapt si eu ca si tine am efecte de la cortizon eu am mincat dupa si sarat pt ca dr de aici din italia mi a zis ca la doza asta pot, dar ma am umflat la fata eram ca un purcel dar numai la fata,pofta de mincare, eu aveam 45 de kg pt ca slabisem in romania 6 kg am luat aici trei dar eu trebuia sa ma ingras dar problema cea mai mare a mea cu cortizonu a fost insomnia si starea de agitatie care mi-o dadea noaptea ,intr-o noapte a inceput sa mi tremure corpu de ma am speriat,luam cite un calmant asa mai dormeam si eu.efectele lui ramin si dupa cel termini un timp indelungat dar e singura solutie in caz de pusee coritzonu offfffff.tu cum te mai simti acum?cum suporti caldura?eu aici in italia o suport rau ma dor toate de doua zile de cind e foarte cald ,picioarele,bratele toate oasele .


- bbarlea - 27-06-2006 01:21 PM

Buna Roxana, eu ma simt foarte bine acum. Daca nu as sti ca e proces demielizant as spune ca nu am nimic si sunt sanatos. Caldura imi da o usoara stare de somnolenta dar o pot controla cu dusuri racoroase. Dau drumul la apa la o temperatura cat sa pot intra sub dus apoi reduc treptat temperatura apei. Daca faci asa ai sa vezi ca poti suporta un dus destul de rece.
Aici gasesti cateva sfaturi utile, printre care si cum sa controlezi simptomele in zilele calduroase: http://www.nationalmssociety.org/You%20CAN!.asp mai exact aici: http://www.nationalmssociety.org/youcan_beatheat.asp


- roxana nicoleta - 27-06-2006 03:21 PM

bogdan pina cu caldura si eu ma simteam bine de multe ori ca si tine daca nu stiam de acest proces spuneam ca nu am nimic ,eu stiu acum problema e caldura si mai ales aici mie imi e putin mai greu pt ca e umiditate mare ,e caldura umeda.la anu imi pun aer conditionat ,acum ca tine rezolv cu dusuri si am un ventilator,bine ca pot dormi noaptea dar ma trezesc un pic obosita.sper sa ne mai auzim vreau sa stiu in continuare cum te simti.eu aici in italia am un forum special pt cei cu SM unde am gasit pers minunate cu care vb si ma ajuta mult cu sfaturi cind am nevoie,sunt si medici care iti raspund la intrebari.iti doresc multa sanatate Smile


- bbarlea - 28-06-2006 06:05 PM

Buna,
Am descoperit niste articole interesante. Se pare ca colesterolul (scuzati cacofonia) joaca un rol important in declansarea si evolutia sclerozei multiple. Intamplator am fost si pe la cardiologie pt ca am pulsul marit si mi s-a cerut un test de colesterol. Mi-a iesit 266 mg/dl, maximul admis e 220, valoarea normala e in jur de 150 la varsta mea. Un alt articol spune ca administrarea de Lipitor (on medicament pt scaderea colesterolului) la cobai a oprit evolutia EAE (versiunea experimentala de MS la cobai) si chiar a regresat boala.
S-a facut si o corelatie intre valoarea colesterolului si numarul de leziuni. Se pare ca la fiecare 4.4 mg/dl peste medie corespunde o leziune. Am facut un calcul si mie mi-au iesit 26 de posibile leziuni. In Ungaria mi-au descoperit 20 si ceva.
Coincidenta? ...
Aici sunt articolele:
http://www.bostoncure.org:8080/article.pl?sid=02/11/14/1250233&mode=nested
http://www.bostoncure.org:8080/article.pl?sid=02/07/15/1119225&mode=nested


- roxana nicoleta - 28-06-2006 11:21 PM

buna eu am colesterolu mic ,la mine nu a avut legatura ,un factor ce a declansat totul la mine a fost stresu puternic ,mi a scazut imunitatea ,datorita scaderi imunitati am mai avut si alte probleme.noi trebuie mereu sa stam departe de stres,pt scaderea colesterolului sunt multe medicam unu bun ar fi zocor si altele ,vreau sa ti spun un lucru maximu admis poate fi si 250mg/dl.dar tu pt a scadea colesterolu trebuie sa ti un regim alimentar si sunt si la plafar medicam pe baza de plante ce te pot ajuta.eu sunt asist med


- bbarlea - 29-06-2006 11:36 AM

te rog nu imi distruge sperantele, eram atat de sigur ca e de la colesterol Smile


- roxana nicoleta - 29-06-2006 08:22 PM

bogdan nu ti distrug sperantele ,tu trebuie sa faci ceva pt a scadea colesterolu pt ca colesterolu marit te poate afecta nu vreau sa vb ce poate provoca colesterolu mare pt ca nu este cazu tau ,tu trebuie sa ai un regim alimentar care poate fi si in benificiu tau, eu dim maninc numai fructe si un iaurt degresat,la prinz carbohidrati(paste sau orez) seara carne cu salata sau peste ,carne slaba ,nu e bine a amesteca felurile de mincare , intre mese mai maninc fructe un dr mia zis sa maninc asa si ma voi simti mai bine si asa e ma simpt mai bine eu aveam probleme si cu colonu . nu din cauza colesterolului ai acel diag ,cea ce trebuie sa faci mereu e sa fi optimist,sa nu te mai stresezi si sa nu te nai gindesti tot timpu la boala ,trebuie sa duci o viata normala . :yes:


- bbarlea - 30-06-2006 11:37 AM

Nu toata lumea care are colesterol face SM dar s-a observat ca e o stransa legatura intre profilul lipidic si declansarea bolii. Banuiesc ca trebuie sa fie indepliniti un complex de factor ca sa declanseze boala. Posibil e o predispozitie genetica, apoi sinteza lipidelor sa fie dereglata si probabil un factor declansator (o infectie, stress, etc). Intrebarea e ca daca a pornit tavalugul, cum se poate opri sau macar incetini?
Ce e interesant e ca administrarea de Lipitor a oprit evolutia EAE la cobai si se cerceteaza introducerea de Lipitor sau in general a statinelor in tratamentul SM.

Toate cele bune,
Bogdan


- roxana nicoleta - 30-06-2006 11:47 AM

la intrebarea ta nu cred a iti poate raspunde nici un dr ,se fac cercetari de atitia ani sper ca pina la urma vor descoperi cum se poate vindeca SM si din ce cauza sigura se declanseaza ,eu sper sa fie cit mai curind speranta moare ultima


- bbarlea - 30-06-2006 07:15 PM

Aici mai este un aspect. In lume sunt aproximativ 2.5 milioane de persoane cu SM. Pentru o companie farmaceutica nu prea merita sa investeasca ani si bani incercetare pt a scoate un medicament care este destinat unei piete atat de restranse. Iar companiile farmaceutice care totusi au investit in a scoate un medicament, tin cu orice pret ca sa-l vanda. Interferonul se pare ca reduce frecventa puseelor cu 30%. Mi se pare total nesatisfacator insa pe toate site-urile americane, interferon este bagat in fata ca medicamentul minune pentru ca se scot bani seriosi din astea (fiind vandut foarte scump). Din pacate in industria farmaceutica scopul e profitul si nu vindecarea bolilor. Deci ma indoiesc ca SM va avea un medicament specific pt a fi tratat, eventual daca avem noroc se descopera ca un medicament specific unei alte boli mult mai comune, are efect pozitiv si in SM.


- roxana nicoleta - 30-06-2006 11:38 PM

bogdan eu sunt de acord cu tine dar ramine mereu speranta


- silvia - 04-07-2006 08:31 PM

buna
sunt silvia
bogdan as vrea sa te intreb la ce doctor ai fost in tg mures si unde ai facut rmn-ul.Si eu sunt din tg mures si ma simt ametita de ceva vreme.am crezut ca am sm siam umblat pe la 100 de doctori.am facut si rmn la spitalul judetean dar nu a iesit nimic.a fost vazut de mai multi neurologi inclusiv de la cj.as vrea sa ma duc si la dr care te-a consultat pe tine eventual sa mai fac un rmn.Au trecut 5 luni de atunci.acum ma simt mai bine chiar bine as putea zice dar nu-mi da pace gandul ca as putea avea sm.mersi!


- silvia - 05-07-2006 10:20 AM

buna,sunt silvia
vreau sa va rog daca aveti vreun puct de vedere referitor la cele scrise de mine sa lasati un mesaj pe forum.Mentionez ca am fost vazuta de 6 neurologi si toti ma asigura ca n-am sm.Totusi eu ma simt ametita si sunt ff obosita.uneori ma simt sfarsita chiar daca am dormit suficient sau n-am facut cine stie ce efort.de asemenea in ultimul timp imi amorteste piciorul cand stau mai mult in aceeasi pozitie 15 min de ex,mai ales degetul mare,dar trece in cateva min de la schimbarea pozitiei.Am mai fost la 4 oftalmologi,la internist,infectioase,orl...toti spun sa ma linistesc ca-s cam agitata sa iau ceva calmante,anxiolitice...si o sa treaca.Oare care sa fie cauza acestor stari ciudate?


- kim - 06-07-2006 12:20 PM

salut,sunt unul dintre membrii noi ,din pacate.Am inceput sa fac tratamentul cu betaferon si as vrea sa aflu mai multe informatii despre acest tratament.Mie nu mi-a explicat nimeni ce efecte are ,daca da rezultate,de ce doare asa tare fiecare injectie.Apropo,cei care fac Beta , ati primit si autoinjectomat?Citeam mai sus ca este cineva care lua nistre produse pentru stimularea imunitatii.Mie mi-au spus ca sunt contraindicate. Eu as vrea sa iau niste produse pentru memorie ca stau cam prost la cest capitol si ma refer la piracetam,piritinol,etc.Ce stiti se poate? Chiar, stiti ceva despre societatea romana de SM? Ce face ea ? poate oferi suport moral si material?


- roxana nicoleta - 06-07-2006 03:13 PM

buna silvia eu sunt roxana sunt suspecta de SM pt dupa cum a iesit RMN am SM dar mai trebuie sa fac punctie lombara pt certutudine dar de multe ori si acea punctie nu poate da o mare certutudine pt ca sunt pers care au facuto o data a iestit bine si dupa ce a avut un alt puseu a facuto din nou si a iesit pozitiva, deci concluzia silvia totul depinde de RMN cum iese dupa cum am inteles din ce ai scris nu ti a iesit nimic la RMN ai facut si cerebral dar si cervical atunci nu ai cum sa ai SM ,sintomele care le ai pot veni din alta parte ,lipa de calciu sau de minerale sau chiar stresu poate avea efecte urite depinde cum stai cu sist nervos .eu am facut RMN in romania la buc cervical si cerebral cu substanta de contrast diagnoisticu a fost zone de demielinizare cerebrale e cervicale,compatibile cu boala delielizanta cu leziuni active ,eu am ajuns sa fac acest RMN pt ca ma am trezit intr-o dim cu tot abdomenu amortit cum mi se facuse o anestezie ,furnici in picioare crampe musculare si zi dupa zi imi era mai greu sa merg asa sa manif la mine ,eu prima data ma am ingrijorat si ma am gindit ca poate fi ceva rau datorita abdomenului amortit ,imediat ma am gindit ca are legatura cu coloana.nu aveam abdomenu amortit nu mergeam la neuro pt ca cind ai furnici la picioare ,crampre pot atitea cauze,circulatie venoasa proasta ,lipsa de magneziu de calciu atitea.prima de a merge la neuro am facut si o radiografie la coloana.nu te poti cindi asa repede ca ai SM .eu acum sunt in italia si cum am schimbat si clima mai am de probleme dar merg inainte in tomana fac alt RMN si puncita lombara.acum pt sist imunitar iau OMEGA3/6 ,aloe vera,vitamine de la centru sportiv pt ca sunt mai bine dozate ,ma refer la vit din gama B care noi avem nevoie pt sist nervos central.eu zic silvia sa te calmezi ,sti ce mi a zis un dr ca noi uneori chiar daca nu avem acele sintome daca gindesti mult incepi sa simti ca si cum le ai el a avut un caz real,stai atenta cu sistemu nervos poate juca feste.eu zic ca trebuie sa fi fericita ca tia iesit bine RMN si sa te relaxezi asa vor disparea multe din sintomele tale totul depinde de tine.iti urez sanatate


- roxana nicoleta - 06-07-2006 03:28 PM

buna nikki aceiasi poveste ca si la silvia ti a iesit bine RMN atunci nu este SM poate fi lipasa cum am mai zis de Ca ;Mg si depinde cum stai cu sist nervos poate e nevoie sa vb cu un psihiatru pt a ti da un tratam usor pt a te calma si relaxa.incearca sa te relaxezi si sa faci o cura cu Ca ,Mg cu niste calmante usoare si vezi dupa cum e .la tine este alta cauza nu este SM ,nu sunt DR eu sunt asist med dar dupa cum tia iesit RMn nu este Sm.poti sta linistita.
buna kim eu acum nu fac nici un tratam cu interferon dar sunt pe un forum in italia unde sunt pers care fac tratam si le dau autoinjectomate isi fac toti singuri acasa ,duar avonex nu sunt inca cu autoinjectomate dar vor fi in curind am inteles.pt memorie tu cred ca iesti tinar nu ai nevoie de piracetam Wink poti lua lecitina sau ginseng care ajuta ,daca ai posibilitati materiale pt ca aici costa ia omega3/6 este ulei de peste si dr de aici sunt de acord cu omega eu platesc aici 15 euro 60 tb ,iti ajung o luna ,plus vitamine bine dozate ma refer la vit din gama B,deci impreuna cu interferon poti lua toate aceste.omega daca cauti cu goole vezi la ce ajuta si cit este de bun.societatea noastra de SM cred ca iti poate raspunde la intrebari dar material nu .sanatate


- silvia - 06-07-2006 06:55 PM

buna roxana
iti multumesc mult pt sfaturi.nu am facut decat rmn la cap nu si la coloana dar dr la care am fost eu spun ca nu am cum sa am leziuni la coloana si eu sa am un debut cu ameteli,ar trebui sa am abdomenul respectiv picioarele amortite.deci nu mi-au recomandat decat rmn la cap
dar eu m-am tot gandit ca daca totusi am leziuni la coloana ,daca rmn de la noi nu e destul de performant...dar am mai avut simpt astea in urma cu 6 ani si ma gandesc ca de atunci ar fi aparut vreo leziune.toti dr la care am fost muuulti la nr ma asigura ca n-am sm.s-ar putea sa ai dreptate ca ma gandesc cam mult si imi induc aceste simptome ca asta fac toata ziua stau si ma gandesc ca ametesc ,ca-mi amorteste mana ,ca nu stiu ce...cred ca trebuie sa ma relaxez putin.iti multumesc mult m-ai mai linistit.cred ca toate simpt mele au legatura cu coloana pt ca am o pozitie cam vicioasa.multa sanatate iti doresc.


- roxana nicoleta - 06-07-2006 07:07 PM

silvia ca sa stai linistita fa si un rmn la coloana cervicala dar dr nu ti a dat pt ca nu crede ca ai ceva pt ca nu ai sintome care sa se lege de coloana ,dar tu poti face la toata coloana ,bani sa ai si dupa te linistesti,dar si acum stai linistita ,relaxeazate ,trebuie sa faci ce faceai si inainte ce iti aduce satisfacti nu mai gindi la boala ,e nevoie ia ceva de plante sa te calmeze.sanatate


- silvia - 07-07-2006 09:45 AM

buna roxana
o sa fac alt rmn si la coloana.la noi in oras nu este rmn la particular din cate stiu eu,asa ca mai astept o vreme ca n-au trecut decat 5 luni de la ultimul rmn.cu toate ca greu imi vine sa cred ca nici unul din dr nu mi-ar fi recomandat un alt rmn daca ar fi crezut ca exista sanse sa am leziuni pe undeva mai ales ca la toti 5-6 le-am spus ca suspectez ca am sm.ce preparate din plante sa iau?ultima dr la care am fost mi-a dat sa iau piracetam si magnerot pt starile de ameteala.cred ca incep sa le iau de azi.toate cele bune iti doresc.silvia


- bbarlea - 07-07-2006 01:27 PM

Silvia, ametelile pot avea n cauze. De ce te gandesti tocmai la SM? Iar cu amortelile aceeasi problema. Daca ai avea SM si ti-ar amorti mana nu ti-ar trece daca ai schimba pozitia. Te inteleg prin ce treci, e aiurea sa simti ca ceva nu e in regula si sa nu iti gaseasca medicii ce ai, dar asta nu inseamna ca trebuie sa exagerezi si sa iti dai tu diagnostice stintifico-fantastice.
Pana nu ai leziuni pe creier sau pe coloana nu ai de ce sa iti faci probleme, si chiar daca ai leziuni cu ingrijorarea nu faci nimic. Daca e SM asta e, o duci in spate cate zile ai. Cu totii trebuie sa murim din ceva cauza, nu ? Smile


- roxana nicoleta - 07-07-2006 03:14 PM

buna silvia eu zic a te linistesti daca vrei sa iei ceva ce ajuta pe orcine in general poti lua ginseng ,omega 3 sau omega3/6 ,intaresc sistemu imunitar nu fac rau .cind este foarte cald afara si tu transpiri mult poti pierde minerale atunci poti lua saruri minerale sau minerale cum e Mg asa nu mai ai furinici la picioare si te simti si mai bine.eu nu sunt dr si nu stiu nici ce virsta ai dar piracetam se da la o virsta mai mare si cred ca medicam e depasit.ameteli poti avea cind ai o tensiune mica cu caldura sau foarte mare depinde ,sper ca ai un medic de familie bun eu find in bransa am vazut multi care lasa de dorit ,eu am lucrat mereu cu dr de familie.nu mai cauta cea ce nu ai si nu mai gindi la ceva ce tu nu ai, nu ti imbolnavi tu singura corpu .bucurate de vara de tot :yes:


- nikki - 09-07-2006 12:14 AM

In primul rand,Ada si Roxana ,va multumesc mult pentru incurajari si va urez multa sanatate.Santeti niste fete extraordinare!Am fost joi la un oftalmolog si mi-a zis ca examenul de ochi este normal iar ieri am facut RMN la cap care a iesit si el normal.M-am bucurat mult dar astept inca marti cele 2 teste neurologice.Legat de amorteli si fasciculatii pot fi si alte boli la fel de grave(mi-am pus si aceasta intrebare)si invalidante ca si SM,cum este polineuropatia senzitivo-motorie periferica,fiind tot o boala demielinizanta si se manifesta asemanator...Dar incerc sa nu ma mai gandesc,cu siguranta ca psihicul joaca un rol important mai ales daca te gandesti tot timpul la ce simti,la simptome...Draga Silvia,tu esti un pic ca si mine...dar incerca sa nu te mai gandesti atat...asta distruge...Acum eu incerc sa ma relaxez,sa dau uitarii...sant extenuata psihic...nu stiu daca voi reusi dar cel putin dupa ziua de ieri,adica dupa emotiile avute...pur si simplu acum pe moment parca nu-mi mai pasa...Neurologul m-a intrebat daca vreau sa fac un RMN de coloana toracala(el crede ca poate as avea de la coloana acele amorteli,adica vreo discopatie),dar acum nu ma mai simt in stare si urasc RMN(sant la un pas de a face atac de panica in tubul acela),numai eu stiu ce am tras de fiecare data...OK,dar sa nu mai fiu pestimista...eu va salut pe toti si va urez sanatate multa!!


- nikki - 09-07-2006 12:23 AM

Si inca ceva,Silvia,am citit tot pe internet despre SM ca leziunile apar mai intai la nivelul capului,in creier...deci daca acolo nu ti-au gasit,inseamna ca nu este.RMN de coloana nu iti aduce alte rezultate in plus...cel mult,alte afectiuni (ale coloanei)daca exista dar nu diagnosticul de SM...Neurologul ar trebui sa-ti faca si Potentiale Evocate(este alta metoda de diagnosticare a SM)dar din cate stiu RMN este superior si destul de sigur.Numai bine si gandeste pozitiv!


- ada - 09-07-2006 12:38 PM

Nikki ,te felicit pentru atitudinea pe care ai adoptat-o,ma bucur din suflet ca analizele ti-au iesit bine.Continua sa ai credinta si fi optimista.Lucreaza cat potzi de mult cu psihicul si lasa frica si panica da-le uitarii.Traieste-ti viatza cu bucurie si seninatate chiar si atunci cand pare imposibil.Te imbratisez cu drag .
Si tuturor de pe acest forum va urez sanatate maxima si o vara excceptionala.Dumnezeu sa va binecuvanteze.
Ada


- silvia - 10-07-2006 08:35 AM

va multumesc mult nikki si roxana pt sfaturi si incurajari.
o sa incerc sa nu ma mai gandesc dar nu stiu cum o sa fac.asta pt ca am permanent stari de ameteala care nu ma lasa sa fac nimic.dr neurolog,ultimul la care am fost mi-a dat sa iau magnerot,pramistar ce contine pramiracetam si spitomin care e un anxiolitic usor.am inceput sa le iau de vineri dar parca ma simt si mai rau.incerc sa fac lucruri care sa ma bucure sa uitde starile astea dar nu pot.mai nou dimineata si seara am niste stari de neliniste, de frica parca.oare sa fie de la aceste medicamente ca inainte n-am simtit asa ceva.am auzit ca aceste anxiolitice pot sa faca mai mult rau decat bine.voi ce stiti?ce ati auzit?dr neurolog spun ca ei trateaza cu asa ceva ametelile fara cauza clinica.la mine nu a gasit nimic neurologic.va pup ,silvia.


- CARMEN Magda - 11-07-2006 11:03 AM

Salut Silvia!!
Eu iti sugerez sa nu te mai gandesti asa de tare la acesta bola, daca ai ameteli si dr,. nu conoaste cauza nu stiu de e iti mai da tratament.Oricum, acesta ii sistemul din Romania, apropos, ce diagnostic ti sa dat?
Ai incercat cu produse naturiste? Eu am fost diagnosticata cu Sm in luna martie, am fost si eu ca si toata lumea de altfel,careia ii se da un asemnea diagnostic, distrusa!... dar iata ca acum sunt bine, nu mai am absolut nici un simtom si nici nu am luat interferon sau ceva de genul acesta.Ii multumesc lui Dumnezu!!!!
Te rog, incearca sa gasesti o metoda de tratament in care tu sa crezi!
Vreau sa aflu vesti bune de la tine!
In speranta ca acest lucru se va intampla, va doresc tuturor sanatate si fie ca Dumenzeu sa fie in sufletele voastre!
Carmen Magda


- nikki - 11-07-2006 12:27 PM

Silvia,nici eu nu stau foarte grozav la capitolul sanatate dar vreau sa-ti dau cateva sfaturi.Azi ma bucur pentru pentru ca cele 2 teste neurologice au iesit normal.Deci diagnosticul de SM spre bucuria mea,nu s-a confirmat.Am primit o trimitere la chirurgie maxilo-faciala.Stiu ca am probleme cu maxilarul in dreapta(se pare ca ar fi o luxatie)si cred ca imi vor da o proteza cu care trebuie sa dorm seara.Ametelile pot veni de la foarte multe.Deci pot fi si in depresii dar ca sa dai vina pe psihic este usor,insa mai intai de toate trebuie sa excluzi bolile fizice.Deci,ameteli apar cand ai lipsa de Ca,Mg,Fe,vitamine,de asemene in boli de ficat,in diabet,de la coloana cervicala foarte des...Si in foarte multe alte boli.Inainte de a face fixatie pe SM(asta mi s-a intamplat si mie!)eu te sfatuiesc sa mergi si sa-ti face analize ale sangelui,sa vezi daca acestea sant normale(sa vezi cum este hemoglobina,glicemia,transaminazele la ficat,Ca,Mg,Fe...)si daca totul iese bine,fa un RM pentru coloana cervicala (in caz de discopatie apar amorteli si ameteli).Deci,nu cauta raspunsul unde nu il poti gasi.Tu ai sarit prea repede la boli neurologice inainte de a exclude altceva.Si nu uita ca si depresiile dau ameteli si stari de rau.Eu iti urez multa sanatate si sa ne auzim cu bine.De asemenea urez multa sanatate si optimism tuturor de pe acest site si vreau sa va spun pentru cei interesati,ca in cartea"Medicina Naturista" de Speranta Anton sant descrise tratamente naturiste pentru SM dar si pentru multe alte boli.Va pup si numai bine!


- silvia - 12-07-2006 10:04 AM

buna carmen magda
iti multumesc mult pt raspuns.Dg pus a fost de sindrom vestibular central deci ceva asa generalist pt ca nu s-a gasit nimic la nici o investigatie.ultima dr neurolog la care am fost mi-a dat medicamente ca sa amelioreze starea asta.eu cred ca e ceva neuro-vegetativ.la fel cred ca presupune si ea.dar eu sunt la capatul puterilor pt ca ma simt asa din ianuarie.cam mult nu?
bine am zile si zile uneori ma simt chiar bine.am observat ca depinde f mult de ce fac pt ca daca sunt mai ocupata cred ca mai uit.asa cred.acum iau medicamentele astea( inclusiv anxioliticul asta care sper sa ma mai linisteasca)si incerc sa ma deconectez poate o sa fie mai bine.Ma bucur enorm sa aud ca esti atat de bine.sa te ajute bunul Dumnezeu sa te simti numai asa.
in 27 ma duc la un alt neurolog sa fac un eco doppler poate cine stie...te tin la curent.numai bine,silvia


- silvia - 12-07-2006 10:22 AM

draga nikki
iti multumesc mult pt sfaturi dar vreau sa-ti spun ca am facut numeroase investigatii si pt ca la nici una nu s-a gasit nimic am inceput sa ma gandesc la astfel de boli.am inceput asa
-examen de sange cel putin 6 seturi de analize toate normale dar un dr mi-a zis ca nivelul calciului trebuie facut din urina pt o valoare relevanta.asta n-am facut.
-exam oftalmologic-mi-a gasit un -0.5 la ambii ochi mi-am facut ochelari dar nimic
-exam ORL,de asemenea nimic
-radiografie de coloana cervicala in 4 incidente si facute in 2 cabinete diferite,nu se vede nici o modificare
-eco abdominal
-exam endocrinologic,niste microchisturi pt care mi-a dat iodid dar dr spune ca nu pot cauza ameteli
-mi-am facut tot felul de anticorpi ,cel lupice si alte alea negative
-anticorpi anti-borelia,anti-toxoplasma
-n consulturi neurologice
-rmn cerebral la care nu s-a gasit nimic
si poate altele pe care nu mi le mai amintesc.cam atat cred ca numai la psihiatrie nu m-am dus.exam coproparazitologic la care a iesit giardia lamblia de care m-=am tratat dupa care am facut un tratament de reechilibrare cu ca,mg si multe vit.in 27 fac un eco doppler sa vad cum stau cu circulatia.in rest nu-mi ramane decat sa astept poate trece cu timpu.multa sanatate iti doresc!


- silvia - 12-07-2006 10:25 AM

nikki cand spui RM de col cervicala te referi la rmn de coloana cervicala sau radiografie de coloana cervicala??te pup ,silvia


- silvia - 12-07-2006 11:02 AM

fetelor ce credeti de spitomin-clorhidrat de buspirona 5mg?stiti ceva despre acest medicament?credeti ca da dependenta?


- nikki - 12-07-2006 06:02 PM

Draga Silvia,am scris RM pe scurt,adica rezonanta magnetica,dar e acelasi lucru cu RMN(rezonanta magnetica nucleara).Daca spui ca ai facut toate examenele si sant normale,atunci cu siguranta ca este vorba de o distonie neurovegetativa si din ce iti faci mai multe ganduri si griji,din ce iti va fi mai rau.Si la mine este vorba de ceva asemanator,dar mai am si alte probleme serioase de sanatate(stomac,ficat).Eu zic sa te linistesti,sa nu mai mergi prin doctori si sa incerci sa te relaxezi cat mai mult.Citeste in internet despre distonia neurovegetativa si ai sa te lamuresti.Deci te sfatuiesc din tot sufletul,sa nu mai mergi la "n" medici,nu are rost .Intr-un dezechilibru dintre sistemul nervos simpatic si cel vegetativ,se produc tulburari functionale(nu organice) care mimeaza multe boli.Eu am pulsul marit si fac si extrasistole cateodata tot din acelasi motiv.Din ce cauti mai mult,din ce vei gasi mai putin.Trebuie sa lucrezi cu psihicul tau care ti-a adus precis aceste tulburari din prea mult stres.Poate ca nu iti vine sa ma crezi,dar este adevarat.In loc sa mergi la doctor,mergi la un strand,citeste o carte,iesi in oras la cumparaturi,gaseste-ti preocupari placute si spune-ti ca nu esti bolnava,pentru ca nu esti intr-adevar!!!Fa acest lucru mai devreme decat prea tarziu...si ai sa vezi ca nu vei mai avea nici ameteli si te vei simti foarte bine!Te pup si iti urez numai bine! Smile


- silvia - 13-07-2006 10:12 AM

buna nikki
s-ar putea sa fie distonie neuro-vegetativa,mi-a mai spus cineva asta.Sa stii ca si eu am facut extrasistole si aveam pulsul 100.am fost la drsi mi-a zis ca nu-i nimic organic si sa iau ceva calmante.daca mi-a zis ca nu-i nimic nu m-am mai gandit si mi-au trecut,adica n-am mai avut din iarna.asa ca poate sa fie asa ceva.te pup si numai bine iti doresc!


- vio - 17-07-2006 03:05 PM

Buna,

Ma numesc Viorica, am 24 de ani, si in urma cu doua luni am fost diagnosticata cu SM. As vrea si eu sa stiu ce nu am voie sa fac, sa mananc, sa beau, deoarece doctorii nu m-au lamurit cu nimic.

Va multumesc


- bbarlea - 18-07-2006 02:06 PM

Buna Viorica,
Sunt Bogdan (28 ani) si am avut un singur puseu cu vedere dubla in martie, nu mi s-a pus diagnosticul de SM in Romania dar in Ungaria un medic mi-a spus ca e proces demielinizant (caracteristic pt SM). Din cate am observat doctorii romani sunt foarte prost informati despre SM, dar poti contracara aceasta problema cu informatiile de pe net. Internetul abunda cu informatii despre SM, e drept multe dintre ele contradictorii dar ai sa observi in timp ca anumite lucruri sunt comune.
Despre dieta gasesti cateva informatii utile aici: http://www.internethealthlibrary.com/Health-problems/Multiple%20Sclerosis%20-%20researchDiet&Lifestyle.htm
Dincolo de dieta, e important sa nu disperi, nu exista boli incurabile doar oameni care si-au pierdut speranta (si probabil medici idioti care ii ajuta sa devina disperati).
Din articolele pe care le-am citit, si am citit mult din martie incoace am ajuns la cateva concluzii. Grasimile nu fac deloc bine in MS si mai ales grasimile animale. Ar fi util sa iti faci un test de colesterol si trigliceride, unele studii asociaza debutul SM cu valori enorme ale colesterolului. Eu am descoperit ca am colesterolul 266 pe cand valoarea ideala pt varsta mea ar fi 150 - 160. Incearca sa reduci, sau sa renunti daca poti la carnea grasa (in general carnea rosie), lapte si produse lactate si oua, si sa mananci mai multe legume si fructe. Uleiul de peste ajuta enorm. Il gasesti la farmaciile Bioplant sub forma de capsule cu numele Omega 3. O cura de doua, trei pastile pe zi nu strica.
Una din ipotezele despre cauzele sm e cea virotica si anume Herpesvirus 6 sau Epstein-Bar (tot din familia herpesvirus).
Initial se presupunea ca nu exista un antiviral eficient importiva herpesvirus. In 1985 au inceput sa apara articole despre eficienta zinc-ului in deactivarea virusului herpetic dar medicii nu au fost prea receptivi. De abea de curand s-au trezit si daca dai o cautare pe net despre zinc si herpes ai sa gasesti o gramada de articole si studii clinice. O cura de 50 mg de gluconat de zinc/zi timp de 3 saptamani si apoi cu pauza de 2 saptamani intre ele de asemenea nu poate decat sa ajute.
De asemenea Magnesiu, ajuta foarte mult la sanatatea sistemului nervos central. Poti sa iei Magne-B6 sau produse similare mai ieftine. Alte teorii asociaza SM cu deficienta de Seleniu si Cupru.
Cu bauturile alcoolice... din experienta personala pot sa spun ca berea nu face prea bine, ma simt mai rau acum cand beau bere (si imi placea enorm) in schimb vinul rosu e ok, ajuta si la circulatie. De asemenea sucuri naturale de fructe sa bei cat incape si cat iti poti permite. Ideal e sa iti cumperi fructe proaspete si sa iti prepari singura sucurule nu sa dai bani pe porcariile din comert.
Inca odata, e important e sa nu iti pierzi speranta. SM o fi o boala nevindecabila (inca) dar cu siguranta se poate incetini si controla, nimeni nu vine pe pamant in concediu si niciodata nu sti ce cruce ai de dus in viata, dar suntem aici ca sa ne ajutam Smile
Toate cele bune, Bogdan


- vio - 20-07-2006 03:55 PM

Buna Bogdan,

Multumesc mult pentru sfaturi.
Mie mi-a amortit usor partea dreapta a corpului cu tot cu fata, si piciorul un pic mai mult. Ma speriasem ca la o luna dupa solumedrol nu-mi revenisem aproape deloc. Am fost la o doctora si mi-a spus ca am mare lipsa de calciu si am inceput sa iau calciu cu magneziu fiole si multumesc lui Dumnezeu mai simt doar un pic piciorul amortit cand sunt obosita, sau stresata , cand ma si doare usor. Acum nu stiu daca chiar de la calciu, sau si-a facut solumedrolul efectul, dar eu sunt fericita oricum.

Am mai aflat ca nu as avea voie la mare. Voi ati mai fost la mare de cand cu SM, si daca ati fost chiar vi s-a intamplat ceva rau? Inteleg ca nu trebuie sa stau cu capul la soare, dar sa fac o baie in mare nu mi se pare chiar ceva grav. Acu nu stiu ce sa zic.

Va multumesc,

Vio


- bbarlea - 20-07-2006 04:37 PM

Buna Vio,

Se spune ca in general caldura nu face bine persoanelor cu SM. Ar putea sa iti da o usoara exacerbare a simptomelor insa asta nu inseamna o agravare a bolii deci caldura nu are ca efect inmultirea leziunilor. Simptomele trec imediat ce corpul revine la o temperatura normala. De asemenea soarele ajuta la sisteza vitaminei D, deci statul la plaja e foarte sanatos. Eu zis ca incerci sa mergi la mare cateva zile, sa iti protejezi capul de soare dar nu si corpul si sa ai la tine sucuri reci ca sa iti controlezi temperatura corpului.
Unele studii spun ca SM e mai frecventa in zonele temperate si reci, unde persoanele sunt mai putin expuse la soare. SM e aproape inexistenta in zonele tropicale. Din acasta cauza s-a facut legatura intre SM si nivelul scazut de vitamina D din corp.
Fa ce simti, daca iti vine sa mergi la mare, du-te. Daca simti ca nu iti face bine caldura, te intorci. Eu nu am simtit sa imi faca rau caldura si statul la soare, dar probabil fiecare persoana reactioneaza diferit.

Bogdan


- Mar_ius - 20-07-2006 11:59 PM

VIO, sunt Marius, si am SM de 4 ani,daca vrei sa stai la soare.... stai, dar sa stai moderat, adica sa nu mai stai ca si inainte de a te inbolnavii.
bbarlea, ce invarti domne?
mai ai albine........?


- bbarlea - 21-07-2006 01:39 AM

Salut, nu avea albine cand am fost, acum imi face cu venin din fiola. Cred ca am sa imi pun un stup in balcon, sa ma servesc dimineata langa cafea Smile


- bbarlea - 21-07-2006 01:47 AM

Un articol interesant despre efectul Nocebo (sau cum poti sa inrautatesti simptomele unei boli gandind negativ - Think sick, be sick) http://www.washingtonpost.com/ac2/wp-dyn/A2709-2002Apr29


- ada - 21-07-2006 08:19 PM

Salutare tuturor forumistilor.Acum 2 zile mi-a picat in mana o carte foarte interesanta si m-am gandit sa postez aici un extras privitor la scleroza multipla.Cartea are remedii si diete pentru o multitudine de alte afectiuni cum ar fi psoriazis,boala lui Parkinson, diabet, ulcer,calculi biliari si renali,umflaturi,inflamatii,nevralgii,abcese,migrene,deficiente de vedere,matreata,alopecie,indigestii,sciatica,tuse,boli ale inimii,ficatului,stomacului,urechilor,nasului si gatului,escarelor,artrita,rheumatism,guturai,crampe musculare,zona zoster,insomnii,sinuzite,bronsite,senilitate,hiper si hipo tiroidismul,probleme ale femeilor,glaucomul,cancerele,distrofia musculara etc).Sper sa ma scuzati pentru dezordinea in care le-am prezentat,sunt f.multe in cuprinsul acestei carti.acum am sa postez capitolul despre SM.Sper ca nu v-am oboist prea mult si va urez tuturor sanatate maxima.Ada


Pagina 136
Extras din volumul “Retete Biblice de Tratamente Naturiste – HRANA VIETII”
Autor : Doctor Mihai Petrovici
Editura:SAMIZDAT
Tiparul ANTET XX PRESS
Filipestii de Targ,Prahova
Str.Max Heberlin,nr.677


SCLEROZA MULTIPLA


Lucratorii din industria pescuitului par sa prezinte o stranie imunitate fata de scleroza multipla-fapt care nu a scapat atentiei oamenilor de stiinta.
Se trateaza cu mult success scleroza multipla,folosind o dieta redusa in grasimi lactate si animale omega 6 si uleiuri de gatit si bogata in alimente omega-3 ca pestele sic ate o lingurita cu ulei din ficat de cod zilnic.
Pacientii cu handicapuri minime ,care au aplicat recomandarile dietare,nu au manifestat nici un progress al bolii,sau unele foarte mici,mentionand ca dieta a fost mentinuta toata viata.
In dieta se recomanda:
1. Eliminarea untului,a uleiurilr hydrogenate(margarina si uleiuri alimentare) si o ingestie de grasime animala nu mai mare de 15gr.pe zi.
2. O portie zilnica de 40-50 gr.,sau aproximativ 3-4 linguri de uleiuri vegetale polinesaturate.
3. Cel putin o lingurita de ulei din ficat de cod,zilnic.
4. O portie normala de proteine,mai mult din legume,nuci,peste,carne alba de pui sau curcan (fara pielita) si carne slaba.
5. Consum de peste de trei sau mai multe ori pe saptamana.

Pacientii cu handicapuri moderate si grave,care au urmat recomandarile dietare,s-au prezentat mult mai bine decat grupul care n-a facut-o.Dieta a prevenit agravarea bolii si a redus mult oboseala.
Pacientii cu scleroza multipla duc o lipsa drastica de acizi grasi omega-3.acest deficit se poate remedia partial consumind uleiuri bogate in acizi grasi omega -3,afirma ei.Si anume,uleiuri de peste,care sunt mai puternice si uleiuri de plante ,cum ar fi canola si samanta de in.Nu e nevoie de prea mult.Luam cam cateva lingurite pe zi.
Recomandarile unui medic
“Prin urmare ,ii sfatuiesc pe pacientii mei cu scleroza multipla sa evite grasimile omega-6 si sa manance pesti bogati in grasimi.De dapt,aceasta le spun majoritatii pacientilor sa faca oricum,findca o asemenea dieta poate proteja si impotriva bolilor de inima.Din punct de vedere practice ,aceasta inseamna un consum de 140 gr.zilnic de ton sau oricare alt peste foarte bogat in omega-3.Merg bine si cantitati moderate de paste fainoase sau carne alba de pasare,curatita de pielita- INSA DATI UITARII CARNEA ROSIE SI TOATE PRODUSELE LACTATE.Deasemenea dieta dumneavoastra trebuie sa fie bogata in legume,fructe si zarzavaturi pentru arecupera caloriile ce nu le mai obtineti din grasimile si proteinele animale,precum si a va furniza fibre.Evitati grasimile interzise la gatit si in schimb fierbeti,frigeti,coaceti in cuptorul classic sau la microunde sau preparati la capac pestele.Marinarea alimentelor in suc de lamiae sau plante,in sucuri de fructe diluate sau in vin va vor face cunostinta cu gusturi noi si interesante,lipsite de grasimi.Totodata ,va puteti frige la gratar pestele si legumele,in suc de zarzavaturi sau pui degresat.Daca nu va place pestele sau nu va puteti permite sa-l mancati cu regularitate ,puteti lua zilnic cate 2,5 grame de suplimente omega -3,sub forma de capsule,echivalentul a 110 gr.de somon trandafiriu"


- mioara - 22-07-2006 06:38 PM

Buna ziua, am trimis deja un mesaj si am uitat sa salut. Azi m-am inregistrat, citesc mesajele voastre de vreo 2 saptamani si mi-am facut curaj sa scriu azi. Am 31 de ani, am facut mai multe RMN-uri si mi-au spus ca am 3 leziuni de demielinizare, intre 3-5 mm pe suprafata cerebelului si una de 10 mm pe lobul frontal, posibil cauzata de un gliom infiltrativ de grad mic. Au spus ca nu se poate pune diagnosticul de SM, dar nici nu se poate infirma, intrucat leziunile sunt inactive. Am ajuns la medic din cauza durerilor de cap si a unor episoade izolate in care nu-mi puteam controla musculatura gurii, aveam senzatia ca se observa si din exterior efortul meu de a articula. Am ignorat celelalte simptome (ameteala, scotoame, senzatii de voma, amorteli ale picioarelor, oboseala, am presupus ca sunt din cauza efortului). mi s-a spus sa astept 8 luni sa fac din nou RMN pentru a se vedea daca mai apar leziuni sau se mareste tumoarea. Ar putea fi totusi SM? Una din surorile tatalui meu e diagnosticata cu SM de cativa ani.


- doinita - 23-07-2006 02:55 PM

stiti careva se da rezultatul imediat la RMN.?


- Clacla - 24-07-2006 12:35 PM

doinita,mie mi l a dat in 30 de minute


- bbarlea - 24-07-2006 02:27 PM

Buna Ada,

Dieta pentru SM care ai prezentat-o se regaseste aproape identica cam in toate articolele despre dieta persoanelor cu SM care le-am citit. Am citit de cazuri in care persoane care au trecut la o astfel de dieta in decurs de 4 ani au obtinut imbunatatiri substantiale ale starii lor. De asemenea vitamina D se pare ca e un inhibitor natural al sclerozei multiple. (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11115787&dopt=Abstract)
Eu am renuntat la carnea rosie, grasimi animale, oua si lactate. Mananc mai mult carne de pasare, sau peste.
Iau suplimente Omega 3, magneziu si zinc si o data pe saptamana fac o sedinta de tratament cu venin de albine.
Deocamdata ma simt ok dar sunt curios ce va fi in primavara cand organismul e mai slabit.


- bbarlea - 24-07-2006 02:36 PM

Am o curiozitate, cati dintre cei diagnosticati cu SM erati sau sunteti fumatori? Intreb asta pt ca am citti articolul Smoking may contribute to multiple sclerosis progression (http://www.medicalnewstoday.com/medicalnews.php?newsid=23178)
Eu fumez cam de 4 ani. Primul si singurul puseu de SM l-am avut in martie anul acesta.


- ada - 24-07-2006 06:36 PM

Eu am fost fumatoare,am fumat foarte mult (circa 40 de tigarete pe zi in anul in care a debutat SM).Inainte de 2004 fumam cam 1 pachet/zi.Trebuia sa le las demult,bine ca am reusit si acum,ceea ce le doresc tuturor fumatorilor,sa reuseasca si sa devina NEFUMATORI.


- bbarlea - 26-07-2006 07:02 PM

Un articol interesant despre asemanarea foarte mare intre Lyme (borelioza) si SM (http://www.canlyme.com/lymemultiplesclerosis.html)


- bbarlea - 27-07-2006 07:06 PM

Primul transplant de celule stem. Atena 26 iulie 2006: http://www.stemcellnews.com/articles/stem-cell-transplant-for-chronic.htm


- Clacla - 28-07-2006 12:04 PM

buna! as avea o intrebare la ce spital din bucuresti se faca tratamentul cu interferon?va trebui sa merg saptamana viitoare sa stau de dimineata pana seara. injectiile sau medicamentele pe care mi le vor da acolo au reactii adverse ?care vor fii acestea? va multumesc


- Clacla - 28-07-2006 12:32 PM

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- Clacla - 28-07-2006 12:46 PM

MAI MULTE INFORMATII DESPRE SM LE GASITI PE http://www.neurology.com


- bbarlea - 02-08-2006 12:19 AM

Unele cercetari au scos la iveala o posibila legatura intre pesticide si bolile neurologice. Care e cea mai eficienta metoda prin care pesticidele intra in corp? Prin polen infestat.
Articolul aici: http://minnesota.publicradio.org/display/web/2006/07/27/pesticidestudy/


- cristina - 04-08-2006 03:06 PM

imi pare rau ca sunteti bolnavi dar ma si bucur ca nu sunt singura
am 21 de ani si sufar de sm de la 15 ani chiar daca nu va vine sa credeti faptul ca am aceasta boala m-a ajutat de multe ori
am invatat sa convietuim in acelasi corp si chiar daca uneori ne mai tachinam de obicei ne intelegem
va recomand sa nu va lasati invinsi si sa uitati de cate ori puteti ca sunteti bolnavi


- Mar_ius - 05-08-2006 03:31 PM

Salut Cristina, din ce oras esti? eu am sm de 4 ani


- bbarlea - 07-08-2006 08:32 PM

Pacientii carora li se administreaza o cura scurta de Mitoxantrone si apoi Copaxone, au o scadere a retei puseelor de 90%. Deci se poate Smile Articolul aici: http://www.medicalnewstoday.com/healthnews.php?newsid=47895


- bbarlea - 08-08-2006 12:44 AM

Un articol despre Epstein Barr Virus (EVB sau Human herpesvirus 4 HHV-4) si declansarea sclerozei multiple.
http://www.medicalnewstoday.com/medicalnews.php?newsid=42767&nfid=crss
Persoanele cu SM, au o reactie exagerata la EVB si sistemul imnunitar incepe sa atace mielina din cauza mimicitatii moleculare (cu alte cuvinte EVB seamana ca structura proteica cu mielina). Gasesc tot mai multe articole despre virusii din grupa herpesvirus care sunt suspecti de declansarea SM. Nu toata lumea infectata cu herpesvirus are SM, bineinteles, exista si o componenta genetica in aceasta boala care predispune la o reactie exagerata a sistemului imunitar dar banuiesc ca daca sistemul imunitar nu mai are la ce reactiona el se calmeaza.


- Clacla - 10-08-2006 12:18 PM

buna! am inceput tratamentul cu betaferon ,sunt la a 5 a injectie,prima care mi s a facut in spital a fost ok nu mi s a inrosit ci doar invinetit locul...celelalte mi le am facut singura s au inrisit si nu mi a trecut roseata...e normal?la voi cum e ?va rog raspundeti mi .va multumesc


- Mar_ius - 10-08-2006 07:35 PM

Salut Clacla, este normal sa se inroseasca locul injectarii cu betaferon, deci nu te speria. Daca se inroseste locul injectat si te doare, pune ceva rece pe locul injectat, ca trece.


- ada - 10-08-2006 09:01 PM

Da Clacla, este normala reactzia de roseatza pe locul injectarii,asa cum ti-a zis si Marius,pune o compresa rece si totul va fi ok.Ia paracetamol cate 2 din 6 in 6 ore (primele 2 pastile de paracetamol,inainte cu jumatate de ora inaintea injectarii betaferonului) daca ai frisoane ca si reactzie .Eu am avut astfel de reactzie cam 3 luni apoi totul a fost si este ok.Si fac tratamentul de 2 ani.Sanatate multa si toate cele bune-ti doresc.


- Mar_ius - 10-08-2006 09:52 PM

EU stiam ca paracetamol se ia unu cu o ora inante, si unu dupa(tot o ora) de injectie.......Eu asa am luat.


- Clacla - 11-08-2006 08:18 PM

buna!!!multumesc ca mi ati raspuns la dilema mea....mie mi s a spus sa iau paracetamol la 30 de minute dupa injectie si inca unul dupa vreo 5 ore...il iau dar cred ca degeaba,febra nu coboara este destul de mare durere de cap de muschi oase si frisoane...oare nu il iau eu bine de nu mi trece febra?nu pot dormi deloc in seara cu injectia...voi puteti?va doresc multa sanatate si incredere in Dumnezeu!


- Mar_ius - 11-08-2006 10:08 PM

Salut Clacla. Simtomele ce le ai tu sunt normale la tratamentu cu betaferon.Aceste simtome vor disparea in cateva luni, pana se obisnuieste organismu cu medicamentu.


- cristina - 14-08-2006 05:37 PM

buna am vazut ca va faceti probleme din cauza frisoanelor si a petelor ce apar din cauza tratamentului cu betaferon Eu fac acest tratament de peste 2 ani si va spun din experienta ca dupa un timp petele aproape ca nu se mai produc iar frisoanele si durerile apar doar daca persoana in cauza este foarte obosita sau a stat foarte mult in frig insa si aceste frisoane scad in intensitate si aproape nu mai sunt percepute.totusi va recomand sa vorbiti cu medicul deoarece poate fi si o intorabilitate la interferon beta


- ada - 14-08-2006 06:24 PM

Claca,ia cate 2 paracetamol din 6 in 6 ore,nu lasa febra sa urce sau sa persiste,febra este daunatoare asemeni expunerii la temperaturi ridicate ,cel putzin asa mi-a zis mie neurologul meu(cica febra f.mare sau caldura afecteaza mielina nou formata).Oricum in maxim 3 luni vei scapa de reactziile adverse.Si spune-i neurologului tau toate amanuntele.Sanatate si numai bine-ti doresc.
Ada


- Petru - 17-08-2006 11:41 AM

Buna !
Sunt Petru, diagnosticat cu sm de acum 21 de ani.Acum am 47 de ani. Se pare ca am forma RR si nu m-a afectat prea mult. De 1 an si jumatate fac Betaferon. Cred ca vreun an efectele adverse m-au dus in pragul depresiei. Frisoane, dureri musculare, stare pseudo-gripala. Am intrebat in toate partile, medici si betaferonisti cu vechime. Raspunsurile au fost diverse. Pentru ca, fiecare organism raspunde in felul sau propriu.
Sfaturile primite, in legatura cu administrarea paracetamolului, le pot sintetiza astfel:
- cate o pastila cu doua ore inaninte si doua dupa;
- la fel dar cu o ora;
- de cate ori este nevoie la frisoane si febra pentru ca paracetamolul este un medicament foarte eficient pentru reglajul termic;
- o pastila in momentul injectarii si daca este cazul una dimineata pentru a combate starea proasta de a doua zi.
Cele de mai sus sunt variante pe care le-am incercat, pe rand, in decursul timpului. Asupra mea parca cel mai bun efect a avut ultima varianta.
Impotriva frisoanelor am primit si alt un sfat de la o doamna care face Betaf de 6 ani. Este foarte importanta temperatra injectiei. Daca tii substantele inainte de preparare sub brat ( ca termometrul ) vor capata temperatura corpului. Aparitia frisoanelor se diminueaza considerabil.
Nu exista, dupa cate imi dau seama, reteta standard pentru a scapa de neplacerile injectiei cu Betaferon.
Multumita lui Dumnezeu, pot spune acum dupa un an jumate de tratament, ca ma simt mai bine decat inainte de inceperea lui. Efectele adverse fie s-au diminuat fie m-am obisnuit si nu le mai bag in seama.
Sanatate !


- bbarlea - 22-08-2006 01:17 PM

Hello,

Dupa inca cateva ture pe la neurologie mi-au spus ca leziunile care le am nu sunt in zone tipice pentru SM. E foarte posibil sa fie sindromul Behcet (tot o boala autoimuna), dar nu se exclude inca scleroza multipla. Citind despre Behcet nici nu stiu daca sa mi-l doresc sau nu. M-au trimis la reumatologie dar doctorita cea mai tare din parcare e la o conferinta in Peru. Sper sa nu crap pana se intoarce Smile
Cateva manifestari ale bolii Behcet:
- afta bucala recurenta
- leziuni recurente in regiunea genitala
- iritare a ochilor (uveita)
- uneori da complicatii neurologice cu demielizare, vedere dubla, modificari senzoriale, in cazuri grave poate da delir si dementa dar rar
- dureri articulare
- afectare a vezicii si rinichilor
- afectari a venelor, tromboflebite

Le-am avut pe primele 4.

Bogdan


- Clacla - 23-08-2006 09:43 PM

buna!ma numesc claudia am sm rr de 3 ani dar doar de 1 luna am descoperit,aveam ameteli,imi amortea mana,iar nu demult am facut nevrita optica...m am dus la un oftalmolog de acolo m a trimis la un neurolog trimitandu ma la randul ei sa imi fac rmn ul...daca nu imi venea nevrita optica care s a manifestat prin vedere incetosata,nici nu aflam ca am de fapt sm....oricum,ce vroiam sa va intreb este la locul de injectare voua nu vi se inroseste?mie da si foarte tare iar nu mi trece si sunt 2 saptamani...prima care mi a facut o la Bucuresti s a vindecat in 2 zile celelalte facute de mine sunt rosii si nu se vindeca....ma puteti ajuta cu un sfat?am pus si gheata dupa fiecare injectie dar degeaba....va multumesc si va doresc multa sanatate si multa credinta in DUMNEZEU


- Petru - 23-08-2006 11:50 PM

Buna Claudia !
Nu te lasa speriata, asta e betaferonul. Dupa a 4-5 suta injectie o sa vorbesti altfel.
Masezi locul injectarii dupa ? Eu am observat ca roseata ulterioara si vanataia corespunzatoare parca sunt mai putin suparatoare.
Vorbeste cu un medic sau asistenta care are experienta in tratamentul cu betaferon. Poate faci vreo greseala de alegere a locului sau tehnica de injectare.


Salut Bogdan!

SM nu este nici mai buna nici mai rea decat alta afectiune. Am si eu o prietena care peste 15 ani a stiut ca are sm. Diagnosticul s-a pus pe baza simptomelor si varstei. A facut si niste spitalizari. De curand a facut primul RMN si s-a constatat existenta unei singure leziuni. "Doctorita cea mai tare din parcare " in neurologie i-a infirmat diagnosticul de sm si i-a pus altul. Sa nu ma intrebi cum ii zice la noul diagnostic ca mi-a fost greu sa retin. Dezamagire, "n-am sm". Din pacate ceva tot are . Si sunt perioade cand se simte rau.
Daca te gandesti ca sunt persoane care cad secerate, fara sa fi avut macar semne ale vreunei afectiuni, vezi altfel existenta.

Sanatate sa fie la toata lumea !
Petru


- Clacla - 24-08-2006 09:05 PM

buna seara petru... da,masez locul dar degeaba tot mi se inroseste ...ma gandesc daca trebe sa mi fac injectia tot timpul ma umplu de locuri rosii pe aproape tot corpul ...se va vedea mai ales vara si parca ma simt prea bolnava...dar nu este chiar asa grav nu?nu este chiar o boala grava daca o prinzi din timp....si ii multumesc lui Dumnezeu ca am reusit sa o depistez...ce mai vroiam sa va intreb este voi aveti tremuraturi la maini sau cap{gat}?eu am si ma deranjeaza f mult mai ales cand sunt in sociatate ...va multumesc,,, clacla


- bbarlea - 25-08-2006 07:01 PM

Salut Petre,

Dupa 2 tomografe 5 rmn-uri si 2 operatii la urechea stanga ( m-au tratat dupa ureche Smile ) ar fi cazul sa imi gaseasca ce am. Daca mi-as face munca cum si-o fac unii medici, as fi zburat de mult in somaj. Cu cat o boala mai rara cu atat sansele ca sa fie tratabila sunt mai mici. Din pacate si in medicina ca si in orice al domeniu, totul se bazeaza pe profit, daca boala e rara, cererea e mica deci si profitul e mic pt companiile farmaceutice. Behcet e o boala si mai rara decat sm, daca pentru sm era un tratament, bun, rau dar era, pentru behcet treaba e si mai delicata. Mai am putin si cred ca ajung la al 10-lea diagnostic, bineinteles toate tratate cu succes de catre medicina romaneasca multilateral dezvoltata.
Sper totusi sa nu imi pierd vederea pana se hotarasc ce am.

Multa sanatate,
Bogdan


- Petru - 25-08-2006 10:46 PM

Buna Bogdan !

Medicii stiu ca nu stiu. Cu cat afectiunea e mai rara cu atat sunt mai derutati. Si la ei, ca in orice activitate, exista o rutina si o experienta acumulata pe cauzurile intalnite. Daca boala este rara, nici unul nu are suficienta experienta dar, isi dau cu parerea de cele mai multe ori aiurea.
Mai rar gasesti pe unul care sa faca ce mi-a facut mie regretetul dr. Ienistea acum 21 de ani. M-a chemat la el saptamanal cinci luni. Ma consulta, ma intreba, clatina din cap si spunea : "ma tu ai ceva dar nu stiu ce, sunt doctor batran dar tu esti bun sa te duc la studentii mei si sa-i pic pe toti."
Pana la urma mi s-a pus diagnosticul. Am aflat denumirea bolii si cam atat. Nu m-a ajutat asta cu nimic. Au inceput toti medicii pe care i-am vizitat sa-si dea cu parerea si toti "vindecatorii" sa se mire cum de nu m-am facut bine dupa "tratamentele lor garantate".
Am citit foarte multe despre sm. Si la ce mi-a folosit? Am aflat ca tot ce mi se petrece este ca in carte. Mare branza !

Sper ca-ti vei gasi alinare. A avea o afectiune comuna nu este o garantie ca te faci bine. S-au curatat destui din simple oculzii intestinale.
Pana la urma "ce ti-e scris pe frunte ti-e pus". Sunt destul de frecvente cazurile unor persoane care au dus o afectiune, chiar grava, in spate zeci de ani si au ajuns la varste respectabile.
Tin-te tare ! Petre


- kim - 28-08-2006 06:59 PM

Pentru Clacla,
Salut.Sunt Kim . Si eu am aceleasi probleme cu injectiile. Cind mi le fac la picioare ramin niste pete nu tocmai placute la vedere.Am pus si gheata le-am si masat usor, insa nimic nu are efect.Vestea buna e ca nu mai am frisoane. Cind am plecat la mare am inceput sa mi le fac in poponet,ca sa nu se vada la costumul de baie.Pina m-am bronzat tot auzeam comentarii pe plaja, si crede-ma , nu prea sunt o persoana careia sa-i pese prea mult e parerea celorlalti. Dar era cumva jenant.Dar totusi dupa aproape 2 luni de tratament mare lucru nu observ.Am aceeasi vedere incetosata parca merg mai greu , nu stiu ce sa zic .In ceea ce priveste paracetamolul, eu iau numai unul dupa injectie,chiar daca mi-au spus sa iau 2 inainte cu 2 ore si 2 la 2 ore dupa.Eu cam sint contra medicamentelor. La inceput am tremurat si eu , dar acum a trecut. Chiar tie ti-au spus sa faci injectia la o ora anume ?Mie mi-au spus sa o fac la ora 19, dar sint o pasare de noapte, ma culc la 12-1, si mi-as schimba ora , oare se poate?


- Clacla - 28-08-2006 08:39 PM

buna KIM eu nici la mare nu am fost din aceleasi motive daca imi iau costum din 2 piese se vad urmele de la injectii si mai bine...si eu am vederea incetosata si ameteli la paracetamol am renuntat am vazut ca si cu si fara tot asa ma simt ...da, mi au zis ca este bine sa fac injectiile la aceeasi ora cu o marja de 2 -3 ore..mi ar placea sa mai vorbim tu din ce oras esti?eu di brasov.Te pup si iti doresc multa sanatate


- Mar_ius - 29-08-2006 04:29 PM

Salut. Efectul betaferonului o sa apara dupa 4-5 luni de tratament.


- livana - 30-08-2006 09:47 AM

Salutare!

Despre un 'subect'  la obiect. Sper sa gasiti inspiratie si invataminte necesare si utile.
www.freewebs.com/matheea
Cititi si comentam impreuna..toti suntem in aceeasi barca

sanatate ! :yes:


- Mar_ius - 30-08-2006 02:42 PM

Program seminar vatra-dornei
22-25 septembrie 2006

Vineri – 22 septembrie 2006

* Sosirea participanilor

Smbt – 23 septembrie 2006

9.00 – 9.10 – Cuvnt de deschidere; prezentarea seminarului de ctre organizatori

9.10 – 9.40 - Prezentarea serviciilor SM din Marea Britanie- prezint un reprezentant al Societatii de Scleroz Multipl din Marea Britanie;

9.40 - 10.00 – Scleroza multipl - nouti n cercetare - prezint prof. dr. Ioan Pascu – Clinica de Neurologie Trgu-Mure;

10.00 – 10.30 – Sesiune de ntrebri/rspunsuri domeniul medical;

10.30 -10.45 – Pauz;

10.45 – 11.15 – Tratamentul actual n scleroza multipl – prezint d-na conf. dr. Rodica Blaa- Clinica de Neurologie Trgu-Mure;

11.15 – 11.45 - Sesiune de ntrebri/rspunsuri domeniul medical;

11.45 – 12.00 – Pauz;

12.00 – 12.20 – Nouti legislative- prezint un reprezentant al ANPH;

12.20 - 12.50 - Sesiune de ntrebri/rspunsuri domeniul juridic;

12.50 – 14.00 – Pauz de mas;

14.00 – 14.10 – Prezentarea programului de intervenie psihologic- Prezint psiholog Mihaela Mincic, Mirela aupe, Claudia Pop;

14.10 – 14.30 – nscriere pentru participarea la grupurile de suport;

14.30 – 15.00 – Grupuri de suport – formarea grupurilor;

15.00 – 16.00 – Intervenie psihologic – grupuri de suport;

16.00 – 17.00 – Intervenie psihologic – grupuri de suport.

Duminic – 24 septembrie 2006

9.00 – 9.20 – Programul naional de diagnostic i tratament al SM n Romnia- prezintat d-l dr. Vasile Titus Mihai- Spitalul Municipal Bucureti;

9.20 – 9.50 - Sesiune de ntrebri/rspunsuri;

9.50 – 10.10 – Modaliti de recuperare n scleroza multipl – prezint un fizio-kineto-terapeut;

10.10 – 10.25 – Pauz;

10.25 – 11.25 – Aplicaii practice – modaliti de recuperare n scleroza multipl.

11.25 – 11.40 – Tehnica autoadministrrii tratamentelor imunomodulatoare – Noutile anului 2006 – prezint d-na Nicoleta Ioanovici, asistent ef- Spitalul Municipal Bucureti;

11.40 – 11.50 – Pauz;

11.50 – 12.05 – Prezentare servicii SSMR;

12.05 – 12.35 - Sesiune de ntrebri/rspunsuri.

12.35 – 12.45 - Prezentare Centrul de Zi pentru persoane afectate de scleroz multipl din Oradea – exemple de bun practic- prezint d-na director Elisabeta Pop;

12.45 – 13.00 – ntrebri i rspunsuri;

13.00 – 14.00 – Pauz de mas;

14.00 – 14.20 – Terapii alternative n scleroza multipl – prezint d-na dr. Larisa Dumbrav- Spitalul Clinic de Copii Oradea;

14.20 – 14.30 – Sesiune de ntrebri i rspunsuri;

14.30 – 14.45 – Prezentarea Asociaiei de Scleroz Multipl din Romnia;

14.45 – 15.00 – ntrebri i rspunsuri.

15.00 – 15.10 – Cuvnt de ncheiere.

Program de vizitare a zonei

Luni – 25 septembrie

Plecarea participanilor


- Nik - 06-09-2006 10:39 AM

hello !

am si eu o problema de vreo doua luni de zile..astfel nu pot spune ca mi-a amortit piciorul..ci doar atunci cand il ating in zona muschiului femural simt o amorteala pe piele.
Am fost la ortoped care mi-a spus sa consult un neurolog pentru ca nu tine de el..mi-a spus ca ar putea fi afectat nervul senzitiv...ori o infectie de ganglioni ori altceva..

s-a mai intalnit cineva cu asa ceva? poate sa fie o SM ? maine am o consultatie la neurolog si sunt tare curios.
Starae generala la mine e ok..chiar fac sport ( alergari si sala ) si nu stiu ce sa cred...


- Nik - 06-09-2006 10:40 AM

hello !

am si eu o problema de vreo doua luni de zile..astfel nu pot spune ca mi-a amortit piciorul..ci doar atunci cand il ating in zona muschiului femural simt o amorteala pe piele.
Am fost la ortoped care mi-a spus sa consult un neurolog pentru ca nu tine de el..mi-a spus ca ar putea fi afectat nervul senzitiv...ori o infectie de ganglioni ori altceva..

s-a mai intalnit cineva cu asa ceva? poate sa fie o SM ? maine am o consultatie la neurolog si sunt tare curios.
Starae generala la mine e ok..chiar fac sport ( alergari si sala ) si nu stiu ce sa cred...


- Petru - 06-09-2006 02:47 PM

Buna Nik!

Ceva ai tu, ca amorteala de care te plangi este un simptom al unei afectiuni. Are dreptate otopedul, e treaba de neurolog.
SM se diagnosticheaza destul de dificil. Medicul se va gandi la multe ca sunt multe afectiuni neurologige care debuteaza astfel.

Nu te impacienta. Daca nu nimereste din prima ce ai nu-i un capat de tara. Tine o evidenta sticta a evolutiei, gandeste-te cum a inceput totul, cum s-a declansat. Cum bine stii, orice afectiune luata din timp nu-si va face prea tare de cap.

Sunt lucruri si mai rele decat sm. Doamne fere'!
Multa sanatate ! Petru


- alejandra - 07-09-2006 02:05 PM

Buna ziua la toata lumea.
Ma numesc Alexandra, am 24 de ani si am descoperit ca am scpleroza multipla prin februarie.
De atunci am trecut la un regim alimentar mai strict, am intrat si pe tratament naturist-iau catina, orz verde, borago, spirulina, polen granule, laptisor de matca-orice pt intarirea sistemului imunitar, pt ca asta e de fapt problema!
De curand am inceput sa iau cell renew-ajuta la regenerarea celulelor, omega 3-care nu ar trebui sa lipseasca din casa nimanui, nici macar sanatos!Ce sa va zic...din februarie nu am mai avut nici un puseu si ma simt bine...insa stiu ca avanseaza putin cate putin...
Maine ma duc la spitalul Militar pentru ca am fost admisa in programul cu Betaferon (de fapt cred ca e Avonex).Ideea e ca nu vreau sa incep tratamentul asta pt ca are reactii adverse in timp si de...e chimicala bagata in corp.
Stiu ca poate o sa vi se para ciudat ce va zic aici, dar eu am zis sa incerc, poate vreti sa incercati cu mine-eu m-am hotarat!
Nu stiu daca ati auzit de Joao de Deus-este un om magnific, din Brazilia, care poate vindeca boala asta si de fapt tot ce se poate (a vindecat vreo 200 de oameni de SIDA).
Exista si un documentar pe Discovery despre el. Ideea e sa crezi-e cel mai important.
Eu m-am hotarat sa ma duc acolo in octombrie. Stiu oameni care s-au dus cu cancer acolo si acum nu mai au nimic.
Multi oameni cu scleroza si-au revenit complet dupa 3 calatorii acolo, conteaza si cat de avansata e boala, insa de revenit si-au revenit!
E totusi vorba de a crede in Dumnezeu!
E mai complicat cu banii pt ca biletul de avion e vreo 1500 de euro, insa la cati bani dam si asa pe medicamente....
Daca vreti sa stiti mai multe ma puteti contacta pe adresa mea de mail, si poate mergem impreuna.
Se sta acolo 2 saptamani si rau nu poate sa ne faca. Eu cred ca se poate. Eu am vrut sa va zic si voua, ca sa stiti ca exista o sansa.
Mergem pe cont propriu, cazare gasim acolo sigur si ieftin...viza se ia usor, m-am documentat despre toate.Am intrt in contact cu un domn care are cancer si voi merge cu el, mai e cineva din Zalau care tot asa vrea sa mearga.
In mare astea sunt detaliile.
Daca va ganditi sa mergeti, dati-mi de stire.Eu ma duc oricum, insa e mai bine  cand suntem mai multi, asa departe!
Sa auzim de bine!


- Petru - 07-09-2006 06:44 PM

Iti doresc o excursie placuta!
Pentru unele informatii suplimentare poti lua legatura la sursa
Asociatia de SM Brazilia ABEM: http://www.abem.org.br/associadas/index.asp
Ai harta cu organizatiile de sm regionale. Sigur ai sa gasesti sm-isti din Brazilia care pot sa te informeze.
Succes!


- florea_miri - 08-09-2006 12:35 PM

Buna tuturor.Am fost si eu diagnosticata cu SM in 2003.Am tratat cu indiferenta boala si nu am crezut ca e chiar asa grav.Acum cateva zile am iesit din spital si sunt hotarata sa tratez cu seriozitate aceasta boala tampita.As vrea sa mai discut si eu cu cei afectati de SM.


- Clacla - 08-09-2006 09:24 PM

buna florea...ce simptome ai avut sau ai si de ce ai tratat cu indiferenta?acum faci tratament?eu sunt pe betaferon tu?


- Clacla - 08-09-2006 09:26 PM

buna am si eu o intrebareTongueot calatori in italia ca turist?as vrea sa merg cu avionul si nu stiu daca la vama ma lasa sa trec cu injectiile?oare ce imi trebuie ca sa trec?ce act?va multumesc


- Mar_ius - 08-09-2006 09:52 PM

Salut Clacla, si am aceeasi problema ca si tine, eu plec in Tunisia, cu avionu,si nu vad de ce nu avem voie sa iesim cu medicamentu.
Eu ma duc la doctor sa vad daca am nevoie de o hartie ce sa arate ca sunt bolnav. Dar nu cred ca avem nevoie de ceva sa aratam la vama.Acuma daca suntem bolnavi nu inseamna ca avem interdictie de iesire din tara.


- florea_miri - 09-09-2006 09:51 AM

Buna. Acum cateva zile am iesit din spital.Asta a fost al 3-lea puseu si abia acum am constientizat cat de bolnava sunt.Din 2004 nu am mai avut probleme, am incercat tot felul de tratamente: homeopatie, bioenergie, regimuri dar nimic nu vindeca total.La mine sunt probleme cu mersul numai la piciorul drept, furnicaturi la ambele maini in degete,plans la greu, obosela.In spital mi-a facut 5perfuzii cu solumedrol si acum mi-a dat medrol, aspacardin, vitmine.pot spune ca acum mi-am revenit cat de cat.Dar nu pot merge prea mult ce obosesc si trebuie sa ma odihnesc putin,abia apoi pot merge iar.


- Clacla - 09-09-2006 11:49 AM

salut! mersi de raspuns Marius ,sper sa fie totul ok eu peste o luna plec .Nu am zis ca am avea interdictie dar stiu ca sunt unele reguli la aeroport si nu lasa cu anumite lucruri..(forfecuta,parfum etc)ma gandesc ca (,)cu injectii nici atat si cred ca va fi nevoie de o hartie de la doctor .va trebui oare sa o si traduc in italiana?sau numai la romani ajunge sa o arat?eu ajung greu in Bucuresti sunt din Brasov de accea te intreb pe tine...SA MA ANUNTI CAND AFLI CEVA TE ROG mersi mult


- Clacla - 09-09-2006 11:49 AM

salut! mersi de raspuns Marius ,sper sa fie totul ok eu peste o luna plec .Nu am zis ca am avea interdictie dar stiu ca sunt unele reguli la aeroport si nu lasa cu anumite lucruri..(forfecuta,parfum etc)ma gandesc ca (,)cu injectii nici atat si cred ca va fi nevoie de o hartie de la doctor .va trebui oare sa o si traduc in italiana?sau numai la romani ajunge sa o arat?eu ajung greu in Bucuresti sunt din Brasov de accea te intreb pe tine...SA MA ANUNTI CAND AFLI CEVA TE ROG mersi mult


- Clacla - 09-09-2006 11:52 AM

pentru Florea Miri
BUNA! cum s au manifestat puseele la tine de a trebuit sa te internezi?acum faci tratament?ce fel?


- florea_miri - 09-09-2006 03:29 PM

Eu m avut probleme cu mersul, furnicaturi in maini,depresie


- florea_miri - 09-09-2006 03:31 PM

am stat 9zile in spital.Mi-a facut 5perfuzii si cat de cat mi-am revenit.acum iau medrol,aspacardin,vitamine,ranitidin si xanax pt depresie.Dar obosesc, nu pot merge prea mult.Si in maini tot mai ama furnicaturi.


- Mar_ius - 13-09-2006 03:39 PM

Buna ziua.


- cip - 16-09-2006 08:54 AM

Mar_ius, raspunde pe forum, nu pe PM si citeste regulile forumului. Ultimul avertisment.

Cip.
8)


- florea_miri - 16-09-2006 08:59 AM

Buna!Ia uitati ce am citit, pe cine sa mai credem?
Antioxidantii dauneaza grav sanatatii ``
Nicolae Leahu
Contine antioxidanti ce actioneaza sinergic, prin mai multe mecanisme. Pentru ca asigura protectie pe termen lung, protejeaza structurile celulare”. Cam asa arata in ultima vreme reclamele la diverse produse care incearca sa atraga clienti mizind pe efectul miraculos al antioxidantilor, protectori ai sanatatii si longevitatii. Incercind sa afle cit adevar se afla in spatele mult trimbitatelor virtuti ale antioxidantilor, jurnalistii englezi de la „New Scientist” au descoperit contrariul: dupa ce au stat de vorba cu o serie de specialisti, autorii anchetei au descoperit ca antioxidantii nu numai ca nu au efecte benefice asupra organismului, insa pot fi chiar periculosi pentru sanatate.

Interesul celor de la „New Scientist” a pornit de la citeva pachete promotionale cu suplimente nutritive, primite la redactia londoneza, si care aveau drept componenta de baza antioxidanti. Ideea de a sintetiza pe cale chimica substante cu proprietati antioxidante, similare cu cele existente in plante, si de a le aduna intr-o pilula-minune suna promitator. Din pacate insa, jurnalistii de la „New Scientist” au descoperit ca studiile clinice efectuate de-a lungul a 15 ani nu demonstreaza efecte benefice ale pilulelor ce au in compozitie antioxidanti. Mai mult chiar, beta carotenul, recomandat cu convingere fumatorilor pentru efectul sau anticancerigen, favorizeaza aparitia cancerului pulmonar, sustin cei de la „New Scientist”. De-a lungul anilor, foarte multi dintre jurnalisti, „ajutati” si de campaniile publicitare ale marilor firme de medicamente si suplimente alimentare, s-au multumit sa promoveze virtutiile antioxidantilor, fara sa verifice daca acestea sint sustinute in realitate de probe stiintifice. In perioada anilor ’50, cercetatorii au descoperit ca o serie de maladii (boli cardiovasculare, cancerul, diabetul, boala Parkinson, Alzheimer etc.) sint legate de daunele provocate de substante cu potential distructiv, denumite radicali liberi. Acestia sint compusi chimici care au electroni desperecheati, instabili, care cauta sa se stabilizeze prin oxidarea altor molecule – proteine, hidrati de carbon, lipide sau ADN. Reactiile chimice declansate astfel intretin un intreg lant al distrugerilor in cadrul celulelor. Distrugerile provocate de oxidare acompaniaza practic majoritatea, daca nu chiar totalitatea, maladiilor amintite mai inainte.

RADICALII LIBERI, RAU NECESAR // Specialistii reconsidera in prezent rolul radicalilor liberi, pe care ii considera „un rau necesar”, inevitabil, avind in vedere ca traim intr-o atmosfera ce contine oxigen, iar radicalii liberi sint un produs normal al respiratiei. Barry Halliwell, biochimist la Universitatea Nationala din Singapore, considera ca oamenii respira mult si, in consecinta, produc cantitati mari de radicali liberi. Expunerea la raze X, la ozon, la fumul de tigara, la poluarea atmosferica, la infectiile microbiene, creste cantitatea de radicali produsa in organism. In anii ’80 a aparut un potential inamic al radicalilor liberi. Cercetatorii au considerat ca cei care au un regim alimentar bogat in legume si fructe sint mai putin expusi la boli cardiovasculare, diabet, demente, cancer etc., maladii asociate cu nivelul crescut al radicalilor liberi. Explicatia era aceea ca antioxidantii din legume si fructe anihileaza radicalii liberi, pe care ii „hranesc” cu electronii de care acestia duc lipsa. Se stie, de asemenea, ca plantele verzi, care produc oxigen prin fotosinteza, „mustesc” de antioxidanti, deoarece sint vulnerabile la oxidare. Ca mecanism de aparare, pentru a contracara oxidarea, plantele produc un adevarat „cocktail” de antioxidanti. A aparut astfel ideea ca dietele care contin multe legume si fructe sint o solutie impotriva imbatrinirii organismului uman si impotriva bolilor degenerative. Radicalii liberi „rai“ puteau fi dintr-o data anihilati de antioxidantii cei buni.

PSIHOZA SUPLIMENTELOR NUTRITIVE // Ideea generoasa a fost preluata rapid de marii producatori de suplimente nutritive, trasformindu-se intr-o adevarata psihoza. Potrivit National Institute of Health (NIH), jumatate dintre adultii din SUA iau diverse suplimente alimentare, vitamine sau minerale si antioxidanti, in valoare totala de aproximativ 23 de miliarde de dolari anual. Numai in ultimul an, potrivit unui studiu de piata efectuat in San Francisco, vinzarile de preparate antioxidante au crescut cu 18%. Cei mai cunoscuti si utilizati antioxidanti sint vitamina E (tocoferol), vitamina C, doua clase mari de produse chimice denumite polifenoli (care cuprind si flavonoide) si carotenoide (betacarotenul si licopenul). Cea mai mare parte a preparatelor recomandate a avea efecte antioxidante contine una sau mai multe dintre aceste substante. In deceniul trecut, cercetatorii au efectuat o serie de studii privind eficienta acestor substante. Daca in laborator substantele pareau sa fie extrem de eficiente in anihilarea radicalilor liberi, in vivo, antioxidantii par sa fie neputinciosi. Multi dintre specialisti considera acum chiar ca administrarea de antioxidanti nu este decit o pierdere de vreme si de bani, sustin cei de la „New Scientist”. Mai mult, nu numai ca sint inutili, dar in anumite cazuri administrarea de antioxidanti poate fi nociva pentru sanatate! Este cazul beta-carotenului, recomandat in anii ’70 fumatorilor, pentru a contracara efectele daunatoare ale fumatului. In 1992, cercetatorii de la Centrul National al Cancerului din SUA au inceput studiile asupra eficientei beta-carotenului. Au fost inclusi in studiu 18.000 de persoane cu risc mare de a dezvolta cancer, fie ca urmare a fumatului, fie ca urmare a expunerii la pulberi de azbest. Timp de sase ani, jumatate din cei supusi testelor au primit suplimente de beta-caroten. Spre surprinderea specialistilor, incidenta cancerului pulmonar in rindul celor care primisera suplimente nutritive de beta-caroten a fost cu 28 la suta mai mare decit in rindul celor care nu luasera nici un fel de suplimente, iar mortalitatea a fost cu 17 la suta mai mare in rindul celor care au primit beta-caroten. „A fost un soc”, explica Hallywell.

BETA-CAROTENUL, NOCIV PENTRU SANATATE // „Nu numai ca nu fac nimic, dar au chiar posibilitatea de a face rau”. In luna mai a acestui an, expertii din cadrul NIH au ajuns la concluzia ca nu exista nici un motiv evident pentru a recomanda populatiei suplimente de beta-caroten, iar rezultatele experimentelor arata ca fumatorii trebuie chiar sa evite beta-carotenul.
Intr-o situatie similara se afla si antioxidantul cel mai popular din lume, vitamina E (tocoferolul), considerat la inceputul anilor ’90 un protector infailibil al sistemului cardiovascular. Daca in laborator, tocoferolul proteja colesterolul „bun” LDL de oxidare, in testele efectuate pe viu, cu suplimente de vitamina E, rezultatele au fost dezamagitoare. In afara unui studiu efectuat la Cambridge (CHAOS), in urma caruia tocoferolul a avut un efect pozitiv, multe alte teste nu au descoperit nici un efect benefic, ba chiar au ajuns la concluzia ca vitamina E creste riscul unui stop cardiac. Nici cancerul nu este stopat de vitamina E, asa cum arata studiul ATBC efectuat in Finlanda, si nici nu protejeaza impotriva maladiei Alzheimer. „Vitamina E nu este un antioxidant. Ea trebuie protejata impotriva oxidarii”, explica Angelo Azzi, biochimist la Universitatea din Boston, Massachusetts.
O alta substanta considerata a fi un antioxidant eficace, vitamina C, este la rindul ei contestata de specialisti.
Polifenolii, o alta clasa de antioxidanti, ceva mai putin studiata, actioneaza in mod benefic in laborator, insa nu se stie daca in organism au acelasi efect.

Noi teorii
>> Compozitia antioxidantilor din fructe si legume, care actioneaza benefic in laborator, nu poate fi reprodusa intr-o pilula. „Asta nu inseamna ca un aliment ce contine un anume compus si este benefic in laborator poate fi reprodus identic de un «nutraceutical» (compus de sinteza cu aceeasi compozitie chimica)”, explica Paul Coates, expert la departamentul de suplimente nutritive din cadrul NIH. Explicatia faptului ca cei care adopta un regim alimentar bogat in vegetale, vitaminele C, E, polifenoli, carotenoizi sint mai sanatosi este data de specialisti prin stilul de viata, mai sanatos si mai ordonat. De asemenea, legumele care contin fibre vegetale, explica Halliwell, ramin mai mult timp in tubul digestiv, necesitind un timp mai lung pentru digestie. La rindul lor, fibrele sint impregnate cu antioxidanti naturali.

Din cauza ca ramin mai mult timp in tractul digestiv, antioxidantii legati de fibrele vegetale au posibilitatea sa anihileze radicalii liberi, existenti mai ales in stomac, unde exista un mediu puternic acid. Spre deosebire de fibrele vegetale, pilulele suplimentelor nutritive nu pot face acelasi lucru, deoarece sint digerate rapid. Pe de alta parte, specialistii reconsidera in prezent rolul radicalilor liberi in organism. Astfel, Malcolm Jackson, biochimist la Universitatea din Liverpool, crede ca radicalii liberi stimuleaza productia interna de antioxidanti. Celulele sint stimulate sa-si porneasca singure mecanismele proprii de aparare impotriva radicalilor. „Celulele organismului sint foarte bine pregatite sa faca fata eforturilor minore, atit timp cit acestea nu sint excesive”, explica Jackson. S-ar putea chiar ca antioxidantii din alimente sa fie sanatosi tocmai pentru ca maresc productia de radicali liberi, iar suplimentele nutritive sa nu functioneze tocmai pentru ca, avind o concentratie prea mare de antioxidanti, determina o productie crescuta de radicali liberi.

Tocmai de aceea, sfatul specialistilor este ca in loc de suplimente nutritive sa includem in dieta alimente bogate in flavonoizi, vin rosu, ceai, fructe si legume, totul cu moderatie.
Ce parere aveti?


- cip - 16-09-2006 09:34 AM

Excelent si foarte util articol. Intotdeauna le-am explicat clientilor de ce sa foloseasca enzime, antioxidanti si vitamine vii. Kombucco Orientalis este o bautura vie ce contine enzime, vitamine si antioxidanti ce sunt obtinuti chiar de cei care isi prepara bautura. Un astfel de proces nu are legatura cu pastilele deoarece daca au ceea ce americanii numesc "shelf life" nu mai este viu. Ba mai mult, pastilele cu vitamine mai contin si alte chimicale precum arome si coloranti  :buck2:

La fel si cu Chippewa: am preferat sa aduc ceaiul sub forma de plante chiar daca concurecta cu pastilele este mare. Sigur ca este mai comod sa iei o pastile din flacon decat sa-ti prepari singur ceaiurile insa dupa cum bine a scris florea_miri, comod nu inseamna mai bine.

Citat:
antioxidantii nu numai ca nu au efecte benefice asupra organismului, insa pot fi chiar periculosi pentru sanatate.


Atentie insa ca articolul are o tenta de a blama toti antioxidantii. Parerea mea este ca orice substanta obtinuta in laborator nu are aceeasi valoare ca cea naturala. In natura nu exista antioxidanti si gata. Fiecare substanta activa vine insotita de sute de alte substante ce o ajuta pe aceasta sa se metabolizeze.

O sa va dau aici un exemplu banal: laptele din comet produce pietre la rinichi.
Laptele nefiert chiar si de la o vaca bolnava nu produce nici o boala unui organism sanatos.
Aceasta se intampla deoarece prin pasteurizare se prelungeste viata ("shelf life" dupa cum ziceam) produsului in detrimentul elementelor nutritive din produs. Este evident ca laptele nefiert se strica repede pentru ca are tot felul de enzime, vitamine si substante care il vor transforma in timp. Tocmai aceste substante sunt cele care il ajuta sa se absoarba in organism. Revenind, fara acestea, calciul din lapte in loc sa se absoarba se va depune.

Comerciantul a vazut si ca absorbtia calciului are loc in prezenta vitaminei D si a facut supliment de calciu plus vitamina D. Parerea mea? Cumparati patrunjel din piata si o sa aveti un sistem osos de invidiat la un pret mult mai mic. Calciul din patrunjel este de 1000 de ori mai eficient decat cel din suplimente. In plus patrunjelul are si antioxidanti naturali...

... si aici trebuie sa repet: nu blamati antioxidantii/vitaminele/anzimele naturale. Ceea ce sta pe raft e de blamat. Daca e valabil pana in 2009 si nu este atacat de bacterii ce sanse are organismul dv. sa-l digere? ... mai degraba sa-l depuna pe artere, in rinichi, vezica urinare, prostata etc. si ma refer aici nu doar la suplimente ci si la alimente.

La partea cu radicalii liberi un rau necesar am de zis doar atat: prea multi duc la cancer. Este normal ca se produc in organism insa un organism sanatos ii elimina fata de unul bolnav care-i acumuleaza.

Revenind la titlu nu cred ca "Antioxidantii dauneaza grav sanatatii" e unul potrivit. Mai degraba "Antioxidantii, vitaminele, enzimele si orice altceva produs in laborator dauneaza sanatatii". Titlul acela este pus special sa atraga cititorul dar articolul spune altceva in final.

Regulile naturii sunt foarte simple si se aplica la orice boala. Incalca-le si vei avea de suferit.

Sanatate!
Cip.
:wave:


- florea_miri - 17-09-2006 02:25 PM

Cip ai dreptate.Era vorba de substantele obtinute in laborator.Mie mi s-a recomandat sa iau vitamine(polivitaminizant)+calciu lactic, toate sub forma de capsule.Ce sa fac?Renunt la ele sau incerc sa le gasesc sub forma naturala?Dar ce mai e natural?Doar la curte sa le cresti singur si sa fii sigur ca nu are diverse ingrasaminte(azotati).Legumele si fructele nu prea mai au gust.Si totusi se cumpara.Nu inteleg de ce sa imi cumpar rosii cu gust de "nimic"


- cip - 17-09-2006 05:31 PM

florea_miri a scris:
Mie mi s-a recomandat sa iau vitamine(polivitaminizant)+calciu lactic, toate sub forma de capsule.Ce sa fac?Renunt la ele sau incerc sa le gasesc sub forma naturala?Dar ce mai e natural?Doar la curte sa le cresti singur si sa fii sigur ca nu are diverse ingrasaminte(azotati).Legumele si fructele nu prea mai au gust.Si totusi se cumpara.Nu inteleg de ce sa imi cumpar rosii cu gust de "nimic"


Da, si ca sa compenseze lipsa gustului acum exista Knorr, Galina Blanca si alte sute de produse numite "baza pentru mancaruri". Este groaznic ce se intampla: daca punem legume la mancare nu mai au nici un gust... toata sarea este iodata ... suntem niste animale crescute de societate fara drept de a alege.

Din fericire insa la noi in tara mai avem ceva sanse ca pe langa legumele fara gust sa gasim si legume crescute de tarani in curte. Ideea e sa nu le alegem pe cele mai mari si frumoase pentru ca dupa cum am mai scris daca parazitii nu se ating de ele or avea ei un motiv Wink . Mai bine luam legume ce sunt mai mici, care mai au si unele cu urme de insecte si vom vedea ca mai au si gust. Asta nu este insa un criteriu... este doar o idee si o parere a mea.

In occident oamenii au magazine speciale de produse organice iar unii si le cresc singuri chair daca nu au curte. Sunt informatii pe net in acest sens.

Patrunjelul din comert mi se pare bun si mai bine folosesti patrunjel daca ai nevoie de calciu. Se absoarbe mult mai bine.
Pentru alte vitamine poti face suc in casa cu un storcator eficient precum JACK LALANNE POWER JUICER. Nici un suc din comert nu este ca cel stors in casa. In plus, pentru a elimina si toxinele eu folosesc Kombucco cat mai des si cate o cura cu Chippewa pentru a-mi curata organismul deoarece este inevitabil ca fructele si legumele sa contine si ele chimicale.

Fructele si legumele le spal bine si le storc cu tot cu coaja si cotor. Storcatorul Jack Lalanne poate sa le stoarca integral iar cojile si cotoarele au si ele vitamine ce nu sunt in pulpa.

Nu fierbe fructele si legumele dar daca vrei sa-ti schimbi dieta pe una sanatoasa treci treptat de la una la alta.

Dupa cum am mai spus pe acest forum, un mediu curat si sanatos = 40% din sanatatea organismului iar 40% este hrana. Aerul si mancarea sunt "hrana" organismului.

Am citit si invatat multe despre sucurile din comert insa ma intereseaza informatii despre "100% suc natural obtinut din suc concentrat. Continut de fruct: 100%.". Ce este acel concentrat? De ce nu se scrie pe cutie ce contine concentratul de fruct? Nu se scriu ingredientele. Se specifica doar ca nu are zahar adaugat si nu contine conservanti.

Cip. :angel:


- roxana nicoleta - 17-09-2006 06:55 PM

buna la toti eu iau un antioxidant mi-l prepar in farmacie ,eu locuiesc in italia si aici chiar si neurologi recomanda acest antioxidant nu se vb de publicitate sau facut studi in canada din care reiese ca ajuta ,cel care eu il iau e tiobec de 200mg,eu sunt de acord sa se ia vitaminele pe cale naturala din fructe ,legume, dar si nu cred ca toti maninca suficiente fructe si legume pt aportu necesar,in general vitaminele nu se iau tot timpul se iau iarna o luna si inceput de primavara se fac cure pt ca dupa incep sa iasa fructele si legumele si putem sa le lua pe cale naturala


- Clacla - 20-09-2006 12:42 PM

buna Roxana ,ai dreptate in legetura cu fructele si legumele de pe piata,asta ar insemna sa ne facem noi personal o gradina!!ceea ce nu se poate!!in italia cum e ?tot gratis?injectiile?eu vreau sa merg in italia in torino nu stiu ce imi trebuie la vama?si acolo pot intra in programul lor de sm?astept raspuns te pup


- roxana nicoleta - 21-09-2006 06:20 PM

buna claca fructele nici aici nu sunt gratis glumeam ,eu cum am scris si mai sus fac cure si de vitamine si cind este timpu fructelor si legumelor nu mai iau vitamine,eu inca nu am intrat in programul lor pt a face interferon pt ca de abia ma-m casatorit si dureaza pina cind imi iese actele pe a mi putea face cartela sanitara dar ma vazut neuro de aici pt a intra in programu lor trebuie sa ai acte si cind ai acte ei fac investigatile necesare pt a fi siguri de diagnostic poti incepe un tratament,eu deocamdata nu vreau sa incep interferon sau altceva pt ca am facut duar un sigur puseu las pt viitor,acum incerc sa fac totul pt a nu lasa boala sa avanseze iau antioxidanti,am luat si omega 3/6 fac un pic de sport ,cum imi ies actele ma internez aici pt a repeta investigatile ,RMN si alte analize de singe.aici sunt saituri unde se vb mult de SM si unde iti raspund si dr sunt de foarte mare ajutor pt ca te poti afla noutati.clacla stiu ca poti lua cu tine injectile intr-o gentuta speciala pt ele ,poti calatori cu ele dar pt a te informa mai bine suna la politia de frontiera si ei iti pot da detali.pt a intra aici in program trebuie sa ai acte ,eu am noroc ca sotul meu pt ca este italian,dar vreau sa ti zic un lucru si aici este foarte mare birocratie ,poate in alte tari din europa e mai bine dar aici nu mi place.aici sistemu sanitar lasa de dorit pt investigati iti faci programare si astepti de iti vine rau daca nu ai cunostinte ,aici merge cu cunostinte nu cu bani.sper ca ti am rapuns la ce te interesa.te pup


- Clacla - 23-09-2006 04:45 PM

salut Roxana ....iti multumesc de raspuns mi a fost de ajutor eu nu am acte in italia imi faceam doar sogiorno ca turist pentru 3 luni voi vedea cum voi face...te pup multa sanatate


- bbarlea - 09-10-2006 02:06 AM

Dragii mei.

Multi de pe forum cred ca imi stiti povestea, iar pentru cei care nu o stiu fac un mic rezumat. In martie am avut un episod de vedere dubla si staza papilara cu hemoragie in flacara (habar nu aveam ce inseamna atunci dar medicii mi-au spus ca e foarte grav si ca pot orbi in cateva luni daca nu ma tratez). Am inceput cautarile am fost trimis la neurologie, apoi la infectioase, apoi la orl unde mi-au gasit o infectie la ureche si au operat-o (idioti, ar fi trecut cu antibiotice) mi s-au facut 2 tomografe si 5 rmn-uri, nu se gasea cauza. Se vedeau anumite leziuni pe rmn dar nu se stia ce e cu ele. Pana la urma s-a lansat suspiciunea de scleroza multipla. Mi-am facut analize la neurologie si mi s-a spus ca nu prea pare sm, ca leziunile nu sunt in zone specifice pt sm si ca sunt destul de mici. Am mai cerut parerea unui medic din Ungaria care a spus ca e demielirare fara nici un dubiu (dupa imaginile rmn). Nu mai stiam ce sa cred, eram disperat, ajunsesem mai mult de cat orice sa imi doresc un diagnostic clar oricare ar fi el. Pana la urma sefa clinicii de neurologie din Tg Mures, Doamna Balasa (fiica medicului Ioan Pascu) mi-a spus ca ea se gandeste la o vasculita si m-a trimis la neurologie la Doamna Georgescu (Spitalul Judetean Tg Mures). Aici am fost internat, mi s-au facut analizele de sange pentru auto-anticorpi si mi s-a gasit pozitiv testul pentru anticardiolipin, un anticorp care da tulburari de coagulare a sangelui. Mi s-a pus diagnosticul de Sindrom Antifosfolipidic sau Sindromul Hughes. Discutand cu medicii si cautand pe net am gasit multe relatari despre acest sindrom cum ca poate da simptome de scleroza multipla, ba chiar multi pacienti cu sindromul Hughes au fost initial diagnosticati cu scleroza multipla. De asemenea acest sindrom poate da o multitudine de manifestari neurologice si nu numai. Printre cele neurologice enumar pseudo-sm, pseudo-epilepsie, semipareze, parestezii, diplopie, tromboze.

Pentru cei interesati, puteti citi acest document despre manifestarile neurologice ale simptomului antifosfolipidic (pdf in lb engleza) http://rheumatology.oxfordjournals.org/cgi/reprint/42/2/200.pdf

Va scriu acestea pt ca am vazut ca sunt cateva persoane pe forum care au inca un diagnostic incert si poate ii ajut sa isi scurteze calvarul. Am trecut si eu prin asta, stiu cum e si nu doresc nimanui.

Iar pentru cei diagnosticati cu SM va multumesc pentru ca m-ati facut sa inteleg ca orice boala ai avea nu e sfarsitul lumii si ca nu esti niciodata singur. O vorba buna sau o incurajare la momentul potrivit iti ofera alinare unde nici un medicament nu te poate ajuta, in suflet...

La reumatologie am intalnit un om extraordinar, un barbat de 33 de ani diagnosticat cu poliartrita si spondilita anchilozanta. De abea putea sa se miste, are proteze in genunchi si solduri si are dureri crunte. Nu isi putea misca gatul sau coloana deloc. Pe omul acesta nu l-am vazut odata trist. Se culca zambind si se trezea zambind, e plin de umor si nu l-am auzit niciodata plangandu-se de conditia lui. Daca in primele zile prezenta lui imi trezea mila, acest sentiment s-a transformat in admiratie. Un om atat de tanar si in asa mare suferinta dar Dumnezeu nu a fost total neindurator si l-a inzestrat cu un psihic de invidiat. Omul acesta a avut curaj sa isi faca o familie, sa faca un copil sa mearga la munca in fiecare zi chiar daca ar fi putut sta acasa cu pensie de handicapat si chiar daca se deplaseaza ca Robocop (cum spunea el) si sa aiba curajul sa rada in fiecare zi despre el spunand ca e "handi-pac-pac" (handicapat). Pentru mine acest om e un exemplu de demnitate prin acceptare a unei sorti crunte cu zambetul pe buze. As fi vrut sa il puteti cunoaste cu totii, si poate astfel nu ne vom mai simti atat de disperati, chiar si cele mai crunte boli pot fi invinse zambind.

Multa sanatate,
Bogdan


- Mar_ius - 09-10-2006 02:57 PM

Bravo Bogdan, imi place cum gandesti............


- bbarlea - 12-10-2006 12:54 PM

Sindromul antifosfolipidic (syndromul hughes) descris prima data in 1983 este o boala protrombotica in care apar frecvent manifestari neurologice. Atacuri cerebrale, atacuri ischemice transidente, dureri de cap (migrene) sunt compicatii importante. Este foarte clar ca alte manifestari neurologice cum ar fi diplopie, prierderi de memorie, ataxie, simptome care mimeaza scleroza multipla, sunt foarte comune (bolnavii cu sindrome hughes pot avea chiar leziuni in substanta alba). O caracteristica esentiala a sindromului antifosfolipidic este raspunsul foarte bun la anticoagulanti, simptome ca durerile de cap si pierderile de memorie se imbunatatesc dramatic la administrarea de heparina sau warfarina.
Sindromul antifosfolipidic trebuie considerat ca un diagnostic diferentiat pentru scleroza multipla, si este o cauza importanta (si tratabila) a multor probleme neorologice.

Le recomand celor care inca nu au un diagnostic clar sa discute cu neurologul lor si sa incerce un test anti-ACL (anticardiolipin) si anti lupus coagulant.
costa cam 40 ron fiecare la un laborator particular. In spital cred ca se fac gratuit daca au reactivi.

Medicilor le-a luat 7 luni, in cazul meu, sa isi dea seama unde e buba.

Bogdan


- Petru - 12-10-2006 08:39 PM

Bogdan nu stiu daca sa te felicit sau nu ca in sfarsit s-a stabilit "care e buba". Pe o parte imi pare rau ca e totusi "o buba". Si mai stiu ca daca s-au chinuit sa afle ce este, mare scofala nu au ce sa-ti spuna.
Exista cum spui si tu o mare gama de boli cu localizari multiple in sistemul nervos central si semne multiple neurologice asociate cu suferinta nervului optic.  Din aceasta cauza si sm se diagnosticheaza foarte greu mai ales cand exista un tablou clinic atipic.
Pe de alta parte este bine ca poate fi facut un plan de tratament. Ceea ce sper sa se poata si sa existe mijloace prin care sa-ti imbunatateasca starea.
Ti-ai dat singur seama, sper, ca daca lasi boala sa te domine, sa te invadeze, iti va fi mai rau.

Cu toate ca n-ai sm inchei cu un moto:
" Poate ca eu am sm... dar, sm nu ma are pe mine "

(Alan Ralph Osmond , fondator al trupei The Osmonds , grup american pop de succes in ani 70, dupa diagnosticarea sm a declarat, intr-un interviu, motto-ul sau :
"I MAY HAVE M.S. . . . BUT, M.S. DOES NOT HAVE ME!" )


- Anad - 15-10-2006 04:24 PM

Sunt Anad (Dana). Va imbratisez pe toti (imi pot permite - va pot fi mama, daca nu chiar bunica)
Draga Ada, as vrea sa am si eu cartea "Retete Biblice...". Cum as putea sa mi-o procur? (Am dat tel. la informatii si editura SAMIZDAT nu figureaza in listele lor ; alte posibilitati nu prea am pt. ca nu ies din casa - sa tot fie vreo 9 ani).
Nu exista nici un fel de tratament alopat al SM care sa o vindece. Va sfatuiesc pe toti sa recurgeti la Mama Natura = VENINUL DE ALBINE, fara sa intrerupeti tratamentul cu medicamente. Bineinteles ca este foarte importanta hrana.  Mai ales cei care sunt la inceputul bolii vor avea rezultate mult mai repede si mai ample decat cei cu state vechi in meserie (cum as fi eu care am inceput sa recurg la "Farmacia Domnului" de-abia acum 3 ani, adica dupa 22 de ani de cand am aflat ca sunt "fericita posesoare" a SM). NU EZITATI !!!  ESTE SINGURA VOASTRA SANSA !!!  N-O PIERDETI !!!


- bbarlea - 22-10-2006 04:41 PM

Un articol interesant in lb Engleza:
"Can neurologic manifestations of Hughes (antiphospholipid) syndrome be distinguished from multiple sclerosis?"

Incerc sa traduc o bucata:

"Luate individual, doar prin investigatiile RMN, sindromul fosfolipidic si SM nu pot fi distinse una de cealalta. Majoritatea pacientilor cu sindrom fosfolipidic primar au reactionat foarte bine la anticoagulante orale, la cei cu SFL secundar prognoza a fost mai slaba. SM si SFL sunt foarte greu de diferentiat. O studiere atenta a evenimentelor clinice, evaluarea problemelor de tromboze sau avorturi spontane, localizari neobisnuite ale leziunilor de pe RMN si raspunsul foarte bun la anticoagulanti sunt semne unui diagnostic diferentiat. Noi crede ca toti pacientii suspectati sau diagnosticari cu SM ar trebui sa faca un test aPL si aCL (antifosfolipid si anticardiolipid)."

articolul aici: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10670410&dopt=Abstract


- bbarlea - 31-10-2006 09:56 AM

Cauzele degenerarii fibrelor nervoase in scleroza multipla au fost identificate
articolul aici (lb engleza): http://www.sciencedaily.com/releases/2006/10/061017084642.htm


- kim - 21-11-2006 01:24 PM

salutare. Nu am mai scris de mult pe forum. Dar am nevoie de un raspuns cit mai rapid. Am plecat din orasul meu in alt oras si am uitat sa-mi iau injectia de Beta . M-am intors a doua zi si am facut-o cu o intirziere de 24 ore. Care sunt cosecintele?


- bbarlea - 27-11-2006 08:00 PM

Aproape o treime din pacientii diagnosticati cu scleroza multipla au de fapt sindrom antifosfolipidic! Articolul aici: http://www.msrc.co.uk/index.cfm?fuseaction=show&pageid=736

ADMIN: Va rog postati continutul articolului aici, nu doar link-ul. Cititi regulile forumului!


- Petru - 30-11-2006 12:22 AM

Buna Kim !
Nu este prea urgent mesajul meu de raspuns dar spre sa mai fie util.
Ai sarit 24 de ore peste o injectie cu Beta ! Nu se face gaura-n cer. Daca citesti in carticica galbena din cutia de Beta, este prevazuta acolo aceasta posibilitate, de a nu face injectia la momentul si ziua necesare.
Reiei ciclul de o injectie la 48 de ore a doua zi.
Sanatate !


- Nina - 12-01-2007 12:32 AM

as vrea sa stiu mai multe despre tratamentul sclerozei multiple


- zana - 12-01-2007 12:56 AM

salut nina
sint zana din baia mare am 31 de ani si sufar de aceasta bboala. ce anume vrei sa stii.poti sa ma intrebi si ti voi raspunde la tot ce stiu. te pup


- Nina - 12-01-2007 10:45 PM

de unde se procura veninul de albine si cum se administreaza el?


- olga - 17-01-2007 05:03 PM

buna sunt olga,23, am citit mesajele de pe forum si am consultat diferite site-uri pe internet in legatura cu aceasta boala, asta datorita simptomelor pe care le am. As dori sa stiu daca e sau nu e. Sunt foarte speriata.
Totul a inceput acum sase ani, am avut o raceala dupa care a inceput sa ma doara capul in partea stanga ca o arsura, tot atunci a aparut si sangerare din nara stanga, mi-a amortit mana stanga total si degetele de la picioare. Amorteala a durat cateva luni dupa care a disparut nu acelasi lucru s-a intamplat si cu durerea de cap si sangerarea. In fine am trecut cu vederea aceste simptome gandindu-ma ca o sa treaca ele de la sine pana cand acum 4 luni am inceput sa am vederea incetosata, senzatie de ameteala si parca am impresia ca nu am aer in acele momente desi pot sa respir. Sunt agitata, anxioasa si nu ma pot concentra, uit repede. Aceste simptome nu sunt permanente, pot sa vad excelent ca peste o jumate de ora sa vad in ceata, in plus nu suport zgomotele, mi se zbat muschii.
Nu pot sa-mi dau seama ce reprezinta toate aceste simptome.
As dori sa stiu daca in scleroza multipla este neaparat sa existe o dizabilitate.
Va multumesc


- blue_eyes - 18-01-2007 05:41 PM

sfatul meu este sa consulti un medic. aici fiecare spune ce crede sau ce simptome are, cand stim ca SM se manifesta diferit de la caz la caz. nu mai sta pe ganduri, chiar si o luna pierduta inseamna mult(ai pierdut inainte si 6 ani). Du-te la medic. eu poate ca nici azi nu ma duceam daca nu m-ar fi incurajat familia si prietenii sa merg la spital. si in momentul asta vreau sa le multumesc. nu mai pierde timp, e in defavoarea ta!
Sa speram ca nu e SM, poate e ceva mai putin grav.
sa auzim de bine!


- Petru - 19-01-2007 12:23 AM

Buna Olga.
Nu inteleg exact ca vrei sa spui cu "As dori sa stiu daca in scleroza multipla este neaparat sa existe o dizabilitate."
Ce intelegi prin dizabilitate?
Pierderea partiala sau totala a unor functii ,in urma unei afectiuni, nu poate fi numita dizabilitate daca aceasta pierdere nu este si permanenta.
Multe afectiuni pot duce la pierderea sau scaderea temporara a unor functii, la aparitia unor simptome neplacute. Simpla raceala spre exemplu poate sa duca la pierderea apreciabila a capacitatii de efort, la scaderea functiilor motorii, la ameteli puternice. Dupa un tratament adevcat, revenirea este completa.
In sm aceste simptome de mai sus sunt frecvente. Din pacate , dupa ce ai un puseu, revenirea nu se face complet si in timp pierderile devin permanente si pot fi continue. Acesta este situatia cand se poate vorbi de dizabilitate.
Din fericire, dizabilitatea in sm apare cam dupa 10-15 ani de la diagnosticare, in majoritatea cazurilor. Cu noile tratamente existente, creste speranta ca aceasta perioada sa fie marita si formele de sm sa fie mai usoare.
Oricum, ceva a functionat prost. Nu mai sta. Tu esti prima care trebuie sa aiba grija de tine. Lasa orice si du-te la medici. Daca la ei nu ai speranta ca sa-ti spuna ce ai, la prieteni, rude si forumisti n-ai nici o sansa .
Sanatate!


- zana - 19-01-2007 05:46 PM

as dori sa aflu daca mai face cineva tratament cu glatiramer acetat.de fapt sint intr un studiu cu aceasta substanta . o injectie in fiecare zi de un an si 2 luni , la clinica recuperare neurologie cluj. . multumesc


- danutza - 28-01-2007 02:05 PM

buna


- cristal - 11-02-2007 11:13 AM

Buna! asi dori sa aflu mai multe despre ce alte tratamente naturiste se practica in acceasta parsiva boala,daca au dat rezultate,si despre costuri.Actualmente eu fac tratament cu betaferon (de 6 ani). Daca cineva vrea amanunte poate sa ma contacteze.Doresc tuturor suferinzilor de aceasta boala multa sanatate si rabdare cat se poate de multa.


- madalina - 11-02-2007 03:33 PM

va rog frumos vreau sa stiu cat mai multe despre aceasta boala Smile


- gherghina - 11-02-2007 05:34 PM

buna Marius am citit mesajul tau si cred ca in 15 ani de cand am fost diagnosticata cu S M am acumulat destule informatii despre SM daca te intereseaza ;ceva din ce stiu eu te rog contacteaza-ma pe forum Smile

ADMIN: cristal, gherghina, lodena sau madalina, foloseste un singur ID cand scrii pe forum; mai mult chiar, nu-ti raspunde singura la scrisori. Asa risti sa fii banata, adica sa nu mai poti scrie deloc. Foloseste contul 'cristal' pe care il ai deja.


- lodena - 11-02-2007 05:53 PM

draga madalina daca vrei sa stii cat mai multe despre sm cauta ma pe forum ca asa este foarte foarte mult de spus si de scris

ADMIN: cristal, gherghina, lodena sau madalina, foloseste un singur ID cand scrii pe forum; mai mult chiar, nu-ti raspunde singura la scrisori. Asa risti sa fii banata, adica sa nu mai poti scrie deloc. Foloseste contul 'cristal' pe care il ai deja.


- danutza - 12-02-2007 01:01 PM

Raspuns: Nu s-a vindecat nimeni de SM
« Raspunde #13 : 28 Ianuarie 2007, 19:19:39 » Citat

--------------------------------------------------------------------------------
Vitamine si saruri minerale necesare: vitaminele A, B (stari depresive), C, D, E (la miastenie, distrofie musculara progresiva, leuconevraxita), F (cu B6 si A), PP (psihoze, stari depresive), Ca, Mg (astenie, hiperiritare neuromusculara), Co (anxietate), Li (echilibrant psihic), Cu-Au-Ag (depresiuni fizice si psihice), Mn-Co (anxietate, pesimism), Si, hidratii de C, colina.Vitamina B1( singura vitamina care contine S, intretine troficitatea nervilor; cand acestia sunt lezati, intervine in procesele de regenerare, ea jucand un rol important si in metabolismul glucidelor. In nervi se mai gaseste si K, care, alaturi de Ca si Na, participa la transmiterea excitatiei. Afectiunile sistemului nervos trebuie rezolvate din faza incipienta, deoarece, spre deosebire de alte afectiuni unde celulele se pot reface si functiile unui organ bolnav pot fi preluate de alte organe, aici celula nervoasa odata distrusa nu se mai poate reface si nimeni nu-i poate prelua functia.Consumul de O2 are un rol important. Cand cantitatea de O2 din mediu scade, conducerea prin nerv scade pana la oprire. O fibra nervoasa consuma de 30 ori mai mult O2 decat o fibra musculara.Glucoza este de asemenea importanta pentru nervi. Din arderea ei rezulta energia necesara tuturor celorlalte arderi metabolice. Creierul, substanta cenusie, cu metabolismul ei crescut, are mare nevoie de glucoza. Rolul glucozei in nervi il poate lua un subprodus al acesteia: acidul lactic. Creierul pretinde insa doar glucoza si O2 mult. La cantitati mici de O2 apar: confuzie mintala, delir, pierderea cunostintei.De aceea, nu trebuie sa fumam, trebuie aerisite camerele, sa evitam poluarea. Plantele ofera mult O2.Cafeina din cafea are efect asemanator stricninei: dezinhiba scoarta, o scoate dintr-o anume inertie, favorizand si memoria. Exagerand cu cafelele, excitabilitatea scoartei poate creste foarte mult, aparand: tremuraturi, batai de inima, labilitate psihica.Alcoolul etilic, consumat in cantitate moderata, da reflexe ceva mai vii. Cand s-a depasit si „in vino veritas", isi fac aparitia: confuzia mintala, tulburarile de vorbire si de gandire, coma, paralizia, moartea.„Coenzima Q10" ajuta in vindecarea sclerozei multiple, bolilor psihice, schizoferniilor, bolii Alzheimer.Neuromion contine tarate de grau, orez, ardei, floarea-soarelui, macese.Contine: mioionizol, acizi grasi polinesaturati, magneziu, calciu, fosfor, substante antioxidante, flavonoide, antociani, vitamine, oligoelemente. in special opereaza in diabet la nivel neuronal. Ajuta in recuperari neuromotorii, nevroze, aterosleroza cerebrala.Substantele chimice (medicamentele) in cantitati mari lezeaza ficatul si drogurile ajung in creier. Apa are un rol vital pentru sistemul nervos, deoarece fiecare celula nervoasa este hranita prin sangele adus de cele mai inguste capilare (vasa nervorum). O hranire sanatoasa si un consum de apa suficient mentin rinichii si ficatul sanatosi, conditie esentiala pentru a reduce afectarea celulelor creierului (ce contine 90% apa) - acest organ atat de complex in ceea ce face, incat se poate compara cu universul.Pentru intarirea sistemului nervos:• Se consuma urmatoarele alimente medicament: caisa, gutuie, piersica, mar, portocala, pruna, capsuna (confort spiritual datorita pectinei), banana (contine serotonina care da calm si incredere), para, strugure, pruna uscata (nu afumata), stafida, smochina, lamaie, grapefruit, zmeura, afina, ananas, coacaze, pepene, maceasa, castana, nuca, ovaz, orz, orez, mei, praz, sfecla, telina, varza, laptuca, patrunjel, soia, fasole boabe (reconstituent), fasole verde, polen, miere (in special de tei), pastura, drojdii, suc de telina, ardei iuti (contin un hormon care da buna dispozitie: endorfina), morcovi, dovlecei, gulii, pastarnac, spanac, ceapa, putini cartofi si mazare verde, andive, broccoli, conopida, castraveti, hrean, masline verzi, usturoi, soia.Susanul este neurotrofic, ajutand in nevrite degenerative, neuroparalizii.Pe langa acestea se mai consuma anumite tipuri de peste, 2-3 oua (galbenus), ulei presat la rece.Aceste alimente-medicament ajuta la plasticitatea neuronilor, adica rebransarea inter-neuritica, ce asigura interconexiunea dintre celulele creierului, impiedicand imbolnavirea. Acizii esentiali ajuta la buna functionare a creierului. Acidul oleic stimuleaza concentrarea, memorarea si functionarea sistemului cardiovascular. Uleiul de masline contine mult acid oleic.Acizii grasi omega 3 intervin in mecanismul neurotransmitatorilor din creier. Lipsa lor produce depresie si capacitatea de memorare se reduce. Ceai de: calomfir (tonic nervos), arnica (stimul nervos, excitant). Argila este buna in caz de ticuri, coree, convulsii, spasme, epilepsie, paralizie. Se aplica cataplasme cu argila in strat de 1/2-1 cm, pe ceafa, pe coloana vertebrala si pe partea de jos a abdomenului. Se fac frectionari ale membrelor si ale coloanei vertebrale. Intern: 1 lingurita la 1/2 pahar cu apa zilnic, timp de 10-12 zile. Baile de boz pot ajuta contra retractiei tendoanelor. Tratament cu ciuperca .Sa se efectueze masaj terapeutic de la degetele picioarelor in sus, chiar si cu un aparat electric de masaj.Baile cu decoct de valeriana sunt bune in calmarea afectiunilor cardiace, a unor spasme, in linistirea sistemului nervos. Reduc excitabilitatea maduvei spinarii. Sunt bune in insomnii, inflamatii ale laringelui, astm, colici. Scad tensiunea arteriala. La o cada este necesar 1/2 kg valeriana.Baile cu flori de lavanda sunt bune in afectiuni cardiace si nevralgice, in reumatism, guta, paralizii, luxatii. invioreaza si excita nervii pielii si vasele sangvine. Pentru o cada este nevoie de 1 kg flori de lavanda.Baile cu extract de ace de pin au efect asupra afectiunilor cardiace, in insomnii, afectiuni neurologice, paralizii, inflamatii ale articulatiilor, degeraturi, abcese, obezitate, catar al cailor respiratorii, astm, boli pulmonare, dupa boli grave in convalescenta. Daca se pun 20-30 picaturi ulei de pin, aburii au actiune buna asupra cailor respiratorii. Se pot folosi si conuri de brad. Se fierb 1/2 h si se lasa 12 h.Pentru intarirea nervilor, se recomanda urmatorul suc: 100 ml suc de patrunjel + 300 ml suc de morcov. Pentru linistirea nervilor la copii recomanda ceaiul de salvie + argila. Tot pentru sistemul nervos, dadea urmatoarea reteta: se fierb 200 ml apa cu o frunza de muscata creata (Pelargonium roseum). Se bea cate o ceasca mica (de cafea) din acest ceai de 2 ori/zi.„Natura Medica" recomanda produsele : „Multifruct total forte", „Hercules" pentru sistemul nervos si „Proteinveg nr. 1 si 2" pentru reintinerirea organismului.Propolisul are efecte benefice in tulburarile neuropsihice (stres, astenie, migrena, insomnii, scleroza in placi, distrofie musculara progresiva, Parkinson, anorexie mentala). Dr. neurolog Wagner Jauregg spune: „2/3 din toti bolnavii de nervi nu ar ajunge in sanatorii daca rinichii lor ar fi sanatosi". Datorita rinichilor bolnavi, apar depresiuni, idei fixe. Se fac bai de sezut cu coada-calului, 20 min. (se foloseste coada-calului inalta, cu tulpini groase cat degetul, care creste in campii mlastinoase si pasuni alpine). Dupa baie, nu se sterge, se imbraca halatul de baie si se lasa corpul se transpire 1 h in pat. Se bea ceai din: urzica, coada-soricelului si coada-calului (pentru uz intern, se culege de pe ogoare, drumuri de tara si liziere) - cate o ceasca, dimineata si seara.Se recomanda reflexoterapia mai ales in caz de atrofiere musculara. Cei care nu au posibilitatea sa o faca la un cabinet specializat, pot sa o faca acasa cu ajutorul unui baston sau o coada de matura pusa pe doua carti mari si groase aflate la distanta de 30 cm. Se sprijina pacientul de un spatar de scaun si acesta va calca descult coada de matura, de la un capat la altul, pasind pe ea pe toata lungimea talpii, de la calcai spre varful piciorului. La inceput durata exercitiului este de 2-3 min. pentru ca eliminarea brusca a toxinelor sa nu produca reactii negative. Apoi, treptat, dupa 5 zile se mareste ritmul, ajungand chiar la 10 min. in final. Dupa vindecare se face acest exercitiu de 2-3 ori/saptamana. S-au obtinut vindecari in tot felul de boli, in special cele legate de stres. Se revitalizeaza organismul.


- lidia - 17-02-2007 05:09 PM

buna, ma numesc lidia si am o intrebare la voi. stie cineva in cat timp da rezultate tratamentul cu hidrocortizon pt ameliorarea simtomelor de sm - amorteli ale mainilor? multumesc!


- zana - 18-02-2007 11:05 PM

se presupune ca hidrocortizonul se administreaza in cursul unui puseu.rezultatele sint aproape imediate.dar cel mai bine ar fi daca ai face tratament cu imunomodulatoare de ex glatiramer acetat. daca vrei sa stii mai multe pot sa ti explic te pup dulce zana din baia mare de 31 ani.


- mitzica - 23-02-2007 01:52 PM

Buna, sunt cam noua pe aici, si as dori sa stiu si eu daca a facut cineva tratament cu heparina nefractionata in timpul sarcinii.Eu am rezistenta la proteina c activa (factor v leiden) si lupus anticoagulant.Am patru sarcini orite in evolutie. Va multumesc si astept raspuns


- lidia - 04-03-2007 07:08 PM

multumesc zana pt raspuns!
n-am mai intrat pe forum pt ca mi s-a parut ca nu e prea activ.
sunt interesata sa aflu mai multe despre modul in care actioneaza aceste imunomodulatoare asupra sm.
nu eu sunt in cauza, ci prietenul meu, desi inca nu stim sigur daca e sm sau nu pt ca vorbim de un singur puseu in timpul caruia a facut perfuzii cu metil prednison/hidrocortizon... si au trecut deja cateva saptamani, lucrurile merg spre bine, insa mi se pare ca ameliorarea simptomelor este destul de anevoioasa si nu inteleg de ce.


- Clacla - 09-03-2007 09:56 PM

buna! ma numesc claudia am descoperit ca am sm in august 2006 ,,,fac tratament cu interferon beta o data la 2 zile,,,as vrea sa stiu e cineva din brasov?as vrea sa vorbesc cu persoane care sufera de aceasta boala .pupici


- Mar_ius - 10-03-2007 07:42 PM

Salut
»
Buna Clacla. Eu am SM de 4 ani, si de 3 ani fac tratament cu betaferon. Si de cand fac tratamentu nu am mai avut niciun puseu.Sper ca si tie iti merge bine cu tratamentu.


- ion12 - 15-03-2007 07:58 PM

as vrea sa mi se spuna daca se poate un aparat rmn bun in capitala si daca rmn se face neaparat cu solutia aia !de ce va intreb ca mi s-a spus ca un rmn este 4 mil si cu solutie 8 mil???va multumesc anticipat pt raspuns!


- marius munteanu - 27-03-2007 09:07 AM

Buna,
Acum circa opt luni am fost diagnosticat cu sindrom antifosfolipidic. Nefiind femeie, nu pot sa-ti dau un raspuns direct a intrebarea ta, dar pot sa iti spun ca rezistenta la proteina C activata (APCR) este uneori asociata cu sindromul antifosfolipidic (SAFL), si deci s-ar putea sa nu ai factorul V leiden, care este o afectiune genetica, ci APCR dobandita. Eu insumi am fost diagnosticat cu Factorul V Leiden, dar analiza genetica facuta la Genetic Lab in Bucuresti a infirmat acest diagnostic. Pentru suspiciunea de sindrom antifosfolipidic mai trebuie facute cateva analize, si anume
-repetarea lupusului anticoagulant (LA) la un interval mai mare de sase saptamani dupa prima analiza;
-anticorpii anticardiolipinici (aACL);
-antiglicoprotina beta 2 GPI (aB2GPI), care dupa ultimele cercetari a devenit un element major in diagnosticarea SAFL.
Analizele se fac la spitalul Fundeni, la institutul de hematologie, dna dr Uscatescu.
Multa sanatate.


- Ingrid - 28-03-2007 08:28 AM

Buna Marius Munteanu!

As dori sa stiu si eu ce simptome ai avut tu si cat a durat pana in momentul diagnosticarii.
Eu sunt suspecta scleroza multipla.
Multumesc anticipat.


- marius munteanu - 28-03-2007 10:14 AM

Buna, ingrid
Am descris simptomele mele la sectiunea "Alte boli", se numeste "sindromul antifosfolipidic".
Multa sanatate


- galea_gabryela - 11-04-2007 04:59 PM

Buna! ma numesc Gabryela am 37 de ani , sufar de  S.M. de 2 ani , fac interferon cu AVONEX  chiar de 2 ani , ma simt bine... cu unele exceptii , sunt casatorita , am o fetita si merg inainte ca numai bunul dumnezeu ma poate ajuta. Daca doriti sa corespondam scrieti-mi.


- zana - 12-04-2007 09:48 PM

sigur ca da un rmn in cluj la clinica asro medica si costa 5 mil si cu solutia de contrast 6 mil jum.pe tine te avantajeaza pt ca un rmn facut corect costa si dureaza.succes.de la zana.


- zana - 12-04-2007 09:51 PM

buna gabriela sint zana. as dori sa te intreb doar in urma cu 2 ani sa declansat aceasta boala. de unde stii asta si daca sa presupus vreun motiv din a carui cauza sa declansat. sint zana am 32 ani si sufar si eu de acesta boala sint in tratament cu glatiramer acetat de 1 an si 5 luni.am zile bune si rele.in rest asa cum ai zis tu cu d zeu inainte .as dori sa vorbim.te pup.


- bbarlea - 25-05-2007 10:46 AM

marius munteanu a scris:
Buna, ingrid
Am descris simptomele mele la sectiunea "Alte boli", se numeste "sindromul antifosfolipidic".
Multa sanatate

Categoria "Sindromul antifosfolipidic" a fost mutata in sectiunea principala chiar langa Scleroza Multipla. Recomand tuturor celor sustectati de SM sa isi faca niste teste de sange pt lupus anticoagulant, lupus eritematos, sindrom antifosfolipidic. Se presupune ca intre 10 si 30% din persoanele diagnosticate cu SM au de fapt o alta afectiune.


RE: injectii cu COPAXONE - Guest - 22-07-2007 08:57 PM

Buna Monica,
Trebuie sa alternezi locul de injectie. Exista 8 locuri pt. injectare ai posibilitatea sa faci in fiecare zi, injectia in alt loc al corpului.
Succes.
Adi

monica a scris:
Buna. Ma numesc Monica, am 23 de ani si mi s-a pus diagnosticul de SM Recurent-Remisiva acum un an. Fac tratament zilnic cu Copaxone de cateva luni. As dori si eu sa stiu daca e vreo metoda sa nu mai fie asa de dureroase injectiile. Am senzatia ca mi s-a intarit pielea, parca intra mai greu acul pe masura ce trece timpul. Ma gandesc cu groaza ca am inceput doar de cateva luni si deja ma dor foarte tare injectiile. In ritmul asta cum o sa fie dupa cativa ani?




RE: scleroza multipla - Guest - 29-08-2007 03:30 PM

oameni buni, vreti ultima bomba? SmilePremieră - Vaccin contra sclerozei multiple
2007 08 17| de Georgeta Licsandru
Un vaccin contra sclerozei multiple a fost testat la oameni, în premieră, în Canada. La testele care au avut loc la Montreal Neurological Institute au participat 30 de bolnavi cu scleroză multiplă. Vaccinul experimental – numit VNT-3009 – a fost creat de specialiştii în biotehnologie de la compania americană Bayhill Therapeutics. Este vorba despre un aşa-numit vaccin terapeutic, destinat nu profilaxiei, ci tratării sclerozei multiple. Testarea acestui vaccin s-a dovedit lipsită de riscuri şi a determinat schimbări pozitive atât în sistemul imunitar, cât şi în sistemul nervos al bolnavilor, arată un material publicat în revista Archives of Neurology.
Scleroza multiplă este o afecţiune cronică progresivă, care afectează sistemul nervos central şi nervii vizuali. Afecţiunea se caracterizează prin dispariţia mielinei, substanţa lipidică ce înconjoară fibrele nervoase ale substanţei albe din creier şi măduva spinării. În asemenea cazuri, sistemul imunitar al bolnavului atacă şi distruge mielina. “Vaccinul VNT-3009 acţionează asupra acestor celule dezorientate ale sistemului imunitar, asupra acestor celule care atacă mielina. În sângele pacienţilor vaccinaţi s-a redus numărul celulelor care atacă mielina, iar ritmul de degradare a sistemului nervos central a scăzut”, afirmă coordonatorul cercetărilor dr Amit Bar-Or.
o veste buna


RE: scleroza multipla - Petru - 01-09-2007 08:46 PM

Acest vaccin mai este cunoscut si ca BHT 3009 - fac aceasta precizare pentru cei care vor sa caute pe internet mai multe.
Confirmarea ca VNT 3009 si BHT 3009 este acelasi lucru a dat-o si MS-Service Center din Germania.
In Romania este un program la Spitalul Colentina, tot de la firma canadiana Bayhill Therapeutics, cu BHT 3009.

Subiectul merita urmarit.


RE: scleroza multipla - Guest - 10-09-2007 05:25 PM

as vrea sa stiu si eu cate ceva despre sm mama mea e presupusa de sm iar eu nu sunt momentan in romania.as vrea sa ma ajutati daca se poate cu informatii despre tratamente si clinici din romania. va rog din suflet.mai este presupusa mama mea si de parapareza spastica va multumesc si astept raspuns.doamne ajuta.krisztina


RE: scleroza multipla - atheea - 05-11-2007 01:32 PM

Buna ziua.Am si io o rugaminte, prietenul meu are SM de 2 ani si face un tratament cu copaxone , as vrea sa stiu daca in urma acestui tratament boala mai avanseaza.Cine ma poate ajuta sa-mi dea mai multe informatii despre evolutia si riscurile acestei boli ? Si as mai dorii sa stiu daca starile de stres si suparari pot agarva boala. Cine doreste sa vb despre aceasta tema pt a ma informa si pe mine sa ma contacteze . Multumesc mult.


RE: scleroza multipla - moti - 08-11-2007 03:32 PM

Buna ziua
Sunt Moti, si am cateva nelamuriri.Am facut in dec 2005 un RMN cerebral si mi s-au gasit zone demielinizate; dupa ce s-a banuit ca am SM am fost si la Iasi si la Institutul de boli Cerebro-Vasculare Bucuresti unde au schimbat diagnosticul-au spus ca am vasculita cerebrala si sindrom Cogan(au spus ca leziunile vizibile la RMN nu sunt specifice pt SM).Am facut tratament cu medrol in 2 randuri-in febr si la sf lui martie2006.De atunci mi-au disparut ametelile(nu puteam sta in picioare, nici cu ochii inchisi-se misca totul cu mine, doar pe partea dreapta ma simteam un pic mai bine), nici nistagmusul nu mai exista, mai am probleme cu vederea(incetosata la ochiul drept) si am uneori senzatia de amorteala a creierului...Fac de atunci tratament cu Q10, pramistar, sermion(am luat si tanakan), betaserc si milgamma.Nu am mai fost la control dar nu stiu ce sa fac...imi e f departe la Bucuresti iar faptul ca m-am simtit mai bine, m-a facut sa pun sanatatea pe un plan secundar.
Stiti cumva la Iasi unde m-as putea adresa, deoarece as dori sa refac investigatiile sa mi se puna totusi un diagnostic clar... As vrea sa reiau investigatiile inainte de a avea o surpriza neplacuta...(pt ca la un moment dat medicii mi-au spus sa mai astept...ca nu se pot pronunta...?!-dar ce sa astept sa se agraveze boala?)
Si m-ar interesa daca folositi tratamente naturiste...pt ca as opta pentru ceva de genul acesta deoarece cu siguranta nu face rau nici macar unei persoane sanatoase...
Va multumesc anticipat si sa dea Dumnezeu sanatate la toata lumea


RE: scleroza multipla - Guest - 11-11-2007 03:26 PM

prietena mea cea mai buna a fost diagnosticata cu screloza multipla si vreau sa stiu cum se manifesta aceasta boala in timp, ce parti ale corpului vor fi afectate.va ror din suflet sa ma ajutati.Sad:(Sad:(Sad:(Sad:(Sad:(


RE: scleroza multipla - Guest - 08-12-2007 07:41 PM

ceau,eu sunt Adelina Mocan,am sa-ti povestesc putin despre cum a fost la mine:in prima faza am amortit pe partea stanga,apoi am inceput sa ma misc foarte greu cu partea dreapta a corpului,pana nu am mai putut sa merge nu am consultat nici un medic.Am facut in prima faza la fel ca si tine perfuzii cu cortizon si mi-am revenit mai mult decat complet,ba mai mult de atat ,medicii nu au stiut exact daca am sau nu pentru ca ma simteam si ma simt in continuare extraordinar de bine,dar analezele le-am repetat si acum fac tratament cu rebif,daca bine am inteles eu este ultimul tratament aparut.Faptul ca ti-ai revenit nu inseamna ca nu ai nevoie de tratament ,nu te lasa asa ca poate fi mai rau decat prima oara.Repet eu mi-am revenit extraordinar de compet,ca si cu nu as fi avut niciodata nimic.Te pup si multa bafta.


RE: scleroza multipla - Guest - 11-12-2007 11:36 PM

Mar_ius a scris:
Ma numesc Marius 24 ani, si sufar de scleroza multipla de 3 ani ,as dorii sa intru in legatura cu alte persoane care sufera de aceasta boala.
daca doriti sa vorbim sau va intereseaza ceva despre aceasta boala lasati un mesaj pe forum.


Buna Marius

Ma numesc Ana, iar surioara mea sufera de aceeasi boala ca si tine. As dori sa stiu daca urmezi un anumit tratament si ce fel de tratament si daca acesta a dat rezultate! ms


RE: scleroza multipla - Guest - 13-12-2007 12:26 PM

Salutare Ana, fac tratament de 4 ani cu betaferon. Si rezultate dupa acesti 4 ani de tratament sunt foarte mari.
In 4 ani de tratament am facut doar 2 pusee, si in primul an de boala in care nu am facut tratament am facut aproape 9 pusee. Deci.. sunt niste rezultate foarte mari.
Va doresc si voua si la toate persoanele cu SM, multa sanatate.


RE: scleroza multipla - Vizitator - 02-01-2008 10:38 AM

Buna tuturor,

Ma numesc Ela,am 23 ani, sufar de sm de la 15 ani, dar doar acum cateva luni am constientizat faptul ca sufar de aceasta boala neavand decat doua pusee pana acum.Sunt hotarata sa renunt la programul national, desi voi fi chemata in curand pentru comisie si medicamente.Voi merge pe tratament naturist si sunt convinsa ca voi avea rezultate bune .Pentru tratament naturist va recomand sa cititi articolele aparute in "Formula As".

Multa sanatate si curaj!


RE: scleroza multipla - mokanumihaela - 03-02-2008 08:33 PM

Buna Ela!
Nici eu nu am stiut de la inceput ca am sm.primul puseu a fost in luna 11.1999.Urmatorul in luna 02.2006 si la mica distanta in luna 07.2006 altul.Nu am mai avut nimic de atunci dar in schimb am luat in mod curent complexul de vitamine B,ginkgo biloba, niste tincturi din 10 plante si de vreo luna iau si olimpiq stemXcell.
Si chiar si asa,nemaiavand nimic in afara de un usor disconfort la piciorul stang de ceva timp am inceput de joi tratamentul cu betaferon.Nu am vrut acest lucru(vroiam la inceput cand am aflat de ce sufar si eram disperata) dar am fost sunata ca sa intru in program(eram trecuta pe o lista de asteptare din anul 2006).Am mai intrebat si eu si mi s-a spus ca acesta boala avanseaza oricum (cu efecte devastatoare uneori)asa ca am inceput injectiile cu betaferon.Acum ce-o fi o fi.....cu Dumnezeu inainte...


RE: scleroza multipla - dida v - 23-02-2008 07:36 PM

Buna tuturor
ma numesc Dida si sunt din tg-mures.Sunt suspecta de SM din noiembrie 2007.Totul a inceput cu ameteli foarte mari , pierderea echilibrului vedere incetosata, amorteli in maini picioare, ceafa si fata.........simteam ca imi aluneca pielea de pe fata, ca imi cad sprancenele. Am fost internata la infectioasa cu suspiciunea de meningo-encefalita. Dupa 4 zile de dexametazona si punctie lombara care a iesit neg. am cerut sa fiu externata. Cu ajutorul medicului de familie am fost internata la neurologie la dr. Balasa. Mi-a facut RMN( fara substanta de contrast-iar eu recent am auzit ca nu e relevant rmn-ul fara sunstanta) si a iesit ok dar sa il repet peste un an. Amortelile mi-au trecut anul acesta in luna ianuarie fara nici un tratament si brusc asa cum au si aparut. Am fost in ianuarie la timisoara pt biorezonanta.........nu stiu daca pot avea incredere-mi-au spus ca am o nevrita optica deci nu pot sa-mi inlature suspiciunea de sm. Acum cred ca o sa astept un nou episod ..........dar sunt optimista .........trebuie pt ca am o fetita de 5 ani pe care o cresc singura. As vrea sa iaun legatura cu cineva din tg-mures care are sm
Multa sanatate


RE: scleroza multipla - didi - 25-02-2008 03:44 PM

buna dida nu-ti pierde speranta ca o sa fie bine,eu am fost suspecta de sm din 2005 cu amorteli care apareau si dispareau ,cu 3 rmn+substanta facute care au iesit bine de fiecare data dar la sfirsitul anului trecut am facut o paralizie de la brau in jos dupa care mi-am revenit tot singura fara medicatie si cand am repetat rmn a iesit puncte demielinizate fiind in observatie de atata timp am intrat in program cu injectabil zilnic cu analize la fiecare 3 luni si pina cand nu stiu asa ca sunt foarte optimista pt ca am si eu am 2 copii de crescut
curaj si numai bine


RE: scleroza multipla - Petru - 27-02-2008 11:54 PM

Dida, dr Balasa e priceputa si a diagnosticat multi sm-isti.
Iar sm se diagnosticheaza greu in multe cazuri.
Tu ai grija de tine ca necazurile prin care ai trecut sunt semnale ale unor probleme. Tine legatura cu dr. Balasa.

SM se mai numeste si "boala cu 1000 de chipuri". A cunoaste alt bolnav de sm nu inseamna ca si vei gasi vreo asemanare.


RE: scleroza multipla - clau1974 - 06-03-2008 12:47 AM

Toata lumea vorbeste de efecte si de infranarea lor doar, insa nu de cauza, pe unul nu l-am auzit sa discute ce anume provoaca aceasta boala, cum sa se evite sa nu se mai ajunga la boala, sau sa se elimine cauzele daca s-a ajuns la boala deja.
Poate nu o exista solutie, dar macar sa se comenteze ceva despre asta.
Din moment ce sistemul imunitar distruge mielina din jurul fibrelor nervoase, este semn clar ca este o anomalie genetica, oare care este ?! S-au facut cercetari ? Scrie pe undeva ? Daca da, cum modificam asta ?!

Apropo de Alinad din Germania, creierul nostru este asa de complex si capabil de orice, incat e capabil sa simuleze orice, nu este exclus ca de frica, subconstientul ei sa-i induca false senzatii de SM.
Ca sa nu mai spun ca este capabil sa reimbrace fibrele cu mielina la o adica, pare fantezie, insa nu se stie. Poate comanda sistemului imunitar sa stopeze distrugerea, apoi un mecanism de refacere intra in actiune.
Parerea mea este ca ar exista o solutia daca am stii sa ne controlam creierul la nivel de subconstient, sau daca s-ar elimina cauzele macar si NU doar in a infrana efectele.
Scuzati viziunea mea futurista, insa sunt total impotriva suferintelor provocate de boli care nu se vindeca, asadar nu sunt adeptul chinului prelungit (asta nu mai este viata) ci al vindecarii pentru ca omul acela sa fie full sanatos sa-si poata duce o viata plina de bucurii si sanatoasa.


buna - ryco28 - 14-03-2008 01:19 PM

ma numesc ovidiu si m-ar interesa daca cineva stie in judetul sibiu se face tratamentul cu venin de albina.MULTUMESC ANTICIPAT


RE: scleroza multipla - Vizitator - 18-03-2008 01:45 AM

Am SM de 7 ani, primul an si jumatate am jucat footbal desi aveam boala aceasta si nu aveam voie sa depun efort.De 2 ani fac tratament cu Copaxone si ma simt destul de bine si pot chiar avea un servici acceptabil.Toti bolnavi cu SM trebuie sa fie cat mai optimisti,iar bolnavi care nu iau tratament permanent ar trebui sa se intereseze la alt neurolog,in Timisoara doamna dr. Simu Mihaela se ocupa cu aceste medicamente ar fi bine sa luati legatura cu ea toti cei cu SM din zona.Eu daca o cunosteam de la inceput si nu pierdeam vremea acum eram foarte bine dar si asa ma descurc.VA ROG SA FITI OPTIMISTI,NUMAI ASA PUTETI REUSI.Cu drag Cristi


RE: scleroza multipla - dolteanu - 01-04-2008 05:01 PM

Un medicament miraculos!!!Pentru relatii trimiteti mail la [reclama]


RE: scleroza multipla - Vizitator - 04-04-2008 08:44 AM

Sunt T din Constanta, am 30 de ani si 2 copii: unul de 4 ani si un bebe de 3 luni. Ar trebui sa fiu cea mai fericita din lume dar de 5 luni.......nu-mi mai arde. Totul a inceput in luna a7-a de sarcina cu o durere usoara la tampla stanga.In timpul operatiei de cezariana( anestezie in coloana) mi-a scazut tensiunea tare sub 5.. si apoi mi-a revenit la loc. Durerile de cap au crescut progresiv.
Am foat la un medic neurolog si am facut un RMN( cu subst de contrast) cu urmatorul rezultat:
- spatii lichidiene pericerebrale infra si supratentoriale cu dimensiuni normale;
- spatii perivasculare Virchow-Robin dilatate;
cateva spoturi hipersemnal T2 si FLAIR, hipersemnal T1, localizate in substanta alba parietala stanga, subcortical, negadolinofile;
- sistem ventricular simetric, cu dimensiuni normale;
- structuri mediane in pozitie normala;
- ingrosarea mucoasei sinusurilor maxilare si a unor celule etmoidale.
Concluzii:
Aspect IRM compatibil cu:
- cateva zone de demielinizare parietale stangi( etiologie ischemica??!!) - necesita urmarire!!
- sinuzita cronica maxilara si etmoidala.

La inceput nu am stiut despre ce e vb.
Asa ca am plecat la Bucuresti si am fost internata la neurologie la Obreja.
Mi-au facut un EKG-- care cica e " de pus in rama" ca e perfect si un EEG la care mi-a iesit " un puls crescut parietal stanga" dar nu modificari semnificative.
La analizele de sange era totul ok.. doar colesterolul 232 si normal trebuia intre 120 si 200. Teste de coagulare:
PT(sec) 11,2 ( normale 10-13,6/sec)
PT(intr) 0,99 ( 0,86-1,1)
PT% 101,1 (76-114/%)
APTT 23,8 (21,5-28/sec)
APTT(RATIO) 0.99 (0,87-1,14)
Dupa externare nu sunt lamurita in final daca am ceva sau nu, tratament nu am primit ptr ca alaptez dar m-au linistit ca nu e grav si ca de la nastere( cezariana) e o simpla durere de cap care va trece de la sine.
Nu am facut nici un efort in ultima perioada dar durerile continua ba devin suparatoare si pe timpul noptii. ma doare o zona cam de 5 cm/2 deasupra tamplei si radiaza in sus si nu stiu ce sa mai fac si ce medic as mai putea sa consult...
Si.. CE INSEAMNA ETIOLOGIE ISCHEMICA?????.. si DEMIELINIZAREA aceea?????
Va rog din suflet sa ma lamuriti si pe mine deoarece mi-e foarte greu sa umblu prin spitale cu un nou nascut dupa mine.
Mi-au mai spus ca trebuie peste 3 luni sa refac toate analizele de coagulare si ceva imunitar la Fundeni.... am si un biletel.
Eu nu pot crede ca nu e nimic, ptr ca ma simt mai rau, am ameteli continuu si acum simt ca amorteste usor obrazul stang. Am fost la 3 medici si cica nu e SM..... ca sunt eu paranoica si nu am nimic. Sunt foarte speriata si nici nu am bani sa mai merg la medici deoarece eu i-mi dadusem demisia de la birou si apoi am aflat de sarcina si am pierdut banii pe concediul acela.
Se pot pune simptomele pe seama sarcinii trecute si a oboselii cu alaptatul??
Aveti idee ce altceva ar putea provoca demielinizari..daca nu SM???
A! Pot face vre-o analiza ceva care sa certifice sigur daca e sau nu???? Dupa cate zile dau rezultatele apoi ( ca merg cu bebele dupa mine ca alaptez). Sunt groaznic de speriata nu mai dorm noaptea si cred ca o sa innebunesc. Nu stiu cum aveti atata putere sa mergeti inainte ca eu sunt in panica totalaSad:(Sad


RE: scleroza multipla - Vizitator - 12-04-2008 12:37 PM

SM sau poate Lyme??Ar trebui sa consulti un doctor pentru diagnostic diferentiat , dar in acelasi timp sa cauti singura sa afli mai multe despre lyme - la noi doctorii refuza sa creada ca exista si privesc ciudat cine incearca sa le spuna ca ar exista.


RE: scleroza multipla - Vizitator - 12-04-2008 06:58 PM

salut.Am o intrebare.Verisoara mea a facut tratament cu dexametazon acum 3 saptamani. Este vreo problema daca incepe acuma tratamentul cu cortizon?


RE: scleroza multipla - Vizitator - 14-04-2008 07:31 PM

salut! numele meu este Raluca si de doua saptamani sunt intr-o panica totala... Fratele meu are niste ameteli continue si tulburari de echilibru de vreo 3 saptamanai... Se mai adauga si vedere dubla si amorteli la nivelul degetelor mainii drepte. Si-a facut RMN, Doppler, analize la sange... Doppler-ul a iesit ok, ca si sangele.. La RMN s-au evidentiat niste petisoare albe... De doua saptamani este internat la Spitalul Obregia unde este tinut la perfuzii cu solumedrol. In ultimele zile se simte o oarecare amelioarare. Nu mai ameteste atat de tare si nici tulburari de echilibru nu mai are...Este oare posibil sa fie vorba de o scleroza multipla? Ma sperie ingrozitor acest gand...


RE: scleroza multipla - Vizitator - 16-04-2008 11:33 PM

Hm!! Nu era Lyme, dar am fost diagnosticata cu sindrom anticardiolipinic........ Partea proasta e ca nu s-a infirmat nici suspiciunea de scleroza multipla... dupa parerea medicilor. Adica sa le am pe amandoua????? mai stiti cazuri???
La analize a iesit lupusul coagulant clar pozitiv si alte analize naspa... dar si la RMN demielinizari.. Cred ca sunt cea mai ghinionista din lume. Sper sa ies din starea asta naspa ca innebunesc. In plus de la boala coagulanta am si o tromboza cerebrala ...... In plus am parestezii la mana stanga si la picior si de la un timp chiar au devenit suparatoare rau....... Sunt foarte suparata pe toti si pe toate...... De luni aduc iar copii acasa.. si va trebui sa ma adun si sa vad ce fac..


RE: scleroza multipla - otilia - 19-04-2008 06:52 PM

Buna . Ma numesc Otilia si sunt din Constanta.Am aceleasi simptome ca si tine T din Constanta. Simt o usoara durere in spatele tamplei stangi care apare si dispare. Am observat ca durerea apare mai ales cand sunt obosita sau nu dorm suficient. Dar seara cand pun capul pe perna simt un puls la ceafa. La fel simt si cand ma trezesc.Am facut un RMN si urmeaza sa merg la neurolog sa il citeasca.Rezultatum meu este aproape ca al tau T:
-spatii lichidiene pericerebrale infra si supratendoriale cu dimensiuni normale
-spatii perivasculare Virchow-Robin dilatate
-absenta anomaliilor de semnal decelabile la nivelul encefalului si ventriculilor
-sistem ventricular simetric, cu dimensiuni normale
-structuri mediane in pozitie normala
CONCLUZII:
Aspect IRM in limitele normalului, fara modificario patologice encefalo-ventriculare decelabile IRM pe examinarea nativa

Sunt curioasa ce o sa zica medicul neurolog.

Sunt speriata deoarece mama mea are leziuni demielinizate si e intr-o stare foarte grava.
Sanatate la toata lumea


RE: scleroza multipla - Vizitator - 01-05-2008 07:48 PM

Ingrid a scris:
Buna Carmen MAGDA

As vrea sa-ti spun ca am gasit un produs naturist care se numeste IMUNOSTIM.Este un produs natural din USA. Este pentru intarirea sistemului imunitar.De fapt pe aici a fost cam greu de gasit pentru ca nu il gaseam la farmaciile din apropierea mea. Nu mi l-a recomandat nici un doctor. Mi l-a recomandat sora mea care este farmacist. Nu stiu cat este de bun dar cred ca rau nu imi face. Trebuie sa-mi intaresc sistemul imunitar.In lipsa de interferon nu pot sa ma tratez decat asa.
Ma bucur sa aud ca esti bine. Chiar ma gandeam ca nu ai mai dat nici un mesaj pe forum. Sa-ti ajute DUMNEZEU sa te simti bine si tie si la toata lumea.
Ingrid

Buna Ingrid,
Nu cred ca e bine sa faci un tratament care sa-ti intareasca sistemul imunitar. Asta pentru ca SM este o boala autoimuna, deci sistemul imunitar propriu ataca mielina care imbraca nervii si prin care se fac transmisiile nervoase. Daca iti intaresti sistemul imunitar nu faci altceva decat sa-i dai apa la moara bolii sa intaresti ceea ce de fapt trebuie sa modulezi in asa fel in cat sa nu mai atace propriul corp.
Din ceea ce am vazut pe forum, e foarte multa lipsa de cunoastere asupra bolii, chiar si din partea unor medici. Eu zic ca e bine sa cautati pe Google la subiect MS (multiple sclerosis) si veti gasi multa literatura despre boala, pe situl Shared Solutions, veti gasi referiri la Copaxone, pe situl U.S. National MS Society *unde veti gasi f. multe informatii.
Eu am citit mult pentru ca am fost nevoita si asa am ajuns sa stiu mai multe. E greu sa faci o prezentare a ceea ce ai aflat pentru ca sunt f. f. multe de spus.
Puteti accesa situri ca http://www.mssocciety.ca ( in Canada exista multe centre puternice de cercetare pt. SM deoarece acolo boala este mult mai frecventa decat in Europa).
Oricum e o boala cu care nu e de glumit, trebuie luata foarte in serios si atunci poti trai cu ea intr-un echilibru si o buna intelegere ( mai mult din parte ta decat din parte ei).
Multa sanatate
Elena R.


RE: scleroza multipla - Anad - 04-05-2008 10:56 AM

Cristos A Inviat!
Sunt Anad,
Va trimit schema intepaturilor cu albine (sau cu venin de albine din fiola = 0,01 ml pt. fiecare intepatura x cu nr. de intepaturi din acea zi, injectie ce trebuie facuta INTRADERMIC aproape orizontal (acul se vede prin piele) pe o lungime de minim 0,5 cm pt. ca veninul sa nu iasa din piele afara - deci sa fie pierdut.
IMG_0001.jpg IMG_0002.jpg IMG_0003.jpg IMG_0004.jpg
IMG_0005.jpg IMG_0006.jpg
Va doresc succes. Intepaturile cu albine vi le poate face oricine.
Imi puteti trimite e-mail, putem vb pe messenger, imi puteti da telefon.


RE: - alina2008 - 05-05-2008 08:08 PM

florea_miri a scris:
Eu m avut probleme cu mersul, furnicaturi in maini,depresie

sunt in aceiasi situatie dar ca am inceput tratamentul cu betaferon de 1 luna si acum mi-au amortit mana stanga rau de tot si de la mana dreapta degetul mic nu mai stiu ce sa ma fac astept sugestii


RE: - alina2008 - 05-05-2008 08:21 PM

cit4mcd a scris:
salut.
sunt medic am 30 de ani si am descoperit ca ma scleroza multipla acum 4 ani.
ce te intereseaza in legatura cu sm?


as avea multe intrebari sunt sub tratament de 1 luna cu betaferon si de cateva zile mi-a amortit mana stanga , as vrea sa stiu mai multe despre pusee asta a fost un puseu


RE: scleroza multipla - dida v - 10-05-2008 08:12 PM

Buna tuturor!
Am repetat RMN-ul de cateva zile. Daca la cel facut in septembrie 2007 nu se vedea nimic acum se vede. Am o demienilizare de 3 mm. Medicul care mi-a facut RMN-ul mi-a spus ca sunt doua variante o infectie cu borelia sau SM.Analiza pt borelia mi-am facut-o si a iesit negativ.........deci .Luni am programare la doc Balasa.........sunt putin speriata.....cred ca de tratament. Si ma simt singura....am avut pe cineva drag care era langa mine dar s-a speriat de boala mea.........
Ma dor muschii de la spate, parca as avea febra musculara,simt o presiune intracraniana......si imi amorteste pielea pe fata. Toate astea sunt simptome de SM?
Va doresc tot binele din lume ! [/color][/b]


RE: scleroza multipla - Vizitator - 11-05-2008 04:48 PM

Buna
Ma numesc Natalia am 23 de ani, sunt noua pe aici
ma intereseaza daca cineva are aceleasi simptome ca si mine adica miscari involuntare ale miinilor si picioarelor, de 2 ani incerc sa aflu ce boala am si fara rezultate.
Am facut RMN, medicii miau spus ca nu am nimic, acum nu mai stiu la cine sa ma adresez.
Va rog daca cineva are ideie ce poate fi datimi un raspuns.


RE: scleroza multipla - Petru - 14-05-2008 01:53 AM

Natalia,

Ce spui tu sunt niste spasme musculare care pot avea mii de cauze. Ori, a cauta "acul in carul cu fan" e ceva greu pentru oricine. Medicii care te-au vazut au constatat ca n-au de ce te te umple de pastile, injectii sau perfuzii.
Pune mana si ai grija de tine, de somn, de miscare , de masa, de relaxare. Bolile isi gasesc mai usor cuibul in corpul slabit fizic sau pshihic.

Ce ai povestit despre neplacerile tale nu sunt semne de sm. Ti-o spune un sm-ist care are "vechine" de peste doua decenii, a avut ocazia sa cunoasca zeci de sm-isti si a cam citit multe din documentatia si site-urile sm.

Mai cauta, mai mergi pe la specialisti, mai intereseaza-te. Decat sa patesti ca cei care au fost tratati pentru ceva ani buni ca sa se constate ca au altceva, mai buna este aceasta incertitudine. Pana la urma, gasesti tu buba.


RE: scleroza multipla - Vizitator - 22-05-2008 11:23 AM

Mesaj: #300RE: scleroza multipla

Natalia,

Ce spui tu sunt niste spasme musculare care pot avea mii de cauze. Ori, a cauta "acul in carul cu fan" e ceva greu pentru oricine. Medicii care te-au vazut au constatat ca n-au de ce te te umple de pastile, injectii sau perfuzii.
Pune mana si ai grija de tine, de somn, de miscare , de masa, de relaxare. Bolile isi gasesc mai usor cuibul in corpul slabit fizic sau pshihic.

Ce ai povestit despre neplacerile tale nu sunt semne de sm. Ti-o spune un sm-ist care are "vechine" de peste doua decenii, a avut ocazia sa cunoasca zeci de sm-isti si a cam citit multe din documentatia si site-urile sm.

Mai cauta, mai mergi pe la specialisti, mai intereseaza-te. Decat sa patesti ca cei care au fost tratati pentru ceva ani buni ca sa se constate ca au altceva, mai buna este aceasta incertitudine. Pana la urma, gasesti tu buba.


Multumesc, asa am sa si fac, am sa caut mai departe, acum parca am mai mult curaj.


RE: scleroza multipla - dida v - 24-05-2008 05:38 PM

Buna tuturor. Am fost la dr. Balasa sa vada RMN-ul. Mi-a spus ca demienilizarea e mica doar de cativa milimetri si nu e patologica. Stie cineva daca se poate ca in timp sa creasca si sa devina patologica???????
Multa sanatate!


RE: scleroza multipla - nictatiana1 - 29-05-2008 08:29 AM

otilia a scris:
Buna . Ma numesc Otilia si sunt din Constanta.Am aceleasi simptome ca si tine T din Constanta. Simt o usoara durere in spatele tamplei stangi care apare si dispare. Am observat ca durerea apare mai ales cand sunt obosita sau nu dorm suficient. Dar seara cand pun capul pe perna simt un puls la ceafa. La fel simt si cand ma trezesc.Am facut un RMN si urmeaza sa merg la neurolog sa il citeasca.Rezultatum meu este aproape ca al tau T:
-spatii lichidiene pericerebrale infra si supratendoriale cu dimensiuni normale
-spatii perivasculare Virchow-Robin dilatate
-absenta anomaliilor de semnal decelabile la nivelul encefalului si ventriculilor
-sistem ventricular simetric, cu dimensiuni normale
-structuri mediane in pozitie normala
CONCLUZII:
Aspect IRM in limitele normalului, fara modificario patologice encefalo-ventriculare decelabile IRM pe examinarea nativa

Sunt curioasa ce o sa zica medicul neurolog.

Sunt speriata deoarece mama mea are leziuni demielinizate si e intr-o stare foarte grava.
Sanatate la toata lumea


salut! acum am vazut ce ai scris.... Ce sa-ti spun.... la tine nu au gasit demielinizari vad eu.. Intre timp de multe luni alerg la Bucuresti si tot nu am un diagnostic clar. Acea durere de tampla s-a extins... acum ma doare si obrazul si am parestezii faciale si mani si un picior. Am refacut RMN-ul la Bucuresti si am o "gaura" de 7 mmm in creier.. si alte demielinizari... Mi-au gasit si o malformatie a vaselor de sange si de aceea nu-s siguri daca e circulatorie problema sau e " doar" SM....
Ptr doar ce au gasit la tine... stai linistita... nu e grav.
nictatiana@yahoo.com


RE: scleroza multipla - Vizitator - 31-05-2008 07:50 AM

am 39 de ani si sunt diagnosticat cu SM de 3 ani;a debutat dupa un oreion cu oboseala cronica ,pareza pe partea dreapta,nevrita optica, pierderi de echilibru,amorteli periferice si tot tacamul dar a remis fbine dupa tratamentul cu cortizon- s-a asociat si cu o tiroidita Hashimoto -am slabit vreo 16 kg- in acest timp am urmat un tratament continuu de sustinere(vitamine,minerale,coenzima Q10,
ulei de peste,milgama,aminoacizi si mult sport in limita puterilor) si am reusit sa revincu aprox 10kg,mi-a revenit forta in trenul superior,singura problema a ramas cu picioarele care ma lasa cam repede la efort,dar de vreo 3saptamani acuz dureri mari abdominale si spasticitate a abdomenului(asta dupa o infectie la un deget),a revenit oboseala si nu stiu ce ar putea urma in viitorul apropiat;am uitat sa mentionez ca am o forma atipica cu o singura leziune in zona sylviana stanga in rest am prezentat simptomatologia ca la carte
daca a mai prezentat careva simptome de acest gen astept informatii cu multumiri anticipate


RE: scleroza multipla - Vizitator - 05-06-2008 01:31 PM

buna sunt o sora de suferinta dea voastra am sm de 4 ani mia fost tare greu cand am realizat ce boala am dar multumesc lui d zeu am avut familia langa mine
.mi ar lace sa vorbim despre noi sa ne incurajam ca avem o boala tare urata eu fac avonex de trei ani puseu tot am facut dar eu ma consum din orice pun totulla suflet si asta ajuta boala sa inaiteze mai repede va doresc sanatate multa si curaj


RE: scleroza multipla - Vizitator - 05-06-2008 01:45 PM

buna sunt angela am 35 ani si am sm de 4ani sunt foarte speriata ma gandesc ce va fi in vitor sanatate la toata lumea


RE: - alina2008 - 05-06-2008 09:13 PM

zana a scris:
buna gabriela sint zana. as dori sa te intreb doar in urma cu 2 ani sa declansat aceasta boala. de unde stii asta si daca sa presupus vreun motiv din a carui cauza sa declansat. sint zana am 32 ani si sufar si eu de acesta boala sint in tratament cu glatiramer acetat de 1 an si 5 luni.am zile bune si rele.in rest asa cum ai zis tu cu d zeu inainte .as dori sa vorbim.te pup.


as vre sa vorbim daca se poate adresa mea de mess este " tadela2002" am inceput de cateva zile tratamentul cu copaxone dupa ce am facut tratament cu betaferon medicul s-a hotarat sa-l schimbe deoarece nu isi facea efectul , am facut un puseu Shy


RE: scleroza multipla - Vizitator - 06-06-2008 10:02 AM

buna sunt angela as vrea sa intru si eu in formul vostru amsm de 4 ani dar totusi imi este frica si acum fac avonex de 3ani pusee am facut mai mereu cred ca si starea mea e de vina .durerea este ca nepasarea doctorilor de boala noastra e tragica se uita la noi parca am fi nebuni .norocul nostru este ca ne mai incurajam noi intre noi si familia pe care o avem alaturi.as dori sa putem vorbi despre boala noastra am mai luat multivitamine pana acum pt boala noastra voi ce ati mai luat ce medicamente ?incerc sa maninc cat mai sanatos ,incerc sa ma tin tare sa nu fac o depresie dar totusi imi este frica de ce va fi in vitor sanatate la toata lumea


RE: scleroza multipla - Vizitator - 07-06-2008 10:44 AM

bine v-am gasit fratilor de suferinta ! ma numesc vasilica , am 42 de ani si am fost diagnosticata cu sm in 1997 ,la mine aceasta boala a inceput prin amorteli ale mainilor ,imi scapau picioarele de la genunchi iar dr pe care il aveam atunci ma aburea cu anemia de primavara pana intr-o zi cand pur si simplu am cazut din picioare am facut o tetraplegie flasca cu indiferenta plantara bilaterala cu ROT bicipitali vii dar stiloradial abs si la MI,tulburari respiratorii,retentie urinara ,eram varza cum se spune ,dar am avut noroc si mi-am revenit in prezent merg pe picioarele mele la fel ca inainte . Am facut numeroase pusee 2-3 ani am stat mai mult in spitale . Am facut RMN in 1997 unde spune ca aspect RMN cerebral normal si rectitudinea coloanei cervicale si s-a pus diagnostic de sm ,in 2003 am facut un RMN la tg mures cel anterior il facusem la bucuresti de data aceasta mi-au pus diagnosticul de mielopatie vertebrala iar la rmn scrie asa IRM cranian cu sectiuni multiplanarein ponderatie T1,T2,PD si Flair nu pune in evidenta modificariale intensitatii semnalului la nivelul substantei cerebrale;ex IMR la nivel de col. CDL deasemenea nu pune in evidenta modificari ale intensitatii semnalului la nivel medular. Va rog care aveti cunostinte sa-mi spuneti si mie care e diferenta intre sm si mielopatie vertebrala pt ca nu m-a lamurit pana acum nimeni . Mentionez ca fac tratament in prezent doar cu vit .


Intrebare - Giana - 08-06-2008 08:14 PM

Buna !
Te-am gasit pe net cautand date despre Joao din Brazilia.
Ai fost la el, poti sa-mi spui daca a dat rezultat tratamentul facut de Joao ?
Eu am o sora care are scleroza multipla si sunt foarte ingrijorata, caut pentru ea fel si fel de remedii.
te rog mult, raspunde-mi, daca poti pe adresa mea de email geo_dumi@yahoo.com

Iti multumesc mult,


RE: scleroza multipla - didi - 09-06-2008 09:50 AM

buna VASILICA esti una dintre putinele persoane care m-a incurajat as vrea sa discutam mai multe pt ca eu am patit cam la fel ai o adresa de e-mail?


RE: scleroza multipla - Vizitator - 09-06-2008 04:21 PM

buna didi ma bucur ca am reusit sa te incurajez si ca vrei sa discutam mai multe despre problemele noastre Smile
fii optimista !


RE: scleroza multipla - lili - 10-06-2008 05:58 PM

care este adresa clinicii de neurologie din Tg-Mures?si nr. de tel. al dnei dr.Rodica Balasa?sunt suspecta de SM.


RE: - alina_c - 11-06-2008 09:11 AM

salut Marius! povesteste-mi ce simtome ai avut, cate zone de demineralizare, cu ce faci tratament, recomanda-mi si mie un doctor bun pe acest diagnostic in Bucuresti. cum te simti dupa 3 ani de sm. Eu sunt foarte speriata , am doar o singura zona de 5 mm.


RE: scleroza multipla - Vizitator - 12-06-2008 10:03 AM

buna cine face avonex si cum va simptiti dupa el .il fac de trei ani si acum mi iau paracetamol si am inteles ca ar trebui sa se invete corpul cu avonex si sa nu mai luam paracetamol voi ce ziceti sanatate la toata lumea


RE: scleroza multipla - Vizitator - 12-06-2008 02:15 PM

draga Lili , adresa clinicii din Tg. Mures nu o mai stiu dar am un nr. de tel. al d-nei dr. Balasa Rodica 0265.218.054


RE: scleroza multipla - lili - 12-06-2008 08:13 PM

Multumesc!sunt suspect SM de un an,am fost la clinica Colentina din Bucuresti,nu s-a putut pune diagnosticul,au aparut simptome noi,iar incertitunea diagnosticului ma omoara cu zile,colac peste pupaza colegii mei de serviciu au aflat diagnosticul si nu rateaza nici un moment in a ma jigni mereu('aia e nebuna')si a ma marginaliza complet.


RE: scleroza multipla - Vizitator - 13-06-2008 12:04 PM

CE MEDICAMENTE MAI LUATI PT SM INAFARA DE INTERFERON.LILI BOALA NOASTRA SE MAI NUMESTE SI LEUCONEVRAXITA POATE STI SI MIE MIA FOST RUSINE PRIMA DATA CAND AM AUZIT ,DAR ASTA E VIATA TREBUIE SA GANDIM POZITIV ALTI SUNT MAI BOLNAVI CA NOI BINEINTELES CA NICI BOALA NOASTRA NU ESTE USOARA ,SANATATE LA TOATA LUMEA


RE: scleroza multipla - Vizitator - 14-06-2008 01:44 PM

Nu trebuie sa-ti fie rusine pt ca ai sm , nu din vina noastra avem aceasta boala iar cei care ne cred nebuni sunt oameni fara cultura pt ca nu stiu notiunea cuvantului nebun si in plus nu stiu nimic despre aceasta boala .Sa-i fereasca D-zeu ! Capul sus si fi tare Lili demonstreazale prin comportamentul tau ca esti mai normala decat ei si nu da curs barfelor ,ignorai .Sanatate multa si sa auzim de bine .Ia legatura cu dr. Balasa Rodica ti-am dat nr de tel (si eu am fost la ea )sau pot sa-ti recomand pe dr. Simu Mihaela din TM e foarte buna tel 0256 492 885 sau 0256 463 001


RE: scleroza multipla - lili - 25-06-2008 06:23 PM

Buna tuturor!Gandirea pozitiva,optimista,vindeca orice boala pe jumatate.Fiti veseli cat mai mult timp,viata e scurta si merita traita la max,din plin.Poate a-ti auzit de efectul''Placebo'',multe boli s-au vindecat sau ameliorat considerabil prin AUTOSUGESTIE.Starea de bine,veselia nu dau voie bolilor sa se apropie si le indeparteaza cat de cat pe cele existente.Va doresc tuturor multa sanatate,asa cum imi doresc si mie,fiti optimisti,ganditi pozitiv si totul va fi bine.Cu stima si respect,Liliana ARShy


RE: scleroza multipla - Vizitator - 28-06-2008 04:32 PM

cine stie pt persoanele cu handicap la ce banca se poate face imprumut in bucuresti va multumesc sanatate la toata lumea


RE: scleroza multipla - breese - 03-07-2008 02:56 PM

Oare sa fie chiar scleroza multipla?

Stau, ma uit, citesc toate articolele despre scleroza multipla si nu stiu incotro sa ma indrept. Am 38 de ani, povestea mea a inceput de la 26 de ani.cu tulburari de vedere, dureri de cap(ma tzintuiam la pat cu zilele), blocari si pierderi de memorie,ameteli(pana la lesinuri), greturi..etc..am umblat la spitale..(suspect de meningita), in final au trecut si fara medicamente, dupa 2 ani, din nou aceleasi probleme(medici,-diag.migrene), la 32 de ani. pe langa toate cele, am ramas cu mana stanga intepenita(calciu) dupa 3 saptamani mi a trecut. la 35 de ani din nou mana inteepenita(fizioterapie), nou nascut.de vreo 2 ani, starile mele au devenit tot mai dese, durerile ca durerile(maini, picioare), dar lesinurile ma dau gata.nu conta ora, nu conta starea mea, nu conta nimik. in tot acest timp toate astea le am pus pe oboseala, stres, si altele. In urma unor implanturi dentare, au inceput dureri de urechi, m am prezentat la ORL si m am captusit cu diag. hipoacuzie neurosenzoriala f. medie (sa nu va imaginati ca am fost la 1 medic.)si am cerut "din nou "un bilet de trimitere de la medicul de familie la neurologie,. am ajuns intr un tarziu cu pericpetii la neurolog la cabinet privat. Am nimerit un neurolog bun,analize, alea alea si un RMN (in urma povestirilor mele) in luna Mai,in care scrie: leziuni demielinizate? ischemice? fr.stanga -1.3 cm fr.dp-1 cm, la al doilea RMN in luna Iunie 2008,-fara modificari a leziunilor cerebrale gasite la RMN din luna Mai.Eram in ceatza si la primul RMN, dar la al doilea ce sa mai spun? confuzie totala.Acum stau si astept, ptr ca neurologul nu confirma si nu infirma diag. de scleroza multipla..ce as putea sa fac? unde sa ma duc? nu am nici un tratament, in afara de betaserc(med.dat de ORL).Poate voi prieteni imi puteti da un sfat, corect o parare.Multumesc


RE: scleroza multipla - Vizitator - 10-07-2008 06:38 PM

lili a scris:
Multumesc!sunt suspect SM de un an,am fost la clinica Colentina din Bucuresti,nu s-a putut pune diagnosticul,au aparut simptome noi,iar incertitunea diagnosticului ma omoara cu zile,colac peste pupaza colegii mei de serviciu au aflat diagnosticul si nu rateaza nici un moment in a ma jigni mereu('aia e nebuna')si a ma marginaliza complet.


baga-i undeva si gata...si eu sunt la fel. nu stie nimeni despre mine si de boala mea. Tot timpul am reusit sa evit sa discut aceasta problema cu colegii de lucru, chiar si cu apropiatii.
AM SM de 4 ani si nu am avut decat 2 sau 3 pusee foarte slabe. Fac trat. cu betaferon la fiecare doua zile.
Pana acum totul este ok, simt un pic de amorteala la picior.

Inca o data, nu lua in seama ce spun colegii.


RE: scleroza multipla - Vizitator - 10-07-2008 06:46 PM

breese a scris:
Oare sa fie chiar scleroza multipla?

Stau, ma uit, citesc toate articolele despre scleroza multipla si nu stiu incotro sa ma indrept. Am 38 de ani, povestea mea a inceput de la 26 de ani.cu tulburari de vedere, dureri de cap(ma tzintuiam la pat cu zilele), blocari si pierderi de memorie,ameteli(pana la lesinuri), greturi..etc..am umblat la spitale..(suspect de meningita), in final au trecut si fara medicamente, dupa 2 ani, din nou aceleasi probleme(medici,-diag.migrene), la 32 de ani. pe langa toate cele, am ramas cu mana stanga intepenita(calciu) dupa 3 saptamani mi a trecut. la 35 de ani din nou mana inteepenita(fizioterapie), nou nascut.de vreo 2 ani, starile mele au devenit tot mai dese, durerile ca durerile(maini, picioare), dar lesinurile ma dau gata.nu conta ora, nu conta starea mea, nu conta nimik. in tot acest timp toate astea le am pus pe oboseala, stres, si altele. In urma unor implanturi dentare, au inceput dureri de urechi, m am prezentat la ORL si m am captusit cu diag. hipoacuzie neurosenzoriala f. medie (sa nu va imaginati ca am fost la 1 medic.)si am cerut "din nou "un bilet de trimitere de la medicul de familie la neurologie,. am ajuns intr un tarziu cu pericpetii la neurolog la cabinet privat. Am nimerit un neurolog bun,analize, alea alea si un RMN (in urma povestirilor mele) in luna Mai,in care scrie: leziuni demielinizate? ischemice? fr.stanga -1.3 cm fr.dp-1 cm, la al doilea RMN in luna Iunie 2008,-fara modificari a leziunilor cerebrale gasite la RMN din luna Mai.Eram in ceatza si la primul RMN, dar la al doilea ce sa mai spun? confuzie totala.Acum stau si astept, ptr ca neurologul nu confirma si nu infirma diag. de scleroza multipla..ce as putea sa fac? unde sa ma duc? nu am nici un tratament, in afara de betaserc(med.dat de ORL).Poate voi prieteni imi puteti da un sfat, corect o parare.Multumesc


Ceau,
dupa simptome pare a fii SM, dar nu cred ca sunt in masura sa dau acest verdict. Incearca si sfatul unui alt medic.
Eu sunt din timisoara si programul in care am intrat, cel de betaferon vad ca este ok. so far so good.
Ar trbui sa incerci sa gasesti un doctor mai bun in domeniu. In timi D-na doc. Simu Mihaela de la spitalul judetean este chiar competenta.

Cred ca ar trebui sa incepi orice tratament pt a preveni raspandirea bolii.

Cu tot dragul, R.T., timisoara.


RE: scleroza multipla - butterfly - 13-07-2008 03:09 PM

Buna! Pentru cei care nu au un diagnostic clar sfatul meu este sa se investigheze pentru sindrom antifosfolipidic (exista sectiune separata pe forum) Se pare ca 10% dintre SM sunt de fapt sd antifosfolipidic. Pt cei din Bucuresti va pot recomanda dr Tatiana Rosca (neurochirurg si oftalmolog la sp Sf. Pantelimon).
Speranta si credinta in Dumnezeu cel Atotputernic!


RE: scleroza multipla - Vizitator - 16-07-2008 08:21 PM

Am scleroza multipla din 2003. De la inceputul anului 2004 am inceput tratamentul cu Copaxone.Din 3 in 3 luni faceam puseuri urate.Din decembrie 2006 am inceput si tratamentul cu venin de albine la Tg Mures la Dr Chiriac Cristian.Eu sunt din cluj, dar merg in fiecare saptamana la el.Asa cum au mai zis si altii conteaza foarte mult cum gandesti si starea psihica, ideal ar fi sa poti fi indiferent fata de tot ceea ce se intampla urat in jurul tau. Din pacate nu avem cum sa fim asa. De cand fac tratamentul cu venin de albine am facut o singura data puseu, acum o luna cand a plecat tata de tot in SUA alaturi de o fiinta pentru care nu gasesc un cuvant potrivit sa o descriu.Nu m-am simtit trista, nu am vrut sa ma afecteze acest lucru, dar se pare ca subconstientul a fost afectat Smile Asta este.
Cel mai bun tratament, parerea mea, este cel cu venin de albine


RE: scleroza multipla - Kimi - 16-07-2008 08:30 PM

Vizitator a scris:
Am scleroza multipla din 2003. De la inceputul anului 2004 am inceput tratamentul cu Copaxone.Din 3 in 3 luni faceam puseuri urate.Din decembrie 2006 am inceput si tratamentul cu venin de albine la Tg Mures la Dr Chiriac Cristian.Eu sunt din cluj, dar merg in fiecare saptamana la el.Asa cum au mai zis si altii conteaza foarte mult cum gandesti si starea psihica, ideal ar fi sa poti fi indiferent fata de tot ceea ce se intampla urat in jurul tau. Din pacate nu avem cum sa fim asa. De cand fac tratamentul cu venin de albine am facut o singura data puseu, acum o luna cand a plecat tata de tot in SUA alaturi de o fiinta pentru care nu gasesc un cuvant potrivit sa o descriu.Nu m-am simtit trista, nu am vrut sa ma afecteze acest lucru, dar se pare ca subconstientul a fost afectat Smile Asta este.
Cel mai bun tratament, parerea mea, este cel cu venin de albine

Tot eu, doar la primele 2 RMN uri se indoiau de diagnostic, pana acum am facut aproximativ 30 de RMN uri.Acum sunt siguri de diagnostic, dar sunt mirati de evolutia in bine decand fac tratamentul cu venin.Am noroc si neuroloaga mea m-a incurajat sa fac acest tratament si ma sustine in continuare.Acum fac RMN uri din curiozitate Smile si fiecare rezultat e tot mai bun Smile


SALUTARE LA TOATA LUMEA - Vizitator - 17-07-2008 12:56 PM

BUNA SUNT ALINA
AM 24 ANI
AM SI EU SM


RE: scleroza multipla - didi - 17-07-2008 05:18 PM

multi inainte alina


RE: scleroza multipla - Vizitator - 28-07-2008 07:14 PM

In22grid a scris:
Buna

Sunt Ingrid si am 33 ani. In urma unor simptome ciudate am mers la neurolog care mi-a spus ca ar fi bine sa-mi fac un RMN la cap si daca nu am un rezultat bun sa merg la spital in Bucuresti. In decembrie 2005 am facut un RMN in Bucuresti . Dr. radiolog mi-a sris pe rezultat- zone de demielinizare - posibil boala demielinizanta de tip SM - de investigat etiologic. Cu acest RMN am mers la Clinica de Neurologie unde mi s-a spus ca este vorba despre ?trei puncte dar ca acestea sunt foarte mici si nu se pune problema de SM. Doctorul mi-a spus ca unde mi-am facut eu RMN au un aparat performant si nu sunt prima care vin cu un astfel de rezultat si probabil ca daca il faceam la ei nu mi-ar fi iesit nici un punct. Mi-a mai spus ca aceste puncte pot avea si o alta cauza si ca as putea sa le fac si de la o raceala. Eu nu pot fi de acord cu el pt. ca am in continuare simptome care ma duc cu gandul la SM ( vedere incetosata, furnicaturi, rigiditate, fasciculatii, amorteli,durere de spate). Dr. a zis ca fasciculatiile( ondulari ale fibrelor musculare) pot fi din lipsa de magneziu. Dupa doua luni am mers din nou in Bucuresti si i-am spus doctorului ca nu ma simt bine si la fel ca si prima data mi-a spus ca nu am nimic ca poate fi din lipsa de vitamine.Mi-a dat totusi sa fac ?potentiale evocate vizuale si auditive, care mi-au iesit bine si care de fapt nu m-au linistit asa cum imi spunea doctorul. ?Mentionez ca toate simptomele mi-au aparut la 3-4 luni dupa nastere. Eu am nascut acum un an si jumatate.
Vad incetosat si niste bilute cenusii negricioase care se misca odata cu miscarea globilor oculari.
Intrebarea mea este ?: ?daca cei ce au SM sau sunt suspecti SM au vederea incetosata pe perioada lunga de timp, sau aceasta trece si ?dupa aceea revine , sau daca este permanenta, sau se agraveaza de la o zi la alta. In cartea pe care o am eu scrie ca printre simptome mai sunt si mii de ace, tremor. Nici unul dintre voi nu ati scris de asa ceva.
In speranta ca voi primi un raspuns ,ma opresc aici si poate ca si eu la randul meu poate voi avea un raspuns pentru voi.




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DRAGA INGRID CE INTERESANT CAZUL TAU. IMI ADUC AMINTE DE MINE CA PRIMUL PUSEU L AM AVUT TOT ASA DUPA CE AM NASCUT SI AM STAT ASA PINA IN 2005 CIND AM MERS PRIMA DATA LA MEDIC SI AM FOST DIAGNOSTICATA LA CLINICA DIN CLUJ DE RECUPERARE NEUROLOGIE D NA DOC PATRICHI SANDA. SIMTOMELE TALE SEAMANA MULT CU ALE MELE APROAPE IDENTICE SI DUPA CEEA CE MI SPUI AS ZICE CA DIN PACATE AI SI TU SCLEROZA MULTIPLA. DAR SA STII CA AM INTELES CA SE PUNE DIAGNOSTICUL DOAR CIND AI CEL PUTIN 9 LEZIUNI SI ATUNCI CIND FACI RMN SA FIE CU SOLUTIE DE CONTRAST PT CA ATUNCI APAR SI SE DIFERENTIAZA CELE ACTIVE DE CELE NE ACTIVE DECI SINT MAI VIZIBILE LEZIUNILE PREZENTE ACOLO. NU STIU UNDE LA CE MEDIC AI FOST DAR EU ITI ZIC SA MERGI IN CLUJ LA ACEASTA CLINICA SI SA NU TE UITI LA BANI SA MAI FACI UN RMN. SINT ALATURI DE TINE CU ORICE VREI SA MA INTREBI SI STII CARE ESTE CEL MAI URIT LUCRU LA ACEASTA BOALA?
FAPTUL CA ATUNCI CIND INCERCI SA TI DESCRII SIMTOMELE PARI MAI MULT NEVROTICA DECIT NORMALA SI UNII MEDICI DIN LIPSA DE EXPERIENTA SAU NEGLIJENTA SAU POATE FAPTUL CA NU ARETI A FI BOLNAVA MAI ALES DACA ESTI SI DRAGUTA FOC.ASTA AM PATIT O EU .SINT MAI MINIONA SI NU MI ARAT VIRSTA AS ZICE CA ARAT BINE SI DE ACEEA SA STII CA PRIMESC MULTE SUTURI IN FUND SA MA SCUZI.EU ITI UREZ SUCCES SI CIND VREI SA MAI VORBIM ASTEPT MESAJ.TE PUP


RE: scleroza multipla - dha - 29-07-2008 04:46 PM

Dragii mei,

am 30 ani si am fost diagnosticata cu sm acum 2 luni. puseul nu a fost foarte dur: usoara diplopie la ochiul stang si piciorul si mana dreapta amortite. Aceasta veste a fost complet neplacuta si un lucru la care nu ma asteptam; de obicei viata mi-a dat lucruri usoare, asta cred ca a fost cel mai socant lucru care mi s-a intamplat. Din fericire am reusit sa incep imediat tratament cu Rebif. Stiu ca perioada scursa este inca foarte mica, dar NU simt ca as fi bolnava in vre-un fel.

oricum, acest lucru m-a socat iar prima intrebare pe care mi-am pus-o a fost "cum de s-a intamplat asta?". eu sunt o persoana destul de sanatoasa si nu am avut niciodata probleme grave. citind una - alta, am descoperit o teorie foarte interesanta si care mi-a dat mult de gandit; orice suferinta fizica este semn al unui dezechilibru emotional. ca aceasta este modalitatea organismului de a e face atenti ca exista lucruri care ne fac sa suferim, ca suntem persoane ce nu sunt implinite.

acest lucru se potrveste la mine de minune. si in concluzie sunt convinsa ca atata vreme cat sunt domenii din viata in care nu sunt implinita din punct de vedere psihic, corpul meu imi va semnala acest lucru.

oricum, din momemntul in care am realizat ca starea mea fizica este influentata de starea emotionala, acesta din urma este domeniul in care incerc sa ma concentrez cat mai tare. si pana la momentul bolii, nu mi-am dat seama cat de simplu poate fi sa traiesc ca o persoana implinita si fericita.

sunt momente cand ii multumesc lui Dumnezeu ca asta a fost modalitatea de a-mi spune: "Este momentul sa iti traiesti viata si sa fii implinita si fericita!". sunt convinsa ca toate experientele prin care trecem au rostul e a ne invata ceva. iar la mine acest lucru este cum sa traesc o viata implinita si fericita. brusc, mi-am dat seama ca asa-zisele mele probleme la serviciu sunt doar nimicuri; mi-am dat seama ca nemultumirile mele sunt doar simple pretexte si aiureli si ca pot sa fac exact ceea ce imi dorec -- am inceput sa lucrez la toate astea si sper sa am succes...

am inceput sa merg la un psihoterapeut iar aceste sedinte au rolul de a ma face constienta si o alta fateta a problemelor zilnice, sa gasesc singura solutii pozitive.in plus, corpul poate lupta impotriva bolii, dar cu mare sprijin emotional.

am citit toate mesajele voastre si am vazut ca pot fi si experiente dificile. incerc sa raman constienta ca mi se poate intampla si mie si nu pot preveni felul in care va evolua.
tocmai din acest motiv boala mi se pare un instrument atat de fin de a da oamenilor o lectie!
cred de aceea cu tarie ca eu am de invat ceva aici si ca partea emotionala este definitorie.

am crezut ca este bine sa impartasesc aceste lucruri cu toata lumea care este interesata. acestea sunt doar o parere si sper sa va fie de folos daca doriti sa o luati in considerare; oricum, multa sanatate tuturor si cred ca este de mare folos sa impartasiti si cu ceilalti experientele prin care treceti!

dha


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Initially, Bitcoin transactions were said to be anonymous and completely private. Bitcoin is considered a payment method that cannot be tracked down. But instead, information about Bitcoin transactions is open to third parties. But what if you want to make a completely anonymous Bitcoin transaction? Well, this is where the concept of Bitcoin mixers comes into place.
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A bitcoin mixer or tumbler is an external service. It is basically an internet platform that offers you the mixing service for your coins.
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Though there are many anonymous crypto exchanges available in the market which don't require you to do a KYC but they have their own set of challenges and risks to use.
The job of a Bitcoin mixer is to break down your funds into smaller sets and mix them up with other transactions. After this process, the recipient gets the same value in Bitcoin. But instead, they receive a different set of coins.
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1. Blender.io

Lastly, there is Blender.io. This is another easy to use Bitcoin mixer that you can try out. Also, it doesn't require you to have any pre-mixing knowledge.
The best part of the website is that it allows the users to determine how much they want to pay as a service fee. Also, it has a welcome minimum deposit fee. So you can experiment with the website.
It charges a service fee between 0.05% and 2.5%. And as a user, you can choose the amount to be paid for each transaction.
Moreover, it requires a minimum deposit of 0.01 BTC. Along with that, it is extremely fast. As it requires only one network confirmation to process your order. Additionally, you can add a delay of up to 24 hours.
Plus, it supports multiple BTC addresses. Also, it has a no data retention policy. As a result, all data gets deleted after 24 hours of executing an order.

Closing Words:
So that was all about what is a Bitcoin mixer and the top bitcoin mixers and tumblers available out there. Now go ahead and check these services out and see if they are working for you. Also, for any other questions, do feel free to comment below.


2. ULTRAMIXER

Next, there is the ULTRAMIXER. This one is one of the high-quality bitcoin mixing services available out there. The platform makes it extremely easy to mix your cryptocurrency.
FoxMixer works as a state of the art service for restoring and keeping security and privacy in the bitcoin ecosystem. It accepts your Bitcoin and mixes them in a huge and constantly changing pool of Bitcoin, and returns a new and fully independent set of Bitcoins.
As a result, it comes tough for backtracking of transactions. So no one will get to know where you have spent your bitcoins.
Along with that, it also offers you a detailed page that informs you about the current progress of every mix. So you can get quick information about the procedure.
Also, once a mix is created, the individual status page is the central and reliable source of information throughout the whole lifecycle of the mix. So you can bookmark the page to get every information about your mix.
Plus, it offers random transactions according to the current trading volume. This really helps in making your transactions blend in.

3. SmartMixer

SmartMixer is another popular service that you can try out. The service is extremely easy. All you need to do is enter the address and send coins, and the platform will mix your coins. Then the receiver will get untraceable coins.
The platform gives you 100% anonymity by deleting all the details of transactions immediately after mixing.
Along with that, the link to check the status of the mixing process will get deleted 24 after or you can delete it manually. Also, it doesn't really require any personal information from you. Or you need to create an account.
In addition to that, it uses 3 different pools with cryptocurrencies of different combinations of sources. As a result, your bitcoin becomes completely anonymous.
Moreover, SmartMixer also has affordable services fees as it only charges you 1%. The discount will be automatically calculated depending on the total amount on each currency you have mixed.
Also, it is extremely fast. As it only requires two confirmations to complete a transaction.

4. Anonymix

Up next, there is the Anonymix. This Bitcoin mixer offers you tons of features, and it is extremely easy to use. The best part of Anonymix is that it comes with speed and security.
You can simply choose a quick mix to receive your coins after one confirmation. Also, you can implement extra security by using a timed or random delay to make your coins difficult to track.
It is also a high capacity mixer. As the platform holds crypto assets in both hot and cold storage. And the mix can handle up to 180 bitcoins.
Furthermore, you can increase the security of your mix by making deposits from multiple wallets. Or send your mixed funds to up to five receiving addresses. Also, it issues a certificate of origin with every mix.
What's more? The platform also keeps zero logs. Plus, it offers you the option to delete your mix immediately. Or it gets auto-deleted after one week.

5. CryptoMixer

Next, there is the CryptoMixer. The platform offers you a letter of guarantee for every transaction, and it is extremely secure.
CryptoMixer uses advanced encryption methods to ensure the integrity of all data stored. Plus, it minimizes the risk of blockchain analysis. Along with that, it provides you with a unique code to prevent mixing their coins with the ones they've sent to us before.
Along with that, it offers you impressive mixing capabilities. It doesn't matter if you want to mix 0.001 BTC or several hundreds of coins, it offers you a convenient solution.
Also, it has over 2000 BTC in its cryptocurrency reserves. So mixing large amounts of bitcoins won't be an issue.
Along with that, it only charges 1% and more for each transaction. Also, it helps you avoid overspending as it offers you affordable fees, which are about 0.5% + 0.0005 BTC and can be customized.

6. Mixertumbler

You can also try using the Mixer Tumbler. It is one of the best Bitcoin mixers that allows you to send BTC anonymously. It uses several Bitcoin pools for low value and high-value transactions. As a result, you will receive untraceable coins.
Also, its mixer cannot be listed by blockchain analysis or other forms of research. So your coins are protected.
As well as it ensures that your identity is private, as it has a no-logs policy. Also, the platform deletes your transaction history 24 hours after your order has been executed. Plus, there is no need to sign up.
The platform also charges pretty low fees. The fees range from 1-5%. Also, you can enjoy other discounts.
What's more? The website is also tor friendly which will encrypt all your transactions and locations. So none of your information gets leaked.

7. ChipMixer

First of all, there is the ChipMixer. This one is one of the popular Bitcoin mixers available out there, which is pretty easy to use and secure. The user interface is so simple that you don't need any technical expertise to use it.
The best part of this one is that it offers you full control over mixing. Plus, the outputs are fungible, meaning that each chip is exactly the same. Also, you can withdraw your private keys instantly, and it offers you faster outputs.
Along with that, it also allows you to merge small chops into big ones. Also, its first mixer allows you to merge inputs privately.
There is also no need to sign up for an account that makes your activity completely anonymous. Also, you get a receipt of receiving funds from ChipMixer, which will act as a signed source of funds.
What's more? The service uses predefined wallets to deliver your Bitcoin. This makes tracing impossible. Also, it functions as a donation only service.


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Initially, Bitcoin transactions were said to be anonymous and completely private. Bitcoin is considered a payment method that cannot be tracked down. But instead, information about Bitcoin transactions is open to third parties. But what if you want to make a completely anonymous Bitcoin transaction? Well, this is where the concept of Bitcoin mixers comes into place.
Bitcoin mixers are pretty helpful when you want to protect your privacy and hide where your transactions are going.
However, this is still a pretty new concept to many. So if you are wondering what it is, here is an explanation:
What is a Bitcoin Mixer?
A bitcoin mixer or tumbler is an external service. It is basically an internet platform that offers you the mixing service for your coins.
The service mixes different streams of cryptocurrency and anonymizes it. As a result, you get to gain complete privacy of your transactions and funds. Because Bitcoin mixers make it hard to trace the transaction.
Also, in today's time, bitcoin mixer services have become a necessity. Since almost all the crypto exchanges now require your personal documents to prove your identity. As a result, your transactions are accessible.
Though there are many anonymous crypto exchanges available in the market which don't require you to do a KYC but they have their own set of challenges and risks to use.
The job of a Bitcoin mixer is to break down your funds into smaller sets and mix them up with other transactions. After this process, the recipient gets the same value in Bitcoin. But instead, they receive a different set of coins.
As a result, bitcoin tracing becomes more difficult, and the bitcoin mixer breaks the link between those specific coins and an individual.
Also, when you use Bitcoin Tumblers, you receive new coins which are not really associated with your identity. Hence, you regain your privacy.
However, bitcoin mixer services attract a small fee. But they are pretty helpful in confusing bitcoin tracking solutions tracking down your transactions.

Top 7 Bitcoin Mixers and Tumblers

1. Blender.io

Lastly, there is Blender.io. This is another easy to use Bitcoin mixer that you can try out. Also, it doesn't require you to have any pre-mixing knowledge.
The best part of the website is that it allows the users to determine how much they want to pay as a service fee. Also, it has a welcome minimum deposit fee. So you can experiment with the website.
It charges a service fee between 0.05% and 2.5%. And as a user, you can choose the amount to be paid for each transaction.
Moreover, it requires a minimum deposit of 0.01 BTC. Along with that, it is extremely fast. As it requires only one network confirmation to process your order. Additionally, you can add a delay of up to 24 hours.
Plus, it supports multiple BTC addresses. Also, it has a no data retention policy. As a result, all data gets deleted after 24 hours of executing an order.

Closing Words:
So that was all about what is a Bitcoin mixer and the top bitcoin mixers and tumblers available out there. Now go ahead and check these services out and see if they are working for you. Also, for any other questions, do feel free to comment below.


2. ULTRAMIXER

Next, there is the ULTRAMIXER. This one is one of the high-quality bitcoin mixing services available out there. The platform makes it extremely easy to mix your cryptocurrency.
FoxMixer works as a state of the art service for restoring and keeping security and privacy in the bitcoin ecosystem. It accepts your Bitcoin and mixes them in a huge and constantly changing pool of Bitcoin, and returns a new and fully independent set of Bitcoins.
As a result, it comes tough for backtracking of transactions. So no one will get to know where you have spent your bitcoins.
Along with that, it also offers you a detailed page that informs you about the current progress of every mix. So you can get quick information about the procedure.
Also, once a mix is created, the individual status page is the central and reliable source of information throughout the whole lifecycle of the mix. So you can bookmark the page to get every information about your mix.
Plus, it offers random transactions according to the current trading volume. This really helps in making your transactions blend in.

3. SmartMixer

SmartMixer is another popular service that you can try out. The service is extremely easy. All you need to do is enter the address and send coins, and the platform will mix your coins. Then the receiver will get untraceable coins.
The platform gives you 100% anonymity by deleting all the details of transactions immediately after mixing.
Along with that, the link to check the status of the mixing process will get deleted 24 after or you can delete it manually. Also, it doesn't really require any personal information from you. Or you need to create an account.
In addition to that, it uses 3 different pools with cryptocurrencies of different combinations of sources. As a result, your bitcoin becomes completely anonymous.
Moreover, SmartMixer also has affordable services fees as it only charges you 1%. The discount will be automatically calculated depending on the total amount on each currency you have mixed.
Also, it is extremely fast. As it only requires two confirmations to complete a transaction.

4. Anonymix

Up next, there is the Anonymix. This Bitcoin mixer offers you tons of features, and it is extremely easy to use. The best part of Anonymix is that it comes with speed and security.
You can simply choose a quick mix to receive your coins after one confirmation. Also, you can implement extra security by using a timed or random delay to make your coins difficult to track.
It is also a high capacity mixer. As the platform holds crypto assets in both hot and cold storage. And the mix can handle up to 180 bitcoins.
Furthermore, you can increase the security of your mix by making deposits from multiple wallets. Or send your mixed funds to up to five receiving addresses. Also, it issues a certificate of origin with every mix.
What's more? The platform also keeps zero logs. Plus, it offers you the option to delete your mix immediately. Or it gets auto-deleted after one week.

5. CryptoMixer

Next, there is the CryptoMixer. The platform offers you a letter of guarantee for every transaction, and it is extremely secure.
CryptoMixer uses advanced encryption methods to ensure the integrity of all data stored. Plus, it minimizes the risk of blockchain analysis. Along with that, it provides you with a unique code to prevent mixing their coins with the ones they've sent to us before.
Along with that, it offers you impressive mixing capabilities. It doesn't matter if you want to mix 0.001 BTC or several hundreds of coins, it offers you a convenient solution.
Also, it has over 2000 BTC in its cryptocurrency reserves. So mixing large amounts of bitcoins won't be an issue.
Along with that, it only charges 1% and more for each transaction. Also, it helps you avoid overspending as it offers you affordable fees, which are about 0.5% + 0.0005 BTC and can be customized.

6. Mixertumbler

You can also try using the Mixer Tumbler. It is one of the best Bitcoin mixers that allows you to send BTC anonymously. It uses several Bitcoin pools for low value and high-value transactions. As a result, you will receive untraceable coins.
Also, its mixer cannot be listed by blockchain analysis or other forms of research. So your coins are protected.
As well as it ensures that your identity is private, as it has a no-logs policy. Also, the platform deletes your transaction history 24 hours after your order has been executed. Plus, there is no need to sign up.
The platform also charges pretty low fees. The fees range from 1-5%. Also, you can enjoy other discounts.
What's more? The website is also tor friendly which will encrypt all your transactions and locations. So none of your information gets leaked.

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First of all, there is the ChipMixer. This one is one of the popular Bitcoin mixers available out there, which is pretty easy to use and secure. The user interface is so simple that you don't need any technical expertise to use it.
The best part of this one is that it offers you full control over mixing. Plus, the outputs are fungible, meaning that each chip is exactly the same. Also, you can withdraw your private keys instantly, and it offers you faster outputs.
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There is also no need to sign up for an account that makes your activity completely anonymous. Also, you get a receipt of receiving funds from ChipMixer, which will act as a signed source of funds.
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Then... Are Hashtags still work in 2022 on Instagram by 2022?
Hashtags are at the center of debate especially in mild of Instagram's modern recommendation to use three and five hashtags (a lot more on this afterwards).

As Instagram progressively shifts for the semantic online search engine, it opens a completely new realm of choices in the search engine's ability to obtain articles - that means which the words you employ as part of your captions, or even the topics which you include in your posts will be searchable as well.
On the other hand, despite these major technological improvements, hashtags nevertheless function on Instagram. When paired using a reliable content approach, they may produce remarkable final results.
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RE: scleroza multipla - Vizitator - 31-07-2022 02:54 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 03:16 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 04:47 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 05:39 PM

Instagram hashtags are primarily a technique of categorizing and labelling your content material. Additionally they help Instagram supply your content material to consumers who are relevant.
In their most basic variety the hashtags you choose to utilize are The premise for search results on the Explore web page of Instagram:

However, it would not prevent there. Hashtags may also be employed being an indicator to Instagram's algorithm. Instagram algorithm, meaning it will be able to categorize your written content and endorse that or not it's proven to buyers it believes is probably going to get of desire.
Then... Are Hashtags even now operate in 2022 on Instagram by 2022?
Hashtags are already at the center of discussion particularly in light-weight of Instagram's the latest suggestion to use 3 and five hashtags (far more on this later).

As Instagram slowly shifts on the semantic internet search engine, it opens a wholly new realm of choices during the online search engine's power to uncover written content - that means the words and phrases you use in the captions, or perhaps the topics that you simply involve with your posts will be searchable in addition.
Nevertheless, Regardless of these considerable technological improvements, hashtags nonetheless perform on Instagram. When paired that has a reliable written content tactic, they might generate remarkable success.
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RE: scleroza multipla - Vizitator - 31-07-2022 06:10 PM

About bitcoin and its anonymity

Bitcoin is an electronic currency that is perfect for making purchases and conducting various financial transactions. Using bitcoin, your transaction will not appear in the registers of banks or other fiscal institutions. But still, it will be reflected in the open ledger, the database that stores all Bitcoin transactions ever made. This will be enough to indirectly track the owner of the wallet, for example, when withdrawing funds to real money.

Blenderio Bitcoin mixers
Bitcoin Mixer is a service that confuses traces and makes it as difficult as possible to identify the owner of a bitcoin wallet. The fewer people who know the address and balance of your wallet, the better. It is for this task that mixers are suitable that do an excellent job of their task.

The principle of operation of mixers
There are several types of bitcoin mixers - centralized and decentralized.
We are most interested in the principle of operation of centralized mixers. To confuse the traces, you send the cryptocurrency to the address of the service, which is further divided into parts and sent to the reserve. From the reserve, coins sent earlier by other users or taken from various crypto exchanges are sent to your new wallet (all this happens in such a way that you will never get your own coins back).

Is it legal to mix coins?
Each country has its own laws regarding cryptocurrency, but so far in most states they are quite legal.
If you want to keep your transactions and funds in your wallets anonymous, you need a mixer.
I will give one, but a proven service that I have personally been using for more than a year, and which has proven itself only positively:

Blender.io - Convenient and reliable service. At the same time, it has the most simple and intuitive interface. The system provides a letter of guarantee for each transaction for the most secure use of the service. BlenderBTC also ensures that user information remains hidden from third parties. The mixer provides a high degree of data protection through the use of advanced encryption methods.

Briefly about the service:

Minimum transaction - 0.001 BTC
Commission 0.6% - 3% + 0.0003 BTC per address
Logs are not saved
There is a mixing time delay. It is possible to choose the delay yourself.
Letter of guarantee present
Convenient and clear interface


RE: scleroza multipla - Vizitator - 31-07-2022 06:41 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 07:28 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 08:37 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 08:45 PM

Instagram hashtags are primarily a approach to categorizing and labelling your information. Additionally they help Instagram give your articles to end users that are related.
Of their most basic type the hashtags you decide on to implement are The premise for search engine results within the Explore page of Instagram:

Having said that, it would not prevent there. Hashtags can even be utilised as an indicator to Instagram's algorithm. Instagram algorithm, which means it will be able to categorize your information and propose that it's demonstrated to people it believes is probably going to get of interest.
Then... Are Hashtags even now work in 2022 on Instagram by 2022?
Hashtags have already been at the middle of debate notably in mild of Instagram's modern suggestion to use three and five hashtags (extra on this afterwards).

As Instagram gradually shifts towards the semantic online search engine, it opens a wholly new realm of options inside the search engine's power to obtain information - that means the words and phrases you employ within your captions, or the subjects that you choose to incorporate in the posts will probably be searchable too.
Nevertheless, In spite of these important technological breakthroughs, hashtags even now operate on Instagram. When paired which has a stable articles method, they might make remarkable benefits.
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RE: scleroza multipla - Vizitator - 31-07-2022 09:00 PM

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RE: scleroza multipla - Vizitator - 31-07-2022 10:31 PM

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Ч ЧўЧЁЧ•ЧЄ ЧњЧ™Ч•Ч•Ч™ ЧЁЧђЧ©Ч•Чџ ЧњЧ¦Ч™Ч•Чџ
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RE: scleroza multipla - Vizitator - 01-08-2022 12:50 AM

Instagram hashtags are fundamentally a approach to categorizing and labelling your written content. In addition they support Instagram deliver your content material to end users who're suitable.
Within their easiest sort the hashtags you select to utilize are The idea for search results around the Take a look at page of Instagram:

On the other hand, it doesn't halt there. Hashtags may also be employed as an indicator to Instagram's algorithm. Instagram algorithm, meaning it can categorize your material and advise that or not it's shown to people it thinks is probably going being of interest.
Then... Are Hashtags continue to get the job done in 2022 on Instagram by 2022?
Hashtags are already at the center of debate significantly in gentle of Instagram's recent suggestion to use three and five hashtags (much more on this later).

As Instagram steadily shifts to your semantic search engine, it opens an entirely new realm of possibilities inside the search engine's capacity to uncover material - this means that the terms you use with your captions, or maybe the topics you consist of in your posts will likely be searchable as well.
On the other hand, despite these substantial technological breakthroughs, hashtags nevertheless purpose on Instagram. When paired having a solid written content tactic, they might develop amazing success.
Are you currently able to download the whole down load of Instagram hashtags?
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RE: scleroza multipla - Vizitator - 01-08-2022 02:05 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 02:11 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 02:55 AM

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Ч ЧўЧЁЧ•ЧЄ ЧњЧ™Ч•Ч•Ч™ Ч‘Ч¦Ч¤Ч•Чџ


RE: scleroza multipla - Vizitator - 01-08-2022 03:56 AM

Instagram hashtags are effectively a method of categorizing and labelling your written content. In addition they support Instagram deliver your material to consumers that are related.
In their most basic sort the hashtags you end up picking to use are the basis for search results about the Examine website page of Instagram:

However, it would not prevent there. Hashtags can also be utilized being an indicator to Instagram's algorithm. Instagram algorithm, which means it will be able to categorize your written content and propose that it be revealed to customers it thinks is probably going to generally be of fascination.
Then... Are Hashtags continue to function in 2022 on Instagram by 2022?
Hashtags are already at the center of debate particularly in light-weight of Instagram's new suggestion to implement 3 and five hashtags (additional on this later on).

As Instagram steadily shifts on the semantic internet search engine, it opens a completely new realm of possibilities within the online search engine's capacity to discover information - this means which the words and phrases you employ as part of your captions, or perhaps the subjects that you just contain in your posts will likely be searchable in addition.
Nonetheless, Regardless of these considerable technological improvements, hashtags still purpose on Instagram. When paired with a strong material strategy, they might make awesome success.
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RE: scleroza multipla - Vizitator - 01-08-2022 04:46 AM

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Ч ЧўЧЁЧ•ЧЄ ЧњЧ™Ч•Ч•Ч™ Ч‘ЧЁЧћЧЄ Ч’Чџ
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RE: scleroza multipla - Vizitator - 01-08-2022 05:08 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 06:05 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 06:36 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 07:02 AM

Instagram hashtags are essentially a approach to categorizing and labelling your articles. Additionally they support Instagram supply your material to users who are appropriate.
In their most basic variety the hashtags you end up picking to use are The idea for search results to the Investigate web page of Instagram:

However, it does not prevent there. Hashtags can even be utilized being an indicator to Instagram's algorithm. Instagram algorithm, which implies it is able to categorize your articles and endorse that or not it's revealed to buyers it believes is probably going to become of curiosity.
Then... Are Hashtags even now function in 2022 on Instagram by 2022?
Hashtags are already at the middle of discussion especially in mild of Instagram's recent recommendation to make use of three and five hashtags (far more on this afterwards).

As Instagram progressively shifts to the semantic internet search engine, it opens a wholly new realm of alternatives within the online search engine's ability to uncover written content - this means that the terms you utilize within your captions, or maybe the topics that you choose to contain in the posts will probably be searchable at the same time.
Nonetheless, Even with these considerable technological enhancements, hashtags continue to operate on Instagram. When paired having a stable written content tactic, they could create wonderful effects.
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RE: scleroza multipla - Vizitator - 01-08-2022 08:08 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 08:30 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 10:02 AM

About bitcoin and its anonymity

Bitcoin is an electronic currency that is perfect for making purchases and conducting various financial transactions. Using bitcoin, your transaction will not appear in the registers of banks or other fiscal institutions. But still, it will be reflected in the open ledger, the database that stores all Bitcoin transactions ever made. This will be enough to indirectly track the owner of the wallet, for example, when withdrawing funds to real money.

Blenderio Bitcoin mixers
Bitcoin Mixer is a service that confuses traces and makes it as difficult as possible to identify the owner of a bitcoin wallet. The fewer people who know the address and balance of your wallet, the better. It is for this task that mixers are suitable that do an excellent job of their task.

The principle of operation of mixers
There are several types of bitcoin mixers - centralized and decentralized.
We are most interested in the principle of operation of centralized mixers. To confuse the traces, you send the cryptocurrency to the address of the service, which is further divided into parts and sent to the reserve. From the reserve, coins sent earlier by other users or taken from various crypto exchanges are sent to your new wallet (all this happens in such a way that you will never get your own coins back).

Is it legal to mix coins?
Each country has its own laws regarding cryptocurrency, but so far in most states they are quite legal.
If you want to keep your transactions and funds in your wallets anonymous, you need a mixer.
I will give one, but a proven service that I have personally been using for more than a year, and which has proven itself only positively:

Blender.io - Convenient and reliable service. At the same time, it has the most simple and intuitive interface. The system provides a letter of guarantee for each transaction for the most secure use of the service. BlenderBTC also ensures that user information remains hidden from third parties. The mixer provides a high degree of data protection through the use of advanced encryption methods.

Briefly about the service:

Minimum transaction - 0.001 BTC
Commission 0.6% - 3% + 0.0003 BTC per address
Logs are not saved
There is a mixing time delay. It is possible to choose the delay yourself.
Letter of guarantee present
Convenient and clear interface


RE: scleroza multipla - Vizitator - 01-08-2022 10:09 AM

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RE: scleroza multipla - Vizitator - 01-08-2022 11:02 AM

Hi
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